Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

greed2109

Recommended Posts

greed2109 Newbie

Hello, 

 

I recently just joined and find this forum to be very helpful. After two long years of all sorts of weird issues (joint pain, numbness and tingling, acid reflux) and thousands of dollars in medical bills with no answers for my symptoms turns out about 3 weeks ago monday my biopsy and blood test came back positive for Celiac Disease.. FINALLY looks like i may have an answer. 

 

Long story short my doctor is having me take Nutrametrix supplements ( ORAC, OPC-3, B-Complex, Might-a-mins, Aloe Vera Juice, and a Probiotic) To treat the nausea and burning sensation in my gut. Have any of you taken these supplements? Have they helped you? 

 

ORAC

OPC-3                             2x daily empty stomach

Activated-B Complex

 

Nutriclean Probiotic     2x daily before meals 

 

Might-a-mins      after/or before meals or PRN (as needed)

 

Aloe Juice natural flavor     2oz 4-5x as PRN 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I'm glad you have an answer, and welcome.

 

After looking up those supplements, my first thought is what stake does your doctor have in the company? If you purchase the cheapest way possible, 90 pills at a time, that is $200 for 45 days of supplements. And that's just the supplements, not the rest! Another $70 for probiotics, plus however many of the others you take. And at $26 a bottle for that aloe juice and 16  2oz servings you'll go through two bottles a week if that means 4-5 times a day as needed. I can tell you what I'd tell my doctor, no matter if I had the money to spend on it or not.

 

There are a lot of supplements and probiotics on the market. Your doctor having a financial stake in the company shouldn't influence which you choose to take. Have you been tested for vitamin deficiencies before you start taking anything or is your doctor just advising a random catch-all? A good B complex is something I see a significant number of people here say they take because they were deficient in B something or other. The ORAC and OPC-3 don't seem to offer any actual benefit, did the doctor provide sound medical reasoning on why you should be taking each of these? They both really seem an awful lot like snake oil to be perfectly honest.

 

I'm sure there will be people along with more knowledge of probiotics and supplements than I have. I have never taken mine in liquid form, I've always taken pills when I take them. I take ones with a USP stamp on them, which means they are independently reviewed by an outside source for quality. Nature Made is a good company and will label on their bottle if they are gluten free or not. It is my go-to company for supplements. I don't take a probiotic so I don't really have any advice on that one.

greed2109 Newbie

Thanks for the reply!

 

It was my doctors nurse practitioner who suggested I take those supplements. She was the first person I saw since being diagnosed and my symptoms included joint pain, headaches, numbness tingling, and bad stomach pains from dull to sharp. My GI told me my stomach was severely inflamed and would probably take about 6 months to heal.. Ill assume thats why I'm taking the Aloe Vera? My B-12 is also low at 300 not critical but for someone my age who eats healthy anyway should be around 550-700. The pro biotic and stomach enzymes are to help with digestion and stomach pain (is what i was told) As for the OPC and ORAC.. Looks like body cleansing and maybe some joint relief? I got blood drawn that day and don't understand most of the results but I do know I am not anemic I will get the results Thursday. I was told the Vili being dull and not being able to "pluck" nutrients that solid pills for vitamins would not be a good choice this early on for me. 

 

As for a financial stake.. Their office does sell these products however I did not buy them from their office... I do realize they are very expensive but at this point dealing with pain for 2 years ill do anything to feel better especially since I just got a full time Fire Department job and will be taking my PAT test in a week! So there was Urgency on my part.. I know it wont go away tomorrow but any relief would be great.. 

 

I will be seeing my actual PCP for the first time this Thursday and a nutritionist this Wens. I will update after those appointments. 

 

Thank you,

 

Gregory

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.