Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Take Much More!

JediMindTricks

Recommended Posts

JediMindTricks Newbie
JediMindTricks
Posted

I best start at the beginning.

 

I started smoking cannabis when I was ~16, and by 18 was smoking habitually 24/7. Around the age of 20 I started getting negative neurological effects. The first I remember was body dysmorphia but I continued smoking until I was ~22 when I started showing symptoms of psychosis; and finally quit when I started thinking that people could read my thoughts. I pretty much didn't leave my house for a year but finally managed to get a job and all the really bad psychosis subsided, I was left with very bad social anxiety though. Around this period of time I noticed that my stools were very loose with lumps of fat, I suffered from dry skin mostly on my arms, face and scalp. At some point I also changed from sleeping with two pillows to sleeping with one (may become relevant later).

 

Since then to now I have developed many symptoms :- social anxiety, anxiety mostly manifested as a fear of aliens (worse when dark), fatigue, pinguecula, blurred vision (seems to correlate with my anxiety, more anxiety = more blurred vision), sleep problems, loose fatty stools, dry skin, lose of labido, dysphoria etc (the list goes on).

 

The last few years I have pretty much tried all antidepressant, anti-anxiety and anti-psychotic medication to no avail. 2 weeks ago I came across something about celiac disease and found what I read very relevant and decided to start a gluten-free diet straight away. The first week was the best week of my adult life and all my symptoms seemed to be greatly reduced, I even went to the beach by myself with very little anxiety and had a conversation with someone while sitting on a bench; this is the first time this has happened since I was ~18, now 30. This may be a pure coincidence but after ~4 days gluten-free I felt the urge to start sleeping with 2 pillows again. I can also find correlations between my diet and the onset of my symptoms; around 16 - 22 my diet would have been mostly (95%) gluten filled food like pizza, bread, cakes and lots of lager etc which may have some relevance. I haven't drank lager for years as it just makes me very fatigued, angry and the hangovers were hell, I tried gluten-free lager after 5 days gluten-free and didn't get any negative effects and the hangover wasn't half as bad which leads me to think that what I was experiencing from gluten containing lager was poisoning.

 

Sadly the second week gluten-free has been the opposite of the first, all my symptom are back with a vengeance and I fear I may have experienced some sort of placebo. I had complete blood work done today for celiac, thyroid etc, but fear another dead end.

 

Another coincidence worth mentioning is that last year I went on holiday and the first 4 days I suffered with chronic diarrhea (I ate all the same food as the rest of my family and nobody else was ill), for the 6 weeks prior I went on an atkins diet (90% meat) and would have cut my gluten intake a lot, Didn't eat any fruit or veggies and was taking benzo's at the time, so I wouldn't of noticed any decrease/change in symptoms so didn't make any connection at the time.  

 

I don't really have any questions, I just felt like venting my frustration.

 

If anyone has anything to add or questions then please fire away :).    

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Well...I would think that it would be worth your time to revisit your gluten free diet and make 100% sure you are eating *clean* on the diet.  It took me several months to master the diet in 2005, so it's not so easy to begin and to learn all the ins and outs.

 

Begin simply with meats, fish, fresh veggies, eggs, rice and potatoes and fresh fruit.  Stay away from processed foods and be careful about shared equipment in your home.  Check you meds to make sure they are gluten free.  And make sure everything that can come into contact with your mouth, is gluten free.

 

Hope this helps.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

A week isn't lmg gluten-free, and some people get withdrawal from gluten, which might be what you experienced.

Atkins is a way into realizing a gluten connection for quite a few people.

If your tests are negative, it is worth considering Non Celiac Gluten Intolerance NCGI which doesn't come up on tests but has many of the same symptoms.

Good luck, glad you found the board :)

JediMindTricks Newbie
JediMindTricks
Posted
  • Author

Thanks for the replys. I've only been eating meat, fish, fruit and veggies and a gluten/dairy/yeast free multivitamin since going gluten-free 2 weeks ago. CC is a possibility :(, I have been very careful though.

 

After years of thinking that my problem was brain damage from cannabis and then for all my symptoms to go in the first week gluten-free, it was hard to not pin all my hopes on my problem being celiac disease/GI. I did have something that resembled a normal stool today for the first time in years, so that's a positive sign.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Sounds encoraging, let us know how you get on.

 

Have you spotted the gluten inolerance and beahaviour section? It might be of interest to you

 

https://www.celiac.com/forums/forum/52-gluten-intolerance-and-behvior/

JediMindTricks Newbie
JediMindTricks
Posted
  • Author

Sounds encoraging, let us know how you get on.

 

Have you spotted the gluten inolerance and beahaviour section? It might be of interest to you

 

https://www.celiac.com/forums/forum/52-gluten-intolerance-and-behvior/

 

Thanks for the reply :).

 

Well FML. After 2 weeks of the worst time of my life, I finally realized I was suffering from hypoglycemia. I couldn't figure out why my symptoms were worse at night. I was getting paranoid delusions about aliens (beam me up scotty). I was eating a fruit smoothie for breakfast, meat and veggies for lunch and meat and veggies for dinner. Anyways I've balanced out my sugar intake and I'm having glasses of orange juice throughout the day. I'm feeling much better.

 

I'm convinced that my problem is caused by malabsorption after feeling how bad low blood sugar can make me feel. My stools have improved from before I went gluten free and it's really clear now to see that my stool are full of raisin sized lumps of fat. I just got some cod liver oil so I'll see if that makes any difference :). I'm still waiting on my celiac tests but apparently my thyroid is normal.

 

Any comments or/and questions are welcome.

JMT. 

nvsmom Community Regular
nvsmom
Posted

I would not discount withdrawal yet. I felt worse during the second and third week too. I was tired, grumpy, had shakes and a wicked headache; it was a bit like hypoglycemia. Never the less, I am glad you are starting to feel better.  :)

 

I wanted to suggest getting copies of all of your tests, including the thyroid. Doctors are sometimes not very good at reading lab results and applying them to a patient's symptoms. A TSH at the top of the normal range for a healthy person might be perfect but for someone with symptoms, it could indicate hypothyroidism.

 

Best wishes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JediMindTricks Newbie
JediMindTricks
Posted
  • Author

I would not discount withdrawal yet. I felt worse during the second and third week too. I was tired, grumpy, had shakes and a wicked headache; it was a bit like hypoglycemia. Never the less, I am glad you are starting to feel better.  :)

 

I wanted to suggest getting copies of all of your tests, including the thyroid. Doctors are sometimes not very good at reading lab results and applying them to a patient's symptoms. A TSH at the top of the normal range for a healthy person might be perfect but for someone with symptoms, it could indicate hypothyroidism.

 

Best wishes.

 

Thanks for the heads up. I'll request a copy of all my results as soon as my celiac blood work results get back which I'm hoping is Monday.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I seemed to be really sensitive to all sugars for a while after going gluten-free, and couldn't even handle fruit. A few months in, I am improving but still can't handle anything with refined sugars. The body does weird stuff!!

Hope you carry on working it out :)

JediMindTricks Newbie
JediMindTricks
Posted
  • Author

:( I think I may have had my first glutening today. I can't be sure, I'm not even sure celiac/gi is my problem.

 

Can someone please post if they experience the same when glutened? Hopefully it will ease my mind. I had corned beef hash which was cooked in a pan which my housemate cooks pasta in. The pan was washed well and I did eat some yesterday with no effect but today I finished off what was left and scraped it from the pan.

 

Immediately after eating I had heartburn followed by a more serious pain in my chest which lasted a few minutes, then I had to lay down, after an hour I felt okay. About 6 hours later I went to the shop and experienced the worst anxiety possible without having a panic attack. Now that I've got home, I've got a mild headache and just feel weird.

JediMindTricks Newbie
JediMindTricks
Posted
  • Author

Okay, It's been 3 hours and now I feel really depressed and I just had a poo and my housemate said it smells like beer. I haven't drunk any alcohol for weeks. Any Ideas on this? 

JediMindTricks Newbie
JediMindTricks
Posted
  • Author

Well, I woke up this morning from a horrible nightmare and my mouth was very dry/sticky, my tongue was covered in a white coating and I felt so ill I went to the hospital. The doctor prescribed Nystatin for yeast infection. I'm now thinking that what I experienced in week 2 and 3 was a Candida die off and not Hypoglycemia. It would explain why I felt better after eating more fruit and fruit juice. I felt okay on week 4 and then I think I had a massive increase of yeast from all the sugar I added to my diet.

 

Any ideas why this happened? Is it possible that I've had a yeast infection for the last 12 years and not celiac? Is this common for people new to a gluten free diet or maybe a weakened immune system?

 

Any help and/or ideas would be great.

JMT.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,189
    • Most Online (within 30 mins)
      7,748
    Eric bell
    Newest Member
    Eric bell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...