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Ear Problems? Dizziness?


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PicturePerfect Explorer

Has anyone had any ear problems or dizziness? Or ear problems that caused dizziness???? Mid-June last year, I had a horrible "dizzy attack." It went on for about 5 days or so and was constant. It calmed down the next few days, but kicked up again after I went on a plane.

The dizziness is STILL there, after more than a year, and gets worse when I swim, go in high altitudes, or fly in an airplane. I almost think I always have it, but my body is just so used to it, it has adapted.

I went to many doctors, and one doctor thought that I had less water in one ear, or something like that. The only problem is, is that he didn't do anything about it. When my regular doctor found out that I had Celiac, he said that dizziness may be a symptom. But, it isn't that much better.

Ooh, and another symptom is that I also have head rushes. Like when I stand up, even if its really slow, I black out for a second or two.

Anyone else had problems??

Thanks,

Lisa


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nettiebeads Apprentice
Has anyone had any ear problems or dizziness? Or ear problems that caused dizziness???? Mid-June last year, I had a horrible "dizzy attack." It went on for about 5 days or so and was constant. It calmed down the next few days, but kicked up again after I went on a plane.

The dizziness is STILL there, after more than a year, and gets worse when I swim, go in high altitudes, or fly in an airplane. I almost think I always have it, but my body is just so used to it, it has adapted.

I went to many doctors, and one doctor thought that I had less water in one ear, or something like that. The only problem is, is that he didn't do anything about it. When my regular doctor found out that I had Celiac, he said that dizziness may be a symptom. But, it isn't that much better.

Ooh, and another symptom is that I also have head rushes. Like when I stand up, even if its really slow, I black out for a second or two.

Anyone else had problems??

Thanks,

Lisa

<{POST_SNAPBACK}>

well, yes and no. I think you may have more than one problem. My head was congested all summer-could even feel the water sloshing around in my eustatian tubes and I don't swim! Took otc decongestants and that helped some. But it wasn't until I realized that I had been giving myself a very low level of gluten every day that my ears cleared up. I had been eating a cereal sweetened with malt (I feel so stupid for that) but cut it out two weeks ago and the congestion in my ears cleared up. And the head rushes are a medical condition related to blood pressure. I don't remember the name of it, but it can be treated. Please see your gp and mention the head rushes to him/her. It isn't uncommon.

jenvan Collaborator

perhaps you are having some vertigo issues. i had those for a while after having a middle ear infection. my mom has off and on chronic vertigo issues. the drs told her there isn't much they can do for it. she takes antrovert when she has an attack...

  • 4 weeks later...
valniles Newbie

There are a lot of things that can cause vertigo. The best thing to do is go to an ear, nose and throat specialist to be tested. Vertigo is a horrible condition to have. I have suffered from it off and on for over 25 years. You can get on line and just type in vertigo and learn a lot about it and the different things that can cause it. There are some options that include medication and sometimes a soft cervical collar. Again, go to a specialist, not your regular MD. I am NEVER without medication that helps because my vertigo attacks can happen at any time. Flying and swimming can make it happen and swimming can be dangerous because your body doesn't know what direction is up if you are in full verigo. Good luck.

Felidae Enthusiast

Last year there was a virus going around where I live that caused dizzy symptoms.

bluelotus Contributor

Vertigo and dizziness may also be a silent migrane. Whatever the cause, if you have celiac disease, dizziness is a symptom as you well know. I have suffered from it too on occasion, mostly when sitting (at computer, watching tv, eating dinner, etc), though it happened once while driving, which was very scary. Although gluten free, I have been glutened unintentionally and repeatedly for months, so that may explain why this dizziness isn't gone for me yet. Don't know if it ever goes away after being gluten-free......

  • 2 weeks later...
PicturePerfect Explorer
Vertigo and dizziness may also be a silent migrane. Whatever the cause, if you have celiac disease, dizziness is a symptom as you well know. I have suffered from it too on occasion, mostly when sitting (at computer, watching tv, eating dinner, etc), though it happened once while driving, which was very scary. Although gluten free, I have been glutened unintentionally and repeatedly for months, so that may explain why this dizziness isn't gone for me yet. Don't know if it ever goes away after being gluten-free......

That is exactly how it is for me.

I recently had an EEG done, but that turned out negative. My mom was diagnosed with MS just a few days ago because of dizziness. She says that I would be too young to have it though, so I don't know what to think is causing it.

Lisa


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stef-the-kicking-cuty Enthusiast

I also had severe dizziness the last years before being diagnosed with celiac. After going glutenfree it took about 6 month. I'm completely free of any dizziness whatsoever today. So I think, if it's caused by celiac, that it can get better and even disappear with time.

Hugs, Stef

Claire Collaborator

Are you gluten free? In addition to ENT specialist you might see a neurologist. Some dizziness can be traced to the ears - some to the brain. Cover all the bases.

By all means get the gluten out. Try Bonine for the dizziness. A whole pill may not be necessary - less is better because it may make you sleepy.

I don't know how old you are but MS usually strikes late twenties and onward to about forty. Obviously there is leeway either side of those ages but that is the general rule.

Cover all the bases. Claire

tarnalberry Community Regular
Vertigo and dizziness may also be a silent migrane. Whatever the cause, if you have celiac disease, dizziness is a symptom as you well know. I have suffered from it too on occasion, mostly when sitting (at computer, watching tv, eating dinner, etc), though it happened once while driving, which was very scary. Although gluten free, I have been glutened unintentionally and repeatedly for months, so that may explain why this dizziness isn't gone for me yet. Don't know if it ever goes away after being gluten-free......

The dizziness associated with my migraines is the main thing that makes it so disruptive in my life. Driving is simply not an option when you're that disoriented!

I hope an ENT can help you find out what the problem is, lisa.

darlindeb25 Collaborator

All gave you very good advice--I do know that low blood pressure can cause dizziness. Have you checked everything you use--you may be getting a minimal amount of gluten--vitamins, shampoos, lotions, soaps, a daily med you may be taking??????????????? I get dizzy when standing too close to someone and I look up to them--my sweetie always keeps and arm around me to support me cause I always tip--but that is usually the only time I am like that. Deb

kimjoy24 Apprentice
Has anyone had any ear problems or dizziness? Or ear problems that caused dizziness???? Mid-June last year, I had a horrible "dizzy attack." It went on for about 5 days or so and was constant. It calmed down the next few days, but kicked up again after I went on a plane.

The dizziness is STILL there, after more than a year, and gets worse when I swim, go in high altitudes, or fly in an airplane. I almost think I always have it, but my body is just so used to it, it has adapted.

I went to many doctors, and one doctor thought that I had less water in one ear, or something like that. The only problem is, is that he didn't do anything about it. When my regular doctor found out that I had Celiac, he said that dizziness may be a symptom. But, it isn't that much better.

Ooh, and another symptom is that I also have head rushes. Like when I stand up, even if its really slow, I black out for a second or two.

Anyone else had problems??

Thanks,

Lisa

I started suffering from vertigo over a year ago. My issues are primarily when looking up, though I have had the head rushes, a "giddy" feeling, especially when walking in stores with lots of aisles. I don't know if mine is gluten-related or not, as the symptoms have cropped back up again in the past couple of months, even after being on a strict gluten-free diet. My symptoms are mainly at my desk at work, where I sit in front of a computer all day. It is a horrible feeling. I went to the doc (a neurologist) and they said there's not a whole lot they can do about it. My MRI came back fine. My primary care physician thought my ears had too much earwax, so they flushed them, then that I had low blood pressure, so I was put on a high-salt diet which made me very ill. I went to a physical therapist who gave me special exercises to do. Things slowly got better, but now it's back. I hate it when people write things off as totally stress related, but I don't doubt that some of my symptoms may have been aggravated by a lot of stress.

fritzicurls Rookie

I too have recurrent vertigo. I think mine is related to and inner ear infection related to yeast infection. I am hoping to get them both cleared up. In the meantime I went to an ENT guy who showed me two exercises - one to take care of the veritgo episode immediately (it works!) and one for long term help. Vertigo is caused by little calcium balls in the inner ear that get in the wrong place and roll around and disturb the fine little hairs in the inner ear that help maintain balance. You can find these exercises on the internet (I did) - the one to take care of the immediate episode is called the Epply-Applington Movement and the one for the long term has the word Brandt in it - sorry I can't remember the name better than that. I found them cruising the vertigo sites. Actually the doctor did the Epply Applington movement on me in his office and charged me $175 for it. I found it on the internet for free - hahahaha. It only takes about three minutes and it works. Sometimes you have to do it twice. Ativan also takes the symptoms away but you have to be careful with it because it is so addictive. The second exercise helps keep episodes at bay. Good luck.

fritzicurls

PicturePerfect Explorer

Thank you so much for all of your help, everyone!!

Lets see. I have gone to a neurologist- she was the one who prescribed the EEG. I have an appointment this Thursday with her, so we will see what happens.

I will check all the labels on everything again, just to be sure. Plus, it is hard (as it is for most of you) to be gluten-free in a gluten household. My mom might go gluten-free too, though, because Celiac may be what is causing her MS.

I don't know what else it would be other than Celiac. None of my symptoms are described in any illnesses that I know of. I don't have vertigo - all the doctors ruled that out. I am pretty sure that it is my head that is the problem, if it isn't Celiac. Hmmm... :unsure:

Again, thanks for all of your help!

Lisa

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