Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Suffered Or Suffer From Asthma/shortness Of Breathe?

Renegade

By Renegade
in Coping with Celiac Disease

Recommended Posts

Renegade Contributor
Renegade
Posted

Of all all the symptoms I get, this is the one that annoy me the most, constipation is getting better, digestion too,energy as well but asthma is just being evil. I used to run often and do a lot of exercise 2-3 a week and this was never a major problem, I always felt a little heart rate rising of some short and a lack of breathe but as the last few months when everything got worse, asthma literally settle in.

 

I am always trying to catch my breathe and I know this inst panic attack or other things because I had the asthma worsen when I would take coffee,weed or get panic attack but this is just something that is constantly there. It seems to never go away, it honestly feel like i am constantly going to die from not breathing. I was never diagnosed with it and never took any medication for it, and as of right now, I am completely free of weed,coffee,melatonin and any medication.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 69
  • Created
  • Last Reply
flowerqueen Community Regular
flowerqueen
Posted

Of all all the symptoms I get, this is the one that annoy me the most, constipation is getting better, digestion too,energy as well but asthma is just being evil. I used to run often and do a lot of exercise 2-3 a week and this was never a major problem, I always felt a little heart rate rising of some short and a lack of breathe but as the last few months when everything got worse, asthma literally settle in.

 

I am always trying to catch my breathe and I know this inst panic attack or other things because I had the asthma worsen when I would take coffee,weed or get panic attack but this is just something that is constantly there. It seems to never go away, it honestly feel like i am constantly going to die from not breathing. I was never diagnosed with it and never took any medication for it, and as of right now, I am completely free of weed,coffee,melatonin and any medication.

 

 

I don't suffer with asthma, thankfully, but since before I was diagnosed with celiac disease I noticed that I regularly take in an involuntary breath.  It's a bit like when a child has been crying, and they take in staggered breath while trying to compose themselves.

I originally put it down to very low ferritin levels - which was noticed in blood tests when I was suffering from very weak muscles but my full blood count recently, seem normal - since being totally gluten free.

Do these symptoms sound familiar too you?

Renegade Contributor
Renegade
Posted
  • Author

I don't suffer with asthma, thankfully, but since before I was diagnosed with celiac disease I noticed that I regularly take in an involuntary breath.  It's a bit like when a child has been crying, and they take in staggered breath while trying to compose themselves.

I originally put it down to very low ferritin levels - which was noticed in blood tests when I was suffering from very weak muscles but my full blood count recently, seem normal - since being totally gluten free.

Do these symptoms sound familiar too you?

Not sure what you mean by the baby crying analogy but as far as weak muscle then yes, even walking is difficult now and I haven't exercise in 2 weeks because I feel too weak, it actually worsen since I went gluten free, Initially it didn't.

GottaSki Mentor
GottaSki
Posted

Good Morning.

 

My son has had lung issues for over ten years...first we thought it was damage from Forest Fires, then Asthma, but what it turned out to be was GERD.  At night he was asperating acid into his lungs which made all sorts of trouble.  For years we tried different gerd medications to no avail.  About a year gluten-free his constant "smoker's cough" became much less severe.

 

I have lung issues when I get overheated from exercise or run into a couple of my intolerances, It acts like asthma and I do need to carry an inhaler.

 

Do you have a cough with your lung issue?  If so, consider taking Betaine HCl.  Most doctors prescribe acid reducers for GERD when lack of acid is actually the issue so reducing acid further does nothing.  Taking HCl after each meal will provide the acid necessary to properly digest food.  it is suggested that it is taken one hour after each meal...but we were forgetting too often once busy after meals so we changed to right after meals.  Son improved further and hasn't used HCl in a while and lung issues are more rare finally.

 

Do you have an inhaler - strangely (or not) abuterol inhalers do not work for my son or myself - likely because we do not have Asthma, but other lung issue. 

 

Talk to your doctor -- if you have developed Asthma or another lung issue -- it is nothing to mess around with.

 

Take care :)

 

PS...forgot to mention the getting worse gluten-free.  Sometimes with healing other inlolerances are revealed -- or are temporary -- this can also cause lung issues.

Renegade Contributor
Renegade
Posted
  • Author

I don't have a lung issue or cough, I do occasionally seem to have extra mucus in my throat that I spit out, although quite rare lately but about but a year ago I would spit mucus daily. It also feel like I am about to get a cold every now and then but then it goes away.

GottaSki Mentor
GottaSki
Posted

I guess I misunderstood your post. Asthma and shortness of breath seemed like a lung issue to me.

Have a good day :)

kareng Grand Master
kareng
Posted

I guess I misunderstood your post. Asthma and shortness of breath seemed like a lung issue to me.

Have a good day :)

 

 

Asthma seemed like a lung issue to me, too.  At least it was 30 years ago when I studied it in school.  :D

 

 

SOB can be caused by other things like heart disease or severe anemia and have nothing to do with the lungs.  The heart isn't moving the oxygen around properly or the blood can't store enough oxygen and the body wants more.  The body thinks the solution is to breathe more.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Renegade Contributor
Renegade
Posted
  • Author

^_^ now I think I'm about to get a panic attack.

kareng Grand Master
kareng
Posted

^_^ now I think I'm about to get a panic attack.

 

Have you been checked for anemia?  It should resolve but can take a few months gluten-free if its severe.

Renegade Contributor
Renegade
Posted
  • Author

Have you been checked for anemia?  It should resolve but can take a few months gluten-free if its severe.

No i haven't been tested for crap as I need to work to pay bills and cant afford to take a day off, but I' fairly positive I have this as walking has become very difficult.

kareng Grand Master
kareng
Posted

No i haven't been tested for crap as I need to work to pay bills and cant afford to take a day off.

 

 

Looks like I'm not helping here.  Good luck to you.

HumanDecency Contributor
HumanDecency
Posted

I have the same issue. I believe it's a combination of my acid relux and sinus infections. We all have different symptoms. Karen could be on to something with the low levels. I have low iron and low vitamin D. My doc put me on lanoprazole for the GERD. It helps, but not all the way. So I'm taking further steps to see if alternatives will subside the problem. I know it's rough and money can be tight but do try to find a way to take care of yourself... otherwise things might get worse. 

 

Wish you the best of luck.

 

 

 

No i haven't been tested for crap as I need to work to pay bills and cant afford to take a day off, but I' fairly positive I have this as walking has become very difficult.

ravenwoodglass Mentor
ravenwoodglass
Posted

No i haven't been tested for crap as I need to work to pay bills and cant afford to take a day off, but I' fairly positive I have this as walking has become very difficult.

If your shortness of breath is so bad that you have a hard time walking you need to be seen by a doctor to make sure nothing serious is going on. If there is no Urgent Care center near you go to the ER when the symptoms are active.

Renegade Contributor
Renegade
Posted
  • Author

Well I do plan to get che

 

If your shortness of breath is so bad that you have a hard time walking you need to be seen by a doctor to make sure nothing serious is going on. If there is no Urgent Care center near you go to the ER when the symptoms are active.

It's not the shortness of breath that makes it hard to walk, just my legs feeling very tired.

ravenwoodglass Mentor
ravenwoodglass
Posted

Well I do plan to get che

 

It's not the shortness of breath that makes it hard to walk, just my legs feeling very tired.

That combo could be a sign of heart problems or many other things. It could just be that you haven't healed enough yet from the celiac damage. If things should get worse do get to a doctor.

bartfull Rising Star
bartfull
Posted

It doesn't sound like asthma to me. It sounds more like emphysema. Not trying to scare you, but you really should get it checked.

Renegade Contributor
Renegade
Posted
  • Author

It doesn't sound like asthma to me. It sounds more like emphysema. Not trying to scare you, but you really should get it checked.

Um very nice, you succeeded in getting me scared as s$#& now, apparently if that's what you have you will likely die from it. Guess going gluten-free won't do much for it. I'll definitely get it checked.

 

It something I have honestly felt all my life though, but before it would happen very rarely, but as gluten symptoms showed up, it felt all the blockage from my guts was getting up to my heart.

 

I still feel it could be gluten linked as both seem to have worsen about the same.

bartfull Rising Star
bartfull
Posted

If you catch it in time you will probably live long enough to die from something else. ;)

kareng Grand Master
kareng
Posted

Um very nice, you succeeded in getting me scared as s$#& now, apparently if that's what you have you will likely die from it. Guess going gluten-free won't do much for it. I'll definitely get it checked.

Well...even tho you started asking about asthma and some minor shortness of breath feeling and tiredness....when people tried to explain some common reasons for that, you knew it wasn't any of those things.

Too bad it's not severe anemia caused by Celiac. That is easily curable. Cured those issues for me.

Renegade Contributor
Renegade
Posted
  • Author

Well...even tho you started asking about asthma and some minor shortness of breath feeling and tiredness....when people tried to explain some common reasons for that, you knew it wasn't any of those things.

Too bad it's not severe anemia caused by Celiac. That is easily curable. Cured those issues for me.

Uh? i didn't know what? Why do people always assume when I ask a questions that I already have my own answer and just ask to ask.

answerseeker Enthusiast
answerseeker
Posted

I have asthma, severe and persistent, diagnosed by a PFT(lung function test). Have you had one of those done? I have to take Advair everyday 2/day or I will have an attack. Still I've been hospitalized twice in the last year and a half

 

Asthma and SOB are 2 different things. As others have mention you can get SOB from GERD or anxiety or anemia or other things. Maybe you should see a pulmonologist to see if it is indeed asthma. Like I said if it's asthma you will need to be on a controller medicine daily, it doesn't go away

Renegade Contributor
Renegade
Posted
  • Author

I will call tomorrow for an appointment with my doctor, hopefully next week and will let you know what happen.

answerseeker Enthusiast
answerseeker
Posted

hopefully they will give you the PFT. Mine went undiagnosed for 2 years and the docs kept diagnosing upper respiratory infections. After 4 rounds of anitbiotics I was finally referred to a pulmonary specialist and by that time my lung volume was hyperinflated from the air trapped in them that my diaphram is now flattened. After 1 year on Advair it's starting to improve and it's reversable. The dr. that diagnosed me said I had the lungs of a 65 yr old woman. I was then diagnosed with acute adult onset asthma, which now my GI believes has been brought on by the gluten intolerance.

 

are you wheezing?

kareng Grand Master
kareng
Posted

Why do people always assume when I ask a questions that I already have my own answer and just ask to ask.

Because you disagreed or had a sarcastic answer for every suggestion you were given.

answerseeker Enthusiast
answerseeker
Posted

 

 strangely (or not) abuterol inhalers do not work for my son or myself - likely because we do not have Asthma, but other lung issue. 

agreed. this is why a PFT is best for diagnosis. they test before the albuterol and then you take 2 puffs of albuteral, wait 15min, and then they test again. Asthma will improve on the PFT after the albuteral but GERD or something else will not. It will also show obstructive patterns in the lungs (asthma), GERD wouldn't show an obstructive pattern. The best diagnostic tool is this test

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.