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Endo/colonoscopy Done


freeme808

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freeme808 Apprentice

So hallelujah, I've been gluten-free since Friday after my procedures! :) Other than developing a nasty cold that same day, I'm slowly starting to feel better. I already lost 7 lbs of bloat since then-finally looking less "pregnant" and finally starting to experience a little more mental clarity too. 

 

I'm still waiting for my doc to call me back with the biopsy results, which he said I would have heard from him by now...I just figured they are busy and Im not in too much of a rush here...after all- I already went gluten-free. 

 

The only thing he told me on the day of, was that everything seemed to look good- no evidence of Crohn's or Ulcerative Colitis, etc. He also said he didn't see any damage, but we'll wait for the biopsy to come back as far as Celiac goes.

 

My report from that day just says: No gross evidence for inflammatory bowel disease or celiac sprue.

 

I've read a few other posts, where the doc says they can't see any "visual" damage etc, and then the biopsy comes back and there's damage. Anyone else have the same scenario happen to them?

 

 


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BelleVie Enthusiast

From what I understand, celiac damage typically is not visible to the naked eye, so it's quite possible that everything looks dandy at first glance, but could actually be amiss. I'm so glad you don't have Crohn's or any other serious bowel problems! Let us know your results! 

freeme808 Apprentice

Hi Belle, thank you...and me too! Im glad there doesn't seem to be anything else going on. Total peace of mind after months of worry. I'll post the biopsy results as soon as I get them- I'm very curious. The doc also suggested the Fodmop diet to see if maybe those foods are causing problems for me if it's not Celiac. For now though, I'm just going to stick with what I'm doing. Very clean, wholesome food eating. If I still seem to be having problems down the line, then I'll try Fodmop elimination diet. 

0range Apprentice

Hi Belle, thank you...and me too! Im glad there doesn't seem to be anything else going on. Total peace of mind after months of worry. I'll post the biopsy results as soon as I get them- I'm very curious. The doc also suggested the Fodmop diet to see if maybe those foods are causing problems for me if it's not Celiac. For now though, I'm just going to stick with what I'm doing. Very clean, wholesome food eating. If I still seem to be having problems down the line, then I'll try Fodmop elimination diet. 

 

Let me know if you need any help with the Low FODMAP diet at all! I have some recipes and advice I can share :-)

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      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
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      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
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      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
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