Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Philly


Kenster61

Recommended Posts

Kenster61 Enthusiast

Hi,

I've been looking for people to meet up with in the Philly area if anyone is interested.

Ken Ritter


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast
Hi,

  I've been looking for people to meet up with in the Philly area if anyone is interested.

Ken Ritter

<{POST_SNAPBACK}>

HI Ken,

I live outside of Philly in Media. I was looking for a support group. Do you know of any? I've been gluten-free for about 12 HARD weeks. Actually the eating program isn't that bad it's finding all the 'hidden' poisons in the darn labels....HOw long have you been dx'd?

I sometimes have trouble getting my posts up on the forum so my email address is judy@jl-studio.com if you want to do emails.

Let me know if I can be of any help to you.

Oh, I just thought...go to www.martindalesnaturalfoods.com and see the event they are hosting on Oct 25th Jax Lowell of the The gluten-free Bible is the speaker and they are having alot of the gluten-free vendors there to have a 'testing' .

Judy

Lauren M Explorer

I live just outside of Philly in NJ and I'm a grad student at Drexel in Philly. Let me know if you organize a get-together or if you want help in organizing one :)

- Lauren

Queen Serenity Newbie

Hi!

I have been a gluten-free since 1995. I wish someone would form a group here in Philly. If a group could be organized, that would be great! The city is a big place, there has to be more of us out there. If anyone needs advise, please feel free to contact me. :)

Vicki

ppshowal Newbie
Hi!

I have been a gluten-free since 1995.  I wish someone would form a group here in Philly.  If a group could be organized, that would be great!  The city is a big place, there has to be more of us out there.  If anyone needs advise, please feel free to contact me.  :)

Vicki

<{POST_SNAPBACK}>

Judyin Philly Enthusiast

HI to Ken, Lauren, & Vicki,

Thanks for your emails. I'd also be interested in a local support group and I think that there might be a good possibility that one might form as the resut of the first Martindale's health food store meeting of Celiac's. I'd put a posting on to Ken telling him about it but not sure if you all saw it.

Jax Lowell, author of the gluten free bible was an informative and fun speaker. There were about 40 + people there and lots of gluten-free foods to sample. It was a wonderful evening. There were all ages including a 12 year old girl who spoke a few moments about how to be 'pro-active'....she talked about how she was getting gluten-free foods in the school cafeteria and was working on a designated 'frier' for the french fries. Now there's a neat gal....

When we were signing in for the 2 HUGE free drawing baskets of gluten-free foods, they asked if you were interested in helping to form a celiac disease support group.It seemed tha most people attending all seemed to interested in the idea. I'll keep you posted if you'd like.

Martindale's is on Baltimore Pike in Springfield right by the shopping center.

Not sure where the group would meet. Last nite it was in a church 2 blocks from the store. I just went on line to make sure of the web address and saw that they are meeting again on Feb 15th. Not sure about this speaker but it's info for you to decide.......www.martindalesnutrition.com

Seems most of you are more in the Philly area so keep me posted if you hear of any other support groups around. I'll keep ck'n this forum. I haven't been in this one before.

Judy

domineske Apprentice

There is a Philadelphia Celiac Support group. Below's a link to there web site. Karen Dalrymple (215-757-1233) is the chairman and she's GREAT!

The website hasn't been updated for a long time, but they do have regular meetings at Abington Hospital.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lauren M Explorer

I knew that Philly had a good group, but they always meet on evenings that I have class! :(

I'd be interested in informal meetings too, so keep me updated :)

- Lauren

Judyin Philly Enthusiast
There is a Philadelphia Celiac Support group. Below's a link to there web site. Karen Dalrymple (215-757-1233) is the chairman and she's GREAT!

The website hasn't been updated for a long time, but they do have regular meetings at Abington Hospital.

Open Original Shared Link

<{POST_SNAPBACK}>

WOW right under my nose. Thanks so much for posting this. Might be closer for some of the others on the forum. I did go one the web site and was looking at the resturants but that link wasn't working but thanks for the heads up that it hadn't been updated for awhile. Do you belong to the group or attend the meetings?

Judy

domineske Apprentice
WOW right under my nose. Thanks so much for posting this. Might be closer for some of the others on the forum. I did go one the web site and was looking at the resturants but that link wasn't working but thanks for the heads up that it hadn't been updated for awhile. Do you belong to the group or attend the meetings?

Judy

<{POST_SNAPBACK}>

Yes, we joined the group a year ago and went to one meeting, but we couldn't make the meeting last week. The meeting that we went to was very well run and informative and a great place to buy food and find out about vendors (like the gluten free cookie jar!)

Judyin Philly Enthusiast

Thanks Sean,

Glad you liked the meeting.

When I went on the Web site it said meetings were on Fri nites. Are they monthly and do they have feed vendors each time.

About how many people attended?

Thanks

Judy

domineske Apprentice

The meetings are only twice a year.... One in October and one in March on the third Friday of the month. I would guess there were a hundred people there, but Karen would know better than I... I would give her a call. I think they have the food vendors at each of the two meetings. I hope so... 'cause getting Sterk's to ship anything is NOT easy!

Judyin Philly Enthusiast

[Thanks Sean

Happen to call Karen this am. What a nice lady.

Calling me back tonight.

Thanks for the info.

Only 2 times a year....ok.

That's not alot but will ask her tonight.

Judy

codetalker Contributor

There are a handful of celiacs down here in Delaware. Due to the low numbers, keeping a group going has always been problematic. Currently, there has been a group meeting on the first Sunday of the month at the Christiana Hospital in Stanton, DE (off I-95 between Wilmington and Newark and close the Christiana Mall). There is a Yahoo group associated with the support group. The Yahoo group name is "gluten-free". Meeting notices are posted there.

I had always heard good things about the Phila group. However, the one time I called for info, I was told the meeting was full. Several years ago, when I first went gluten-free, I tried going to the South Jersey group meetings. They had an excellent group and group leader. She had lots of good speakers and the meetings were regularly scheduled. The only catch obviously was the hour drive each way to Cherry Hill.

Chuck

Judyin Philly Enthusiast

There are a handful of celiacs down here in Delaware. Due to the low numbers, keeping a group going has always been problematic. Currently, there has been a group meeting on the first Sunday of the month at the Christiana Hospital in Stanton, DE (off I-95 between Wilmington and Newark and close the Christiana Mall). There is a Yahoo group associated with the support group. The Yahoo group name is "gluten-free". Meeting notices are posted there.

I had always heard good things about the Phila group. However, the one time I called for info, I was told the meeting was full. Several years ago, when I first went gluten-free, I tried going to the South Jersey group meetings. They had an excellent group and group leader. She had lots of good speakers and the meetings were regularly scheduled. The only catch obviously was the hour drive each way to Cherry Hill.

Chuck

Chuck,

Thanks so much for all the info I will try to ck some out. I think that they are trying to start a group resulting from the Martindales health food store sponcered meeting where Jax Lowell spoke...Let's keep ck'ing the website and watch for announcements. Don't know if that would be closer for you....right up 95 and off the blue Route.

Thanks again. Judy

  • 1 month later...
Candy Contributor

I'm near Phila.,Ken. Whatdya like to do? Or who ya lookin' for? I'm a lil dysfunctional right now,but I'm still doin' OK. Do you like Philly cheese steaks?On a gluten free roll I guess. Same here.And Philly Pretzels when you can find 'em? Me too;love'em but I can hardly stomach the bread there made out of,but I still love 'em,just I don't eat 'em anymore.I like chocolate-and it's gluten free,but I never see men eat much of it.I made a small batch of Choc. truffles from Martha Stewart's recipe in one of her magazines,they're deep,decadent,and coated with bitter cocoa powder,so bitter my mom says they make her gag,but whatever-I share everything I make with my mom-she's a, uh,comrade.

  • 2 weeks later...
Kenster61 Enthusiast

hello friends,

I have been away for the past few months. I was in the Camp Hill area and they have a group that meet every month accept the Holidays. I want to see a group get started that meets monthy where we share our recipes and learn how to deal with this illness. If this is something you guys would like to see let me know.

Ken Ritter

ken.ritter@comcast.net

  • 4 months later...
kjw290 Newbie

I'm in the ne philly area and wish they had at least a weekly meeting just to keep up with the diet!

Karen

  • 3 weeks later...
NSG Newbie

Karen - LOL!!! I have a 17 year old that was diagnosed in 1989 with celiac disease - she keeps me on my diet!!! But a support group would be nice. I have only been on a gluten-free diet since early 2005. Still hard not to cheat. I miss bagels...

Ken - We live in Phoenixville - so it's a trek to Philly. But, it would be worth the effort for a monthly meeting. What's your thoughts about allowing teens to come?

amybeth Enthusiast

I'm in Bucks County - would love to attend a monthly meeting. Please post/PM me when you get started.

jaimek Enthusiast

I live right outside of Philadelphia, near Conshohocken. I would love to meet up as well. Keep me posted!

  • 1 month later...
pinktroll Apprentice

Ken-did you by chance go to Abington HS? Your name sounds familiar to me. Nikkie

  • 6 months later...
Jennifer111 Newbie

Hey all,

Hope everyone has had a wonderful holiday and wish all a healthy new year!!! Well i too would like to meet more people. I did go to the phila celiac support group they do have the 2 major meetings with the vendors havent gone to them but hear they are fabulous...lookin forward to teh one in march...however they do have a monthly meeting thats more informal at a library in langhorn...if ya call Karen she will direct ya but if ya just let me know if ya want the info...its not infront of me right now sorry but i promise i will get it to ya....it was nice to hear other poeple's stories and situtations and most of all feelings...i was just diagnosed in the fall so i am still learning and am interested in how other people are coping or even what they are eating...take care everyone Jennifer from Philly

amybeth Enthusiast

Would love to know when the meetings in Langhorne are.....I'm ten minutes from there.

Jennifer111 Newbie
Would love to know when the meetings in Langhorne are.....I'm ten minutes from there.

Like i promised i would get the phila support group info...Pennwood library Rt 413 and Flowers ave

Langhorn , Pa 19047 in the library conference room at 7:00 pm on the FIRST wednesday of February, April, May and June

let me know if ya need directions you can also get infor from Karen at 2157 7571233 hope to see ya in february

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.