Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Dx'd

JLS81

By JLS81
in Coping with Celiac Disease

Recommended Posts

JLS81 Newbie
JLS81
Posted

hello all. have been dealing with symptoms for years now and finally got news that I have the big C. glad I found this forum and hope to discuss further with all the wonderful members here on this forum.

 

Jared

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Renegade Contributor
Renegade
Posted

Welcome aboard.

JLS81 Newbie
JLS81
Posted
  • Author

thank you. look fwd to peeking around here for some much needed answers.

 

notme Experienced
notme
Posted

welcome to the best club you never wanted to join  :blink: :)

Adalaide Mentor
Adalaide
Posted

Hi. Welcome and stuff. Poke around, and get used to the lay of the land. Learn the ropes. Pull up a chair and get comfy because you'll be part of our club a while. Like... forever. Mwahahahaha! 

 

Poke your nose over here for some good beginner info. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

Poke your nose over here if you ever don't know what to eat. https://www.celiac.com/forums/topic/75238-the-whats-for-dinner-tonight-chat/page-441#entry881706 You'll find another thread about lunch if you poke over there too, and can generally find lots of talk about food. All in all, what you'll find is proof that we want for nothing and suffer not at all in the food department. 

 

You can rant and be pissy and all that, but know that mostly what you got was hope for the future. And us.  :D

JLS81 Newbie
JLS81
Posted
  • Author

thank you all for the warm welcome. hate that I had to join but love that I found you all. I have a question. recently had the upper and lower scope and results came back for celiac. diarrhea for the last couple years, muscle fatigue ( cant stand for longer than 10 min ) BUT I only get diarrhea at night time.... honestly one once or twice during the day in the last three years ??? does this make and sense.  thanks in advance

 

Jared

bartfull Rising Star
bartfull
Posted

There are about 300 different symptoms of celaic and even the same symptom can vary from person to person. What's cool is that your problem should start clearing up after a while, AND you will most likely notice other things you didn't even know were symptoms clearing up. For example, I had no idea that my insomnia was caused by celiac, but it was.

 

So welcome to the club, ask lots of questions, and as Addy said, feel free to rant or cry or kick something. Just know that it DOES get better, it DOES get easier, and you've got lots of friends here to help you along. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Welcome Jared!

Glad you found us...it can really help the transition to your gluten-free life progress much more quickly.

Do read the "Newbie" thread and let us know if you have questions :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748
    lamps
    Newest Member
    lamps
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.