Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Philly


Kenster61

Recommended Posts

blueeyedmanda Community Regular
hello friends,

I have been away for the past few months. I was in the Camp Hill area and they have a group that meet every month accept the Holidays. I want to see a group get started that meets monthy where we share our recipes and learn how to deal with this illness. If this is something you guys would like to see let me know.

Ken Ritter

ken.ritter@comcast.net

I am from the Harrisburg area, and besides my two celiac friends I really don't know anyone else. If anyone is ever going to get together and go out to eat down towards the Philly area I am willing to travel to dine with people who understand. I think we should do a road trip to Doylestown for the gluten-free pizza.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amybeth Enthusiast

If you roadtrip to Doylestown PM me. Jules is great! They also sell gluten-free dessert items at the counter (prepackaged stuff - so their extra safe!)

I'd meet you there.

blueeyedmanda Community Regular

Thanks, I will let you know when we are thinking of heading out. Right now things are hectic with work and by the weather this morning it looks like winter has arrived. I will remember that though.

:)

kbabe1968 Enthusiast
If you roadtrip to Doylestown PM me. Jules is great! They also sell gluten-free dessert items at the counter (prepackaged stuff - so their extra safe!)

I'd meet you there.

Echoing that - we live about 20 mins away from Jules. It was great. I did take out so didn't get the gluten free treats! I'll have to dine in next time!

  • 3 weeks later...
hershey Newbie

Hi! I live in the Malvern/West Chester area and was diagnosed last November along with my 16 year old son who is much sicker and having a lot more adaptation problems than I am. Is there really gluten-free pizza commercially available anywhere? Doylestown is quite a hike for us.

Mel

  • 4 months later...
jacwheeler Newbie
Hi,

I've been looking for people to meet up with in the Philly area if anyone is interested.

Ken Ritter

Hey I live outside of Philadelphia in the suburbs about 20 miles north. Ive been doing the diet for about 2 weeks now and doing pretty well. Id be interested in having some sort of meeting. My uncle does the diet and a girl I work with does too. I know she would probably be interested too.

Open Original Shared Link

  • 4 months later...
Nyxie63 Apprentice

I'm in Limerick, kinda halfway between KoP and Pottstown. Self dx'd about 2 weeks ago. Anyone know of a support group out this way? I don't mind driving longer distances, but would definitely appreciate company on the way there and back, so if anyone in the local area is interested in carpooling, let me know. I'd also be more likely to actually make it to meetings if there's someone else along. I don't mind driving out to the Harrisburg area if something's going on, since Mom lives in Camp Hill and she has crash space.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular
I'm in Limerick, kinda halfway between KoP and Pottstown. Self dx'd about 2 weeks ago. Anyone know of a support group out this way? I don't mind driving longer distances, but would definitely appreciate company on the way there and back, so if anyone in the local area is interested in carpooling, let me know. I'd also be more likely to actually make it to meetings if there's someone else along. I don't mind driving out to the Harrisburg area if something's going on, since Mom lives in Camp Hill and she has crash space.

There are a few Harrisburg celiacs on here, we would love to have a gathering one day :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.