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Could Your Retainer Be Preventing Healing? Yes.


powerofpositivethinking

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weluvgators Explorer

I am not warning people off dental care! We can't avoid it, as we have dental complications due to early childhood gluten exposure. I just wanted to report that our family found the case study instrumental in managing our healthcare. Our orthodontist also found the case study meaningful and was relieved that the next scheduled retainers are made of a different material than that used in the case study.


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kareng Grand Master

The symptoms were a chronic cough and continuous postnatal drip that eventuated in severe facial swelling. I took her to the orthodontist concerned we were having infection issues, as it seemed her body was in overdrive fighting....something? He assured me that she was not presenting with infection (we were already on acute allergy management for the symptoms). He advised that she looked to be reacting to her plate. He removed it the next day to make an early transition to her braces, and she immediately improved. Her ability to digest dairy and function of her digestive and respiratory systems seem to have been compromised from the reaction process. She is recovering, just hard to have such a setback when we were doing so well.

 

 

Oh... well that is different!  Your kids have some allergy issues - who knows what part of the retainer she is allergic too.  I have heard of kids having allergic reactions to retainers.  When I was a kid - I think it was the metal used in the metal parts?  That was back in the Stone Ages - hopefully they are made of better stuff these days.  If she needs another, try another manufacturer?  

 

My son kept getting sore in his mouth we thought was because of the metal retainer or he wasn't cleaning well enough.  A friend in college had a"  natural" toothpaste he tried.   He changed toothpaste to Jason's and the sores & swollen lymph nodes went away.

IrishHeart Veteran

 I recognise that our daughter's allergic/celiac reaction could have been to any ingredient in that plastic.

 

Good. I am glad you recognize that fact because 

not everything that happens to us, our children and families is because of gluten.

 

Having OTHER allergies/intolerances  opens a door to so many other things that may have caused a "reaction".

 

I know, I have other food intolerances and mast cell issues. 

 

I am sorry your wee one is not feeling well, but the science speaks volumes. And Dilettantesteph would be the first to agree that the science is important. 

weluvgators Explorer

I think it is fair to note here that our daughters only known allergen is gluten.

kareng Grand Master

I think it is fair to note here that our daughters only known allergen is gluten.

 

Yea... it sounds like it can be hard to figure out what exactly someone is  allergic to.  Sounds like tests aren't reliable.... its just sort of an elimination/observation thing.

weluvgators Explorer

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

kareng Grand Master

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

 

 

And that points out the big difference between Celiac and wheat or other allergies, doesn't it?  Sometimes, contact is enough to give you the allergic reactions like stuffy nose and rashes.  And it isn't like, when you are trying to figure out what a kid is allergic to, you say "Here, Kiddo.  Suck on this piece of metal or plastic & let's see what happens"   :lol:   You just have to figure it out as it comes.


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    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
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