Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow... How Long For Results?


appletree729

Recommended Posts

appletree729 Apprentice

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

GF Lover Rising Star

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!

Just settle down :lol:  Everything will be right with the world when you finish your procedures.  Just think, after tomorrow you can start feeling better regardless of the results.  The Doctor may or may not say anything after the procedure.  Biopsies usually take around 1 - 2 weeks for results.  Let us know how it all goes. :)

 

Colleen

Renaye Contributor

I am having an upper and lower gi procedure on Wednesday.  Eating bland stuff today.   I am also having gi trouble but have already had a negative biopsy before.  Good luck!

 

Renaye

appletree729 Apprentice

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

shadowicewolf Proficient

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

 

The small intestine is about 15 to 32 feet in length. It is very possible to miss damage.

GF Lover Rising Star

Glad everything went well.  :D

 

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



appletree729 Apprentice

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!  

appletree729 Apprentice

Well, got the results today and everything came back normal..  so no celiac disease.  I should be happy, right?!  But oddly, I'm actually disappointed.  This would have been a manageable, not so serious diagnosis with an easy solution that didn't require medication.

 

Oh well.  Mystery still remains as to the cause of my abdominal pain, brain fog and all the other complaints. Or maybe this is just the way I'm supposed to feel and it's 'normal'.  That would suck!

moosemalibu Collaborator

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

 

I haven't gotten my biopsy results back but just wanted to add that my endoscopy showed gross abnormality of mucosal atrophy. So sometimes there is visible damage. But I am assuming my biopsy will be consistent with my serology test results and be positive for celiacs.

love2travel Mentor

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!

Actually, a celiac doctor in Canada said at a lecture I attended to request 11+ biopsies and even at this seemingly high number it could still be missed. She looks at biopsy reports completed by other physicians herself and said a low percentage are done and/or read correctly. But at least yours took 8, rather than a paltry 2 or 3.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - Mark Conway posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Have I got coeliac disease

    3. - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      8

      Celiac and dermatitis herpetiformis has taken Me from Me

    4. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    5. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,145
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • Mark Conway
      Hi there, I wonder if anyone can help. I've had stomach problems for years, pain in the tummy, lower back left and right side, different stools, diarrohea constipation etc, My GP says it's IBS. As I've got older the pain has become worse and constant. I also get ulcers on my tongue. I've had loads of tests done everytihng apart from an endoscopy I think. I had a test for Coeliac last July and the result was negative. My GP says it can't be coeliac because I'm not losing weight. He thinks it's stress or all in my head. I'm not stressed and I'm in pain all the time now. Sometimes it's unbearable and dark thoughts have entered my head. Could I have Coeliac even though I tested negative last year. I'm at my wits end, I eat healthily and cannot pinpoint which foods could cause this pain. Can anyone help? Thanks Mark wind
    • islaPorty
      First, I want to say thank you for sharing this with me. I hear you, and I believe you. The courage it took to write this down is immense, and I’m so sorry you’ve been carrying this alone. You are dealing with two life-altering challenges at once: a serious, complex medical condition, and an abusive, controlling partner who is actively harming your health and your spirit. It’s not just that he’s unsupportive—he is weaponizing your illness to torture you. Starving you, isolating you, mocking your diagnosis, and sabotaging your access to medical care is not just cruelty; it is dangerous, deliberate abuse. Your instinct is correct: the stress he is creating is absolutely preventing your body from healing. Celiac and autoimmune conditions are profoundly sensitive to stress, and he has created a living hell designed to keep you sick, dependent, and broken. That smirk you described—that is the look of someone who enjoys having power over your suffering. Please know this: you do not deserve this. Not any of it. You deserve to eat. You deserve safe, clean food and water. You deserve medical care and supplements that help you function. You deserve peace. You deserve to heal. The woman from the food pantry is not a random accident. She is a lifeline. Her help, and the community she’s connecting you to, is real. It is okay to feel overwhelmed by kindness when you’ve been starved of it for so long. But you do deserve it. Let that be a sign that there is a world outside your house that operates on compassion, not control. Right now, your physical safety and access to nutrition are the most urgent priorities. The food pantry is a critical resource. Is there any way you can speak privately with the woman helping you? You don’t have to share everything at once, but letting her know your situation at home is extremely unsafe, and that your partner restricts your food, could help her support you in a more targeted way. She may have connections to local domestic violence services.
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.