Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Non Celiac Gluten Sensitivity Folks Typically Have Casein Or Lactose Intolerance?

Lisa M.

Recommended Posts

Lisa M. Newbie
Lisa M.
Posted

Curious if the casein and lactose intolerance is found in Celiac's only or also with NCGI?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scarletgrrrl Rookie
Scarletgrrrl
Posted

From my understanding, it is the ends of the villi that produce the lactase that helps digest the lactose in milk. When the villi are damaged and inflamed, they don't produce the lactase which leads to lactose intolerance. Some individuals however may have a preexisting intolerance unrelated to the small intestinal damage. NCGI does not damage the small intestine.

kareng Grand Master
kareng
Posted

those are found in people with no problems with gluten, also.  If you think it might be a problem, eliminate it for a couple of weeks and see if you notice a difference?

answerseeker Enthusiast
answerseeker
Posted

Did it come on after your gluten sensitivity? I used to eat yogurt everyday with lunch and used to tolerate milk and ice cream just fine. Then about a month after my diagnosis I couldn't tolerate lactose at all. I've switched to lactose free milk in my rice chex and coffee and eat lactose free yogurt and I'm fine.

Like scarlet said the vili is what breaks down lactose and is what is damaged in celiacs. But many adults can't tolerate lactose like Karen said. So therefore you can't base if its celiac just by lactose intolerance. Although like I said mine came on after diagnosis

Lisa M. Newbie
Lisa M.
Posted
  • Author

Did it come on after your gluten sensitivity? I used to eat yogurt everyday with lunch and used to tolerate milk and ice cream just fine. Then about a month after my diagnosis I couldn't tolerate lactose at all. I've switched to lactose free milk in my rice chex and coffee and eat lactose free yogurt and I'm fine.

Like scarlet said the vili is what breaks down lactose and is what is damaged in celiacs. But many adults can't tolerate lactose like Karen said. So therefore you can't base if its celiac just by lactose intolerance. Although like I said mine came on after diagnosis

notme Experienced
notme
Posted

lisa m - if you replied to this, the quote from answerseeker just came through - remember to write your response outside the quoted box :)

Lisa M. Newbie
Lisa M.
Posted
  • Author

The lactose piece just came on as I am was awaiting the blood tests. I always ate yogurt and cheese prior. A day or 2 after taking gluten out I realized I was having bloating and gas (both ends) from drinking kefir and then a few pieces of shredded Parmesan cheese. So, I took lactose and casein out of my diet too.

The Dr told me on Friday after 8 days off gluten to get back on so they can do a biopsies. 24 hrs back on gluten and I am exhausted, bloated, constipated, have a low grade fever and now a pain on my left under the rib that I have never experienced before. I am back on gluten, not lactose.

I pray the GI will get me in quickly and will get back to a strict gluten free diet after the biopsies.

Thank you for your reply. I think I accidentally "replied" with a blank. I'll get the hang of this soon.

From this forum, I have gotten such relief, more than 1Dr has acted like I was making stuff up and has commented that my symptoms are all over the board, yes they are!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa M. Newbie
Lisa M.
Posted
  • Author

those are found in people with no problems with gluten, also.  If you think it might be a problem, eliminate it for a couple of weeks and see if you notice a difference?

Thank you!

answerseeker Enthusiast
answerseeker
Posted

Yeah that rib cage pain. Yuck! But he is right you need to eat gluten for the biopsy. Have your blood tests come back yet? There is a new guideline now that says diagnosis can be made with a positive blood test and no biopsy.

Lisa M. Newbie
Lisa M.
Posted
  • Author

lisa m - if you replied to this, the quote from answerseeker just came through - remember to write your response outside the quoted box :)

Thank you Arlene!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,114
    • Most Online (within 30 mins)
      7,748
    Cheryl Elliott
    Newest Member
    Cheryl Elliott
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.