Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Food Intolerances / Allergies?


JosieToo

Recommended Posts

JosieToo Explorer

Hi all,

 

I've recently been diagnosed with Celiac and am basically a sponge for knowledge at the moment! Sorry for yet another question!

 

I keep reading about other food intolerances and allergies in people with Celiac disease. Are these issues that were present before Celiac or because of Celiac? In other words, is there a higher likelihood of developing some new, additional issues with food that I've never had before?

 

Also, how do you know if you have a food intolerance or allergy? I know I'm allergic to shellfish because I have had reactions in the past and had a test at the allergist. But how would I know what to get a test for, if I don't have any reactions to other foods?

 

If there is a higher likelihood of other food issues with Celiac, is there anything I can do to prevent them or reduce my chances of developing these issues?

 

My Celiac seems to be largely "silent" aside from acid reflux controlled by medication - so I really don't know when I'm having a reaction.

 

Help! Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

An allergy is more along the lines of hives/swelling and the like. An intolerance can sometimes cause stomach issues, joint pain, headaches, and so on.

 

There really isn't anything you can do to prevent them. For example, i am intolerant to sweet potatoes and onions. I am allergic to tomatoes and possibly green beans.

bartfull Rising Star

The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

Salax Contributor

The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

And to add to this dairy.....evil dairy....lol :P

bartfull Rising Star

I knew I was forgetting something. :huh:

Salax Contributor

Shoot, I do that all the time :D (so many intolerances, so little time...and memory to remember all of them..lol)

 

I knew I was forgetting something. :huh:

  • 1 month later...
fergusminto Apprentice

I have been questioning celiac disease treatment for some time as I was diagnosed with an antibody count of over 800. I think 10 is supposed to be high? Maybe someone can confirm that.

 

Since going onto the prescribed treatment of 100% gluten-free I have encountered a multitude of food intolerences - oats, all dairy, eggs, soya, pears, grapes etc. I have to ask why? I do not believe in coincidences of this magnitude but I cannot find any evidence of any research into celiac disease "treatment" - only a plethora of celiac disease "Diagnosis" research projects.

 

I am interested in hearing from any celiac disease sufferer if they have encoutered similar intolerences.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
stef-the-kicking-cuty Enthusiast

I went glutenfree in 2004 and about two years ago I started to get kidney pain every once in a while. Just last month during the course of an important audition I frantically tried to get rid of the bags under my eyes with make up, which didn't work. I suck at makeup. So I came to conclusion, that it must be some kind of allergy. I went entirely dairy free about a month ago and today I drank a hot cocoa and ate a Nutella bread, and wouldn't you think... brain fog, extreme fatigue, and kidney pain a few minutes after eating it. :(

stef-the-kicking-cuty Enthusiast

Oh, and another symptom I forgot about until it hit me right now. It's not really asthma, but more like a "one-single-lung-cramp-every-20-minutes-or-so"-thing. It's really annoying.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748

    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.