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Having Trouble In Starting Gluten Free


strings

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strings Rookie

First off, I'm sure I have a food allergy of some kind, even though I've had an allergy test and nothing came positive.

I've had seborrhoeic dermatitis for 10 yrs now, but at times I randomly get bloated, gassy and sharp abdominal pains but I thought those symptoms could be stress as I have an anxiety disorder.

Anyway, this week has really hit me, and is the reason why I'm typing this out looking for answers.

I do get a lot of headaches, and migraines around a couple a month, a burning sensation around my mouth and the aforementioned symptoms above.

The thing is, I've had bread and milk (I believe that's the culprit judging this week and other days), but other times eating these foods I get no reaction?

I do find it very challenging to stay gluten free though. Not because of cravings, but I just don't fill up. Wen I'm out, I usually get sushi ( try to get brown), and just eat a lot of fruits, nuts, rice cakes, eggs, gluten-free cereal. I just find it hard to make good full meals.

Any advice for someone trying to start a gluten free diet?


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GF Lover Rising Star

Complying with a gluten free diet can be challenging at first.  A lot of people find the difficulty lies in not having a definate diagnosis.  Once you do commit to the change in eating for life it gets much easier.  If you are having trouble feeling full, you may want to eat many smaller meals.  Rice and potatoes are very filling.  Snacking throughout the day on nuts, fruits and vegies will help.  

 

Also, seborrheic dermatitis or eczema is linked to celiac disease.  Here is some information on it.

 

Open Original Shared Link.

 

Good luck to you. 

 

Colleen 

1desperateladysaved Proficient

My doctor tells me to make sure to have just under a tablespoon of good fat with every meal.  Good fats include butter,(if tolerated) olive oil, or coconut oil.  Fats help you feel full and keep that full feeling until time for the next meal.  She also says to have 2-3 ounces of protein along with some (27)carbs.  She allows more than that, but you keep it in the same proportions.  Don't forget a cup or so of vegetables.

 

Hard to tell why you would seem to react one time and not the other.  According to my functional medicine nurse, one can have reactions up to 4 days after eating  I can tell you that when I ate gluten constantly, my body became too overwhelmed to react.  (This in retrospect and as a guess)  I dealt with constant fog and fatigue.  Not to mention the bloating so much that people asked if I were pregnant.  As I became better, I noticed that I had responses to what I ate. 

 

I did antibody testing to help me discover my food intolerances.  I also did a rotational diet.  I only eat various food groups every 4 days.  This helped me to realize or suspect some foods that caused more and more noticeable reactions as I healed.  You may want to add some new foods to your diet.  I ate more fish and tried some novelty meats.  I tried lamb, alpaca, bison, duck, and yak.  The new foods you try you are less likely to have antibodies to.  Some vegetables you might try include turnips, swiss chard, and fennel bulb.  I tried papaya and mango.  These two fruits are not common where I live in Minnesota.

 

Have you done a nutrient test to see whether you are absorbing nutrients well?  Are you doing a digestive enzyme supplement?  Do you take a gluten free vitamin?  All of these things helped me and many on the forum.

 

You may want to try these ideas over time if you need them.  It is possible that eliminating gluten will  get to the root of the problem and you will heal without more trouble.  Things can get a little complicated; I generally avoid doctors, I had help from several to deal with celiac disease.

 

D

w8in4dave Community Regular

Starting Gluten free is easy. No pre packaged foods.. Buy meat and fresh veggies. 

notme Experienced

the kefir (it's like yogurt you drink) i buy is 99% lactose free and gluten free - i am like you, hungry all the time, i could eat every 2 hours.  kefir has lots of protien and will tide me over if i am feeling famished, eat, drink some kefir, good to go :)  also, almonds or almond butter will keep me satisfied for a longer amount of time, but even a pb&j sandwich is pretty good, too. 

 

if you are planning on getting tested for celiac, they will want you to be eating gluten.

 

good luck :)

notme Experienced

Complying with a gluten free diet can be challenging at first.  A lot of people find the difficulty lies in not having a definate diagnosis.  Once you do commit to the change in eating for life it gets much easier.  If you are having trouble feeling full, you may want to eat many smaller meals.  Rice and potatoes are very filling.  Snacking throughout the day on nuts, fruits and vegies will help.  

 

Also, seborrheic dermatitis or eczema is linked to celiac disease.  Here is some information on it.

 

Open Original Shared Link.

 

Good luck to you. 

 

Colleen 

"interactable dandruff"  - lolz, colleen, one of them five dolla words :D

GFinDC Veteran

HI,

 

Here are a couple threads with info you should read.  Test tomorrow.  Not!! :)

 

Celiac disease is a possibility, and so is NCGI.  Neither one is a food allergy, so food allergy testing will not reveal them. 

 

Your symptoms do make sense for possible celiac disease.  Celiac symptoms can vary widely, as our bodies don't all react like little robots.  Sometimes people have no symptoms at all but have a lot of damage to their guts.  That is called silent celiac.  People with NCGI have celiac like symptoms but a different immune response than celiacs do.

 

There is a  series of blood antibodie tests that the doctor can do for celiac, but there is no test for NCGI yet, except positive response to the gluten-free diet..

 

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/


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GF Lover Rising Star

"interactable dandruff"  - lolz, colleen, one of them five dolla words :D

 

You just gotta love this stuff! :)

bartfull Rising Star

When I was going through gluten withdrawal (it is a very real, physical withdrawal), I was hungry all the time. I could eat a huge chicken breast, and very large sweet potato, a large serving of broccoli, and even though my stomach was full, I was still hungry. Just eat lots of small meals throughout the day. Eat someting every hour if need be. The withdrawal phase only lasts a couple or three weeks. Expect headaches and mood swings with withdrawal too. It's worth a couple of weeks of that in order to start feeling better.

strings Rookie

Thank you all for the replies, much appreciated. :) I've yet to have a nutritional test done, and never have taken any supplements of any sort. Guess that's another thing I could look into.

I'll have a good look at those links and go from there.

Another thing I wanted to ask is should I also cut out dairy or see if the symptoms stop by only excluding gluten in my diet? I guess it'll make it easier to narrow it down instead of avoiding both allergens.

1desperateladysaved Proficient

Thank you all for the replies, much appreciated. :) I've yet to have a nutritional test done, and never have taken any supplements of any sort. Guess that's another thing I could look into.

I'll have a good look at those links and go from there.

Another thing I wanted to ask is should I also cut out dairy or see if the symptoms stop by only excluding gluten in my diet? I guess it'll make it easier to narrow it down instead of avoiding both allergens.

I believe you were saying that dairy is causing some issues.  I would try removing it for 3-6 months and test it after that.  I use coconut milk or nut milk as substitutes.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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