Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Related To Celiac Or Another Ai Brewing?

answerseeker

By answerseeker
in Related Issues & Disorders

Recommended Posts

answerseeker Enthusiast
answerseeker
Posted

I've been gluten free since diagnosis in July. The last month or so I've been getting unexplained bruising, not easy bruising, they literally come from nowhere. I have one the size of a baseball on the back of my leg. With this I get bulging veins in my arms and hands, and rashes appear that look like hickies. It looks like the blood coming to the surface.

Blood work for iron is good and platelets are in the middle range. Tested for factor v Leiden which was negative.

Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

I know your saying iron is ok, but it does sound like iron....I have low iron, need infusions every couple months and I get bruising out of no where, but not that severe.

answerseeker Enthusiast
answerseeker
Posted
  • Author

My iron is 82 and ferritin is 31

Kaiser considers this normal ranges even if its on the low side of normal. They don't test for vit K defiency either but the vein thing is weird that shouldn't be related to iron or vit k?

Rucko Apprentice
Rucko
Posted

Just wondering, are the bruises painful? What about the rashes?

 

Also, are you on any meds?  Some are notorious for causing spontaneous bruises.  

answerseeker Enthusiast
answerseeker
Posted
  • Author

The rashes are clusters of red spots looks like when you pinch your skin. No pain

The bruises don't hurt, I don't even know they are there until I see them usually in the shower.

I take Advair for my asthma that's it and was on prednisone in June

Rucko Apprentice
Rucko
Posted

Prednisone is one of the meds that can cause bruising. Since they don't hurt, the bruises might be because of the effect prednisone has on the skin, somehow it thins and weakens it.  If you've stopped taking prednisone, the bruising should lessen and you'll go back to normal.  Otherwise you and your doctor will have to see if your dose can be adjusted, if he/she thinks that might be the problem.

answerseeker Enthusiast
answerseeker
Posted
  • Author

I'm not on it now. I was on it through my IV in the hospital in June. So it should be out of my system by now? My Dr is going to refer me to hematology for further testing

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

There is a type of anemia that causes the red blood cells to be very large (macroblastic?)  I think you can be at a normal count, but the bloods cells are not mormal and proper functioning.

 

There is also an auto-immune disorder ITP, Idiopathic Thrombosis Purpura (spelling is probably not accurate and I believe there has been a change to the name.  If you google search ITP that should get you some information)  ITP is when the immune system attacks the red blood cells.  An acute attack can be life threatening anemia.  Definately go to an emergency room if you start feeling extremely weak/ rash spreads / more sudden bruising.

 

Good luck with testing and keep us updated for your speedy recovery!

answerseeker Enthusiast
answerseeker
Posted
  • Author

There is a type of anemia that causes the red blood cells to be very large (macroblastic?)  I think you can be at a normal count, but the bloods cells are not mormal and proper functioning.

 

There is also an auto-immune disorder ITP, Idiopathic Thrombosis Purpura (spelling is probably not accurate and I believe there has been a change to the name.  If you google search ITP that should get you some information)  ITP is when the immune system attacks the red blood cells.  An acute attack can be life threatening anemia.  Definately go to an emergency room if you start feeling extremely weak/ rash spreads / more sudden bruising.

 

Good luck with testing and keep us updated for your speedy recovery!

 

I will mention it to my Dr. my MCV was 99 which is borderline high, but like I said Kaiser doesn't consider borderline or even slightly high labs problamatic. When I looked up the macrolastic anemia it said MCV over 95 may point to that.

  • 3 weeks later...
answerseeker Enthusiast
answerseeker
Posted
  • Author

I had my dermatology appointment yesterday and he took a biopsy to test for DH because he thinks its that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,112
    • Most Online (within 30 mins)
      7,748
    tomhaley
    Newest Member
    tomhaley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.