Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression?


gnna

Recommended Posts

gnna Newbie

I've been gluten free for quite a while. I let little ingredients pass such as modified food starch, as long as I don't consume them often. I'm pretty rigid otherwise, make my own food don't even buy 'gluten-free' products too often with potato starch and all that. This week I ate a hamburger bun, 2 beers, very questionable popcorn, and a cookie. My intestines are kneading (I can feel it in my back)...but I've not been diagnosed with celiac disease! I just say 'gluten sensitive.'

 

Today I felt suicidal! Granted I don't like my job, i am quitting to move onto bigger and better things and I'm looking forward to the future. I just read an article about depression and celiac disease, I was consumed with ridiculous thoughts and I've felt worthless all day today. 

 

Open Original Shared Link

 

Has this happened to anyone else?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I've been gluten free for quite a while. I let little ingredients pass such as modified food starch, as long as I don't consume them often. I'm pretty rigid otherwise, make my own food don't even buy 'gluten-free' products too often with potato starch and all that. This week I ate a hamburger bun, 2 beers, very questionable popcorn, and a cookie. My intestines are kneading (I can feel it in my back)...but I've not been diagnosed with celiac disease! I just say 'gluten sensitive.'

 

Today I felt suicidal! Granted I don't like my job, i am quitting to move onto bigger and better things and I'm looking forward to the future. I just read an article about depression and celiac disease, I was consumed with ridiculous thoughts and I've felt worthless all day today. 

 

Open Original Shared Link

 

Has this happened to anyone else?

 

Welcome!

 

So....when you say a Hamburger Bun....a couple Beers....along with questionable popcorn....

 

am I incorrect in saying you were frustrated with living gluten-free and chose to say well...F...it?

 

If you have been gluten-free for a period of time and you then add it with several sources...the reaction can be EXTREME...including emotional.

 

Please chalk this up to an experiment gone wrong.

 

Should you actually be considering harming yourself..PM me...unfortunately...I've lost those I love and will bend over backwards to send you all the info you need.

 

-Lisa 

ravenwoodglass Mentor

One of the first signs I have been glutened is an overwhelming depression like you describe. The tummy issues, joint and muscle pain come a day or two later. For me the depression lifts after about 24 hours but for some folks it might take longer. Hang in there and take this as your bodies way of telling you to stay away from gluten. You are in a good place for support with that and we will try to help in any way we can.

gnna Newbie

Thanks so much, I feel so hopeless today. I basically thought that with this sensitivity I have can handle gluten once in a while, and I wanted a regular hamburger with the works. I am wrong. That's why I'm still baffled that I was not diagnosed, I've been tested twice and I don't think I can afford a specialist to get a biopsy. I am happier and lighter without consuming gluten at all. It seems like if a tiny amount like I mentioned is consumed I don't feel as horrible as I do when I full on eat something with flour. This sucks. oh well...we have to do what we have to do, right?

 

I read that people with type 0 blood types with nordic, british isles, and mediterranean ancestry have a high frequency of gluten sensitivity. I am both of nordic and british aisles decent. Oh well, I'm sure I'll feel fine in a few days.

  • 2 weeks later...
BeccaMeadows Newbie

I was extremely emotional, depressed, anxious and had food problems prior to diagnosis.  After eating gluten-free, all those problems went away.  One of the first signs I've been glutened other than stomach aches is depression and anxiety.

 

Hope you feel better soon. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,196
    • Most Online (within 30 mins)
      7,748

    Jen Fleming
    Newest Member
    Jen Fleming
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.