Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening-Round 2...


powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular

I've been gluten free since March, and got glutened by Rice Dream a bit ago which gave me headaches, made me really tired, nauseous and bloated.  My main symptoms before going gluten free were bloating and constipation.

 

Fast forward to this week, and I'm positive I got glutened again but really can't figure out what from.  Either it was from cross contamination while visiting at my parents house or something I ate that I cannot figure out.  It started on Wednesday, and the only thing I can think of is that I had a few cookies from two new companies, Zena's Cookies and Ginny Bakes, but both are supposed to be gluten free.  

 

I was visiting family out of town this week, and as I was making my 2.5 hour drive back Wednesday, I kept yawning over and over.  I thought I was a little tired from helping my brother move the previous day, but as my drive back home continued, not only did I keep yawning but I started feeling really nauseous.  I stopped along the side of the road and just sat for a few minutes, and was just hoping I could make it back home without getting really sick in the car.  Thankfully I made it back home, but when I got upstairs I went to the bathroom and had massive D.  It was completely liquefied, and that NEVER happens.  Thursday and Friday I continued to feel nauseous and my stool was still loose, but not completely liquid.  My stomach was also quite rumbly, and I'm still a bit bloated and my intestine area is really tender.

 

I didn't put two and two together until last night because I thought maybe I got food poisoning, but then I started getting bone pain last evening.  I had some times of intense bone pain before gluten-free.  

 

So I've determined I got glutened somehow, but I'm not quite sure how it happened.  I've read that symptoms can change after going gluten free.  I can't tell you the last time I had liquefied D because I always had C.  Maybe because Rice Dream was a liquid it didn't give me as intense a reaction, but I think feeling nauseous is an indicator that I've been glutened because I never get nauseous.  

 

It bothers me that I can't figure out what caused it, but I'll have to just let that go and hopefully the lingering effects will go away soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

My first thought would be that you got glutened while home. My second thought is that if you don't do oats, you probably shouldn't be eating the Ginny Bakes cookies, even if they aren't the ones that have oats in them. The reaction would likely be the same in either case (if you react to oats), but only you know when you started eating the cookies.

w8in4dave Community Regular

you say maby " cross contamination while visiting at my parents house or something" are you sure? Your parents may have accidentally cross contaminated something. Are they knowledgable at Gluten free cooking? If not I would be a lil worried about that. Hopefully you figure it out soon .. Good luck!! Hope you feel better! :) 

AlwaysLearning Collaborator

Sorry that you're feeling lousy. 

Those poor bacteria, getting blamed for causing food poisoning when its those darned gluten brats doing the dirty work.

I'd put those cookies on the do-not-buy list for the future, but I suppose you'll have to keep the parents.

fatjacksonthecat Rookie

I hate it when I cant figure out the source of gluten and my mom and boyfriend ( who usually do alot of the cooking) are there with there arms crossed saying "well dont look at me, I dont know where you would have gotten it, it was all gluten free" hhe.And sometimes they might just be right because Im starting to realize Im getting gluten like symptoms from more than just gluten like dyes and fake sweeteners. Im also pretty certain that Ive been glutoned more than once from supposed gluten free packaged foods, I dont know how exactly but packaged anything just usually doesnt agree with me.One major thing Ive noticed and that Ive heard others say is that a straight glutening will last for days, for me its about 3-4 days but  another reaction to fake dyes sweeteners or food that just doesnt agree with me for whatever reason will only last about a day.Usually I can tell a little more by how long it lasts but yea Id def be careful with packaged anything. Hope you feel better soon!

powerofpositivethinking Community Regular

thanks everyone!  I prepared everything at my parents house that I ate with one exception, cut up watermelon.  It's possible that it could have been that if the cutting board, it is a glass one, wasn't properly cleaned or if the countertop wasn't cleaned thoroughly, I got a hit from that, but honestly I think it might have been the cookies.  

 

When I had the Rice Dream, I know for sure I got a hit from that because it was the only thing I had eaten out of the ordinary that day and I felt nauseous within 1-2 hours.  I think I ate the watermelon Monday so that's what makes me skeptical about that, but I had the cookies before I made the 2.5 drive back to my house and then during the drive started to feel terrible, which makes me lean more toward the cookies.  However, Zena's cookies are made in a dedicated gluten free facility and Ginny's cookies are certified gluten free, so that's what makes me skeptical saying that it was those.  Adalaide, the oats are definitely another possibility.  

 

I'm thinking not purchasing those cookies and continuing to cut up my own fruit at my parents would be a better choice from now on...

Adalaide Mentor

I have no doubt that both cookie brands are truly gluten free. I looked at both websites and both look like they are baked in gluten free bakeries. My suspicion, especially after what you said about timing is the oats. Some of us are peachy with oats, some of us not so much. You may be a not so much kinda person. Do you know if you do oats ok or not?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powerofpositivethinking Community Regular

hmmm i'm not sure I do oats ok or not.  I ate oatmeal at breakfast all the time before going gluten free, but after reading that oats, even certified gluten free oats weren't good to have at the beginning of the diet, I just stopped eating them.  

 

Adalaide, am I understanding correctly that even if they are certified gluten-free oats, and even if the particular type of cookie didn't have oats in them, but were made on the same lines as a type that did, that could create a problem?  

 

Here are the two specific types I ate:

Open Original Shared Link

 

Open Original Shared Link

 

 

honestly I really should just go back to eating whole foods again because that's when I felt best, and it would save me money...

 

I have no doubt that both cookie brands are truly gluten free. I looked at both websites and both look like they are baked in gluten free bakeries. My suspicion, especially after what you said about timing is the oats. Some of us are peachy with oats, some of us not so much. You may be a not so much kinda person. Do you know if you do oats ok or not?

Adalaide Mentor

In the same way that people can have a problem with shared equipment and CC with gluten, the same can be true of oats, even gluten free oats. The manufacturer isn't trying to prevent CC because why should they? Everything is gluten free anyway so who cares right? You can test the oats thing pretty easily to find out by just eating a little.

powerofpositivethinking Community Regular

thanks, Adalaide.  that does make sense.  I'll give the certified gluten free oats a try in the future by themselves, but I'm in no rush to test that possibility right now.  my intestine area is still a little sore and bloated.  Everything else seems to be getting back to normal which is good because tomorrow is the first day of a new school year.  I've already got my outfit picked out that gives me some extra room in the stomach  :lol:

 

 

In the same way that people can have a problem with shared equipment and CC with gluten, the same can be true of oats, even gluten free oats. The manufacturer isn't trying to prevent CC because why should they? Everything is gluten free anyway so who cares right? You can test the oats thing pretty easily to find out by just eating a little.

w8in4dave Community Regular

Yay!! Hope you figured it out!! :) 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    davidvibezb
    Newest Member
    davidvibezb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.