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Nikki2777

Are These Neuro Symptoms?

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I was diagnosed last March, and I've been pretty confident it was caught on the early side -- I had 'mild villous atrophy" and it was "in patches".  My symptoms were inconsistent, sometimes GI, and in retrospect -- I see that the hives and itchiness I'd been experiencing were probably related.

 

However, once about a month before my diagnosis and again a week or two after I'd gone gluten free, I had an episode where I suddenly was speaking to someone and had trouble forming words.  Both episodes lasted about 10 minutes or so.  After doing some reading, I decided they must be celiac related and since I didn't have another episode, I figured it would end with my healing.

 

Well, my 3 month followup endoscopy showed normal villi and my bloodwork was fine.  I hadn't had another episode until today.  I'm pretty sure I was glutened about two weeks ago (first time in ages), and for the last day or two, my brain/head has felt "buzzy" or pressure filled, making me sort of dizzy and relieved briefly by a big exhale.  Then today, I had another, briefer episode of not being able to form words.  Scared me silly.

 

Does this sound like a neuro/celiac symptom?  I always figured that they were caused by prolonged vitamin deficiency, and as I've only had the one glutening, it seemed unlikely.  Is this Ataxia?

 

I have my annual physical coming up mid-October, but I'm wondering if I should be worried before then.  And what should I be asking my Dr. for?  An MRI?

 

Any advice is welcome.  I'm a bit scared, to be honest, and I thought I had this Celiac thing under control.

 

 

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I don't have your answers but yea that sure does sounds scary!! I hope someone has some insight for you. Good luck! 

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The buzzy, pressure filled, bit dizzy and relieved with a big breathe - sounds like what happens with a bit of a stuffy head from a cold or allergy. Some allergens are really bad right now. Not sure if that is it.

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This could be gluten related but it could also be something more serious. Call your doctor and talk to a nurse about this and see if you can get your appointment moved up. It may just be gluten related but it could also be signs of a stroke.

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Yeah. I don't want to scare you but it sounds a lot like what they call TIA'a, or mini-strokes. They can happen at any age, and they are often precursors to major strokes. You should see a doctor immediately. If you go to the ER, they will see to it that you get in to see your doctor right away.

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