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Renegade

Anyone Suffered Or Suffer From Asthma/shortness Of Breathe?

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I have asthma, severe and persistent, diagnosed by a PFT(lung function test). Have you had one of those done? I have to take Advair everyday 2/day or I will have an attack. Still I've been hospitalized twice in the last year and a half

 

Asthma and SOB are 2 different things. As others have mention you can get SOB from GERD or anxiety or anemia or other things. Maybe you should see a pulmonologist to see if it is indeed asthma. Like I said if it's asthma you will need to be on a controller medicine daily, it doesn't go away

Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

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agreed. this is why a PFT is best for diagnosis. they test before the albuterol and then you take 2 puffs of albuteral, wait 15min, and then they test again. Asthma will improve on the PFT after the albuteral but GERD or something else will not. It will also show obstructive patterns in the lungs (asthma), GERD wouldn't show an obstructive pattern. The best diagnostic tool is this test

 

Yep I had this test to rule out Asthma for my worsening lung issues.


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

I sure hope so because it's been a thorn in my side! 2 hospitalizations in 1 yr and on prednisone 3 times has taken a toll on my body. I've read that asthma improves on gluten free diet it just hasn't been long enough for me yet


Lori age 40

 

GERD diagnosed Feb 2012

acute adult onset asthma diagnosed April 2012

celiac diagnosis July 2013

osteopenia Sept 2013

Dysautonomia: POTS (autonomic nervous system dysfunction)

DQ2 Gene

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Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

 

I am currently reading a book entitle "Asthma as an Inflammatory Disease" simply because I ordered the wrong volume of three regarding Inflammatory Disease...and thought why not.

 

When it comes to Inflammation in the body our doctors are as woefully undereducated as they are about Functional Digestive Disorders....while I'm waiting for them to catch up -- I just keep reading ;)


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Yep I had this test to rule out Asthma for my worsening lung issues.

do you have GERD too? I have GERD in addition to everything else which complicates it. Can't wait to start feeling healthy again!


Lori age 40

 

GERD diagnosed Feb 2012

acute adult onset asthma diagnosed April 2012

celiac diagnosis July 2013

osteopenia Sept 2013

Dysautonomia: POTS (autonomic nervous system dysfunction)

DQ2 Gene

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do you have GERD too? I have GERD in addition to everything else which complicates it. Can't wait to start feeling healthy again!

 

No GERD, but son has had a variation of GERD for about 10 years.

 

Listen to Gemini....it is all about the inflammation in the body....amazing how many things are finally improving for me now that I am improving in that respect.  Sadly it did take quite a while....those of us with inflammation and other AI symptoms often take a bit longer to see improvement.

 

Hang in there :)

 

Oh...btw...I use Advair when my lungs have issue...either from heat, excercise or food intolerance I end up with some very serious breathing issues and anaphylaxis....Advair is not meant to be used as a rescue inhaler....yet it is the one that works in my case...I do not take it daily only as needed...file this under three more doctors stumped as to why it works...ER, Allergy and Primary :blink:


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Because you disagreed or had a sarcastic answer for every suggestion you were given.

I fail to see where I used sarcasm, but anyways, I appreciate everyone concern for their tips and enlightenment on this issue.

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Oh...btw...I use Advair when my lungs have issue...either from heat, excercise or food intolerance I end up with some very serious breathing issues and anaphylaxis....Advair is not meant to be used as a rescue inhaler....yet it is the one that works in my case...I do not take it daily only as needed...file this under three more doctors stumped as to why it works...ER, Allergy and Primary :blink:

that is weird! at least you don't have to spend the $30 every month to refill it. I have an asthma app on Thursday so we wil see how well it's doing. I also have several atopic allergies pollen, dust, mold, etc. and they trigger my asthma. Are these shown to improve with eliminating gluten?


Lori age 40

 

GERD diagnosed Feb 2012

acute adult onset asthma diagnosed April 2012

celiac diagnosis July 2013

osteopenia Sept 2013

Dysautonomia: POTS (autonomic nervous system dysfunction)

DQ2 Gene

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do you have GERD too? I have GERD in addition to everything else which complicates it. Can't wait to start feeling healthy again!

 

I had GERD, I had shortness of breath, anemia (three types--iron def, B-12, folate) I had adult onset asthma --given an inhaler (my brother has had asthma since birth and mine was not like his) and I had weakness in my legs, etc etc. You name it, I had it. Not kidding.

 

Here's the thing, everyone----All of this can very well resolve OFF GLUTEN.

 

Inflammation causes all of these symptoms.You are inflamed right now,

 

None of you are on the GFdiet very long, so your symptoms are not yet resolved. Those of us who are gluten-free longer--Gemini, Bartful, Karen. GottaSki-, Raven--we're all telling you to be patient...Healing happens in time.

 

PS to Renegade. you mention coughing up stuff.? well, you also mention smoking pot and after you stop--even for a while--you're gonna be coughing up crap and be short of breath.

 

Just try to be patient. Healing takes a LONG TIME. MONTHS.

Going gluten-free is not a magic bullet. It takes time, patience and recovery.

 

Did I mention patience and time? ;)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I had GERD, I had shortness of breath, anemia (three types--iron def, B-12, folate) I had adult onset asthma --given an inhaler (my brother has had asthma since birth and mine was not like his) and I had weakness in my legs, etc etc. You name it, I had it. Not kidding.

 

Here's the thing, everyone----All of this can very well resolve OFF GLUTEN.

 

Inflammation causes all of these symptoms.You are inflamed right now,

 

None of you are on the GFdiet very long, so your symptoms are not yet resolved. Those of us who are gluten-free longer--Gemini, Bartful, Karen. GottaSki-, Raven--we're all telling you to be patient...Healing happens in time.

 

PS to Renegade. you mention coughing up stuff.? well, you also mention smoking pot and after you stop--even for a while--you're gonna be coughing up crap and be short of breath.

 

Just try to be patient. Healing takes a LONG TIME. MONTHS.

Going gluten-free is not a magic bullet. It takes time, patience and recovery.

 

Did I mention patience and time? ;)

Ty that was very helpful :)

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Ty that was very helpful :)

 hang in there, kid.

 

The gluten-free diet is not a quick fix, I'm afraid. It took me 15 months post-Dx to turn a corner.

 

I am NOT the norm, however. I was very ill at diagnosis.

 

Most people take @ 4- 6 months to see symptom resolution.

 

One day at a time. That's all you can do and that's the honest truth.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I have had a problem with shortness of breath.  Just recently it has been relieved.  I am about 18 months gluten free and had just quit eating all foods I had intolerances to and begun digestive enzymes and adrenal support herbs!  One day I suddenly noticed I breathed deeply!  This is exciting!

 

All the same to you,

D

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Actually, many people who were diagnosed asthmatics have reported that their breathing problems all went away after some time on the gluten-free diet.  They don't need inhalers or meds at all.

I think there are many whose inflammation from undiagnosed Celiac shows up as breathing problems.  It's all about inflammation.  Get rid of the inflammation and the reaction to it goes away.  You may be surprised down the road to find that your breathing problems improve after following the diet for a few years.  I never believe doctors when they say certain things never go away.  If it's something caused by massive inflammation, you can never say never.  ;)

Yea I am one of them. Haven't needed my Singulair or inhalor now in years.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Yea I am one of them. Haven't needed my Singulair or inhalor now in years.

I wish my sister would listen to me.  She has Sjogren's and asthma...really bad asthma.  I used to smoke and I can outclimb her on a flight of stairs. She needs an inhalor before she gets to the top. She is not overweight either.  However, she works in a hospital and goes with the AMA and does not think outside the box...like they practice.  She thinks going gluten-free is the worst thing that can happen to you  and this from a woman who had a bout with breast cancer.  :blink:

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I wish my sister would listen to me.  She has Sjogren's and asthma...really bad asthma.  I used to smoke and I can outclimb her on a flight of stairs. She needs an inhalor before she gets to the top. She is not overweight either.  However, she works in a hospital and goes with the AMA and does not think outside the box...like they practice.  She thinks going gluten-free is the worst thing that can happen to you  and this from a woman who had a bout with breast cancer.  :blink:

Why the hell would she think going gluten-free would be bad?

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With the risk of sounding like a broken record :)

 

Everything you describe I suffer from. To me it sounds like anxiety. A panic attack does not have to be a full blown episode where you freak out. Very often when I get an anxiety attack I find it difficult to breathe/shortness of breath and feel weak and clumsy.

 

This is not meant as a personal attack to you Renegade but rather a general observation of cannabis users. It always amazes me when someone complains about anxiety problems when smoking cannabis then there is a 100 posts following from pro-cannabis smokers suggesting it's the strain or the cannabis is cut with flour or something (Cannabis forums are the worst).

 

You have already said that you get panic attacks when you smoke weed; weed affects the chemicals in your brain. Smoking also cuts the amount of oxygen supplied to your brain.

 

We already know that celiac can have neurological effects on the brain and it makes sense that if there is an imbalance caused by malabsorption of nutrients or whatever then taking a drug that affects the brain is going to cause a problem.

 

Whether cannabis or celiac is the problem, I wouldn't brush this off and say it's not anxiety.

 

Hope you find the answer. All the best,

JMT 

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Why the hell would she think going gluten-free would be bad?

 

The same reason any of our relatives think it---that giving up their bagels, breads, pizzas and donuts is a fate worse than death and more horrible than the constant pain they suffer from their various AI diseases, GERD, "IBS" diabetes....etc.

 

They would rather symptom- treat, eat their gluteny foods, remain obese and out of breath than give them up.

They think a gluten-free diet is like being condemned to a living hell on earth.

They have their collective heads in the sand.

 

We call them "the unenlightened" :D


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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The same reason any of our relatives think it---that giving up their bagels, breads, pizzas and donuts is a fate worse than death and more horrible than the constant pain they suffer from their various AI diseases, GERD, "IBS" diabetes....etc.

 

They would rather symptom- treat, eat their gluteny foods, remain obese and out of breath than give them up.

They think a gluten-free diet is like being condemned to a living hell on earth.

They have their collective heads in the sand.

 

We call them "the unenlightened" :D

I am not healthy yet but I can feel that my body is healing, everything is getting better yes even my breathe, but it's like a rollerocaster, you know? Of course you know lol.

 

I keep getting dreams about foods and knowing that I'll never be able to go to most restaurents or go eat at a feast and have those very yummy chinesse ramens but I don't really mind , if it means I'll get my old self back and hopefully a new better self that I never though I would have then by all means I'm willing to sacrifice it all.

 

Funny how all my life I tried to be as healthy as possible, exercise and rarely eat bad food and to end up in just 3 months in the worst health of my life.

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Kiddo,

You can live a "normal" life....it's just the "new norm".

I eat out now. I go to weddings, etc. I even dine at friends' homes--they learned about CC and they cook for me. I watch them

and I help and all's well. Life is good.

 

It's still early in your recovery. Hang in there. Soon, you will see what we are saying.

I promise.

 

It will not feel like you have sacrificed a thing, except crappy health.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Why the hell would she think going gluten-free would be bad?

Adding to what IrishHeart already said so well.......my sister does not like to cook. She makes mashed potatoes from a box.  :o  So....preparing food to the extent that I do, all those fresh veggies and fruits that need cutting up and cleaning and steaming.....it's just too much work for her.  The whole thing about cc boggles her mind.  She was the very first person to give me the dreaded eye roll when I first ordered out at a restaurant with her after diagnosis.  I was explaining to the waitstaff about the clean grill that was needed and she just did it...I could have slapped her silly.  To put it bluntly...she eats a crap diet and doesn't want to change.

 

I should add that my sister has a very high IQ and is exceedingly book smart. But many times, people with high IQ's have a serious lack of common sense!  :lol:

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 But many times, people with high IQ's have a serious lack of common sense!  :lol:

 

 

ahem! I will add, just to clarify what my dear girl Gemini has said.

 

 

....people with high IQs ...who are  also "gluten headed" and not yet, following a gluten-free diet....lack common sense.

 

"cuz I have lots o'common sense: and my IQ is "purty good"

 

:)

 

and I have met many  "academians"..with big IQs who were about as street smart as a new-born babe. :lol:


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Not sure what you mean by the baby crying analogy but as far as weak muscle then yes, even walking is difficult now and I haven't exercise in 2 weeks because I feel too weak, it actually worsen since I went gluten free, Initially it didn't.

I can't think of any other way of describing the shortness of breath, but the weak muscle problem is something I had, and I was walking with a stick, but couldn't walk far. At the moment I have muscle weakness again and this time am wondering weather it's magnesium or vitamin B deficiency. (I have other medical conditions) at the time of diagnosis it was the iron that was the problem - I seem to go from one thing to another, as far as deficiencies go.

In the UK we get our blood tests on NHS but realise it's not the same in other countries. I don't know what else to suggest other than get vitamin and mineral levels checked.


Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.

Despite all, remaining positive!

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There are a minority of people that have celiac disease whom do not get better on gluten free alone and need help from steroids. So take care. In the meantime, do you use a food journal, in case there is anything you may have missed?


Under active thyroid; diabetic; hiatus hernia; acid reflux; dairy intolerant; arthritis; sciatica due to spine degeneration; diagnosed with coeliac disease November 2011; fibromyalgia; allergic to Thyme & MSG and alcohol. Allergic to TCP antiseptic, and plasters. Taking medication for severe muscle spasms in upper back.

Despite all, remaining positive!

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There are a minority of people that have celiac disease whom do not get better on gluten free alone and need help from steroids. So take care. In the meantime, do you use a food journal, in case there is anything you may have missed?

 

No, I don't need to, I always eat the same things and I remember everything I eat.

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