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Gluten Free For A Week Before Testing, Will The Antibodies Still Be There?

Mcfmommy

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Mcfmommy Newbie
Mcfmommy
Posted

Hi. I'm new here. I have a huge host of symptoms that doctors kept treating individually until I asked for a celiac test, which I'm getting in one week. However, I want to go gluten free NOW! I started yesterday and believe it or not already feel slightly better (no headache for first time I weeks). Will the test still be able to pick up antibodies after a week of being gluten free? I imagine antibodies stick around longer that a week, but don't want to get a false negative and then the docs try to put me back on steroids and anti depressants and anticonvulsants. If you know anything please help. Also, if it is positive will I absolutely have to get an endoscopy????

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kareng Grand Master
kareng
Posted

Why can't you get it today? It's just blood work.

Mcfmommy Newbie
Mcfmommy
Posted
  • Author

Why can't you get it today? It's just blood work.

This lab work was scheduled 6 weeks ago when she first discovered severe vitamin d deficiency and hypothyroidism. So it was just supposed to be a follow up to that but I asked for the celiac as well since they would already be drawing blood.

Intrepid1 Newbie
Intrepid1
Posted

Hi,

 

I was just hoping whomever answers Mcfmommy's question could expand a little, because I'm in a slightly but not substantially different boat, but thought I'd keep my question contained in the same post.

 

I've been trying gluten free for a while because I thought I might be intolerant, but after several months where certain health symptoms cleared up that I never thought would be a problem and after several accidental glutenings, I'm thinking I should get tested for celiac.  Just to know for sure.  How much gluten is needed in your system to generate antibodies?  Especially if I've have been mostly off of it except for accidental glutening (or possibly 3 within the last 3 weeks)?  Is it something where you can eat your last krispy kreme for the rest of your life the night before the blood test or do you have to be on pasta for a week?  I really hate how my body reacts with accidental glutenings, so the idea of going back on gluten for a length of time really doesn't sound appealing.  (Although, if its for medical purposes, I suppose I could manage one last krispy kreme.)

 

Thanks in advance.

GottaSki Mentor
GottaSki
Posted

Most of the major celiac centers recommend at least one slice of gluten containing bread for 6-12 weeks.

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

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