Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mental Health Crises: What Else Might Be Wrong?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Anyone know of someone having a mental health crises and later it was found that they had a physical illness?  What physical illnesses/defects can mascarade for mental illness?

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SkyBlue4 Apprentice

Don't know if this qualifies as a crisis really but my son has PANS/PANDAS (autoimmune reaction to an infection) that causes anxiety/OCD as well as Tourette Syndrome overnight. He literally went to bed one night and woke up a different kid. We rushed him to the ER thinking he must have meningitis or something. It was scary.

IrishHeart Veteran

D

 

Do you mean besides celiac, righ? because that surely causes what appear to be mental health issues like depression and anxiety as many of us can attest.

 

let's see,  a few could be:

uncontrolled diabetes

endocrine and metabolic disorders

lyme disease

severe Vitamin deficiencies , like omega 3s and essential fatty acids, amino acids

anemia

a stroke, lupus, mono, and Parkinson's disease

Pain relievers, tranquilizers, birth control pills, antihistamines, muscle relaxants, and several other pharmaceuticals can mess with your head.

food additives, chemical sensitivities

heavy metal poisoning

candida albicans

hormonal imbalances

sleep deprivation

a brain injury, blow to the head, etc.

food intolerances, histamine intolerance and allergies

Pseudobulbar affect (PBA)
 

and I might add: a visit from an annoying mother-in-law could trigger total madness in some folks ...Just sayin

1desperateladysaved Proficient

Wowie,  I am guessing the doctors didn't check for all of that before administering their drugs.  In fact, I know they didn't.  I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors.  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?  I doubt it, but I gotta try.

 

How to win friends and influence doctors without going totally bonkers yourself?  Sometimes I feel like D is trying to take on the whole medical establishment single handedly!  For this lady, I have to try.

 

Thanks for the ideas, it gives me more ideas of what questions I should ask.  I need all the amo that I can get.

kareng Grand Master

Wowie, I am guessing the doctors didn't check for all of that before administering their drugs. In fact, I know they didn't. I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors. I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes! I agree that celiac can make you sort of bonkers! The one in crises also had a trigger event having not been the same since back surgery 5 or so years back. She may have been checked for celiac, but may have low IgA and IgG. She has had kidney problems and thyroid issues in the past. Sigh. She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere? I doubt it, but I gotta try.

How to win friends and influence doctors without going totally bonkers yourself? Sometimes I feel like D is trying to take on the whole medical establishment single handedly! For this lady, I have to try.

Thanks for the ideas, it gives me more ideas of what questions I should ask. I need all the amo that I can get.

Just a couple of thoughts. She isn't low on IgG, but can be low on IgA. her doctors can't discuss her case with you without her permission. You might be able to make some suggestions to her or her family?
1desperateladysaved Proficient

Just a couple of thoughts. She isn't low on IgG, but can be low on IgA. her doctors can't discuss her case with you without her permission. You might be able to make some suggestions to her or her family?

Thanks, the nurse I talked to got clearance for me.  I just basically asked questions about what care she was getting.  I am hoping for some influence in the situation in a gentle way!

 

I did read about one person who claimed low igG, so that is what made me think of it.  My IgG level is not high, so I have been wondering.

IrishHeart Veteran

  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?

 

 

 

but "celiac genes" do not determine celiac. You know this by now.

She may have selective deficiency of IgA, but they test for that when they do the celiac panel .

Sometimes, someone becomes stressed and the body has low seratonin levels. That would also cause mental health issues.

If she does not really respond to SSRIs, which are often prescribed for depression, then perhaps it is another medical condition that is the underlying cause.

 

Good luck with talking to medical personnel. I suspect they will nod and say "uh huh" and walk away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

but "celiac genes" do not determine celiac. You know this by now.

She may have selective deficiency of IgA, but they test for that when they do the celiac panel .

Sometimes, someone becomes stressed and the body has low seratonin levels. That would also cause mental health issues.

If she does not really respond to SSRIs, which are often prescribed for depression, then perhaps it is another medical condition that is the underlying cause.

 

Good luck with talking to medical personnel. I suspect they will nod and say "uh huh" and walk away.

Yeah, alas that is all true. 

IrishHeart Veteran

Yeah, alas that is all true. 

Believe me, Diana...I understand how frustrating it is to watch someone you care about go downhill and not even take any suggestions

from you about what could help. .

 

All you can do is be supportive, offer ways to help if she goes gluten-free (despite negative celiac panels) and be a friend.

 

As we often say on here, you can lead the horse to water.... 

kareng Grand Master

Thanks, the nurse I talked to got clearance for me.  I just basically asked questions about what care she was getting.  I am hoping for some influence in the situation in a gentle way!

 

 

 

You said this lady didn't want your help.  This nurse should be fired for talking to you about a patient's care, especially mental health issues!  As a person who worked on and with Health Information Laws for many years, I'm upset about this.  However, when your friend is better, she will be able to sue the hospital or doctor and this nurse for a lot of money.

 

 

Its possible her issues have nothing to do with Celiac - in fact, because only about 1 % of the population have Celiac, its really likely there is a different reason.

frieze Community Regular

Open Original Shared Linkn"

while this link isn't specific to this issue, if you research the doc involved you will find much of interest.

and Irish, the OP did mention a potential inciting event....and that the person involved hadn't "been right" since.

Open Original Shared Link

interesting, according to this a lack of niacin may actually contribute to developing

 

celiac.Open Original Shared Link

might this explain the occasional person who seems to tolerate gluten after long term healing?

1desperateladysaved Proficient

Believe me, Diana...I understand how frustrating it is to watch someone you care about go downhill and not even take any suggestions

from you about what could help. .

 

All you can do is be supportive, offer ways to help if she goes gluten-free (despite negative celiac panels) and be a friend.

 

As we often say on here, you can lead the horse to water.... 

Yes, again.  Been there and done that and expect to do it again.

D

  • 2 weeks later...
Loey Rising Star

Wowie,  I am guessing the doctors didn't check for all of that before administering their drugs.  In fact, I know they didn't.  I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors.  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?  I doubt it, but I gotta try.

 

How to win friends and influence doctors without going totally bonkers yourself?  Sometimes I feel like D is trying to take on the whole medical establishment single handedly!  For this lady, I have to try.

 

Thanks for the ideas, it gives me more ideas of what questions I should ask.  I need all the amo that I can get.

She's lucky to have you in her corner! Sometimes meds (for depression or any med) can cause depression. So can being sick for a long time. Keeping you in my thoughts & prayers!

Healing (((hugs))),

Loey

1desperateladysaved Proficient

She's lucky to have you in her corner! Sometimes meds (for depression or any med) can cause depression. So can being sick for a long time. Keeping you in my thoughts & prayers!

Healing (((hugs))),

Loey

Thanks, that means a lot.

D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.