Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Your Retainer Be Preventing Healing? Yes.


powerofpositivethinking

Recommended Posts

weluvgators Explorer

I am not warning people off dental care! We can't avoid it, as we have dental complications due to early childhood gluten exposure. I just wanted to report that our family found the case study instrumental in managing our healthcare. Our orthodontist also found the case study meaningful and was relieved that the next scheduled retainers are made of a different material than that used in the case study.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The symptoms were a chronic cough and continuous postnatal drip that eventuated in severe facial swelling. I took her to the orthodontist concerned we were having infection issues, as it seemed her body was in overdrive fighting....something? He assured me that she was not presenting with infection (we were already on acute allergy management for the symptoms). He advised that she looked to be reacting to her plate. He removed it the next day to make an early transition to her braces, and she immediately improved. Her ability to digest dairy and function of her digestive and respiratory systems seem to have been compromised from the reaction process. She is recovering, just hard to have such a setback when we were doing so well.

 

 

Oh... well that is different!  Your kids have some allergy issues - who knows what part of the retainer she is allergic too.  I have heard of kids having allergic reactions to retainers.  When I was a kid - I think it was the metal used in the metal parts?  That was back in the Stone Ages - hopefully they are made of better stuff these days.  If she needs another, try another manufacturer?  

 

My son kept getting sore in his mouth we thought was because of the metal retainer or he wasn't cleaning well enough.  A friend in college had a"  natural" toothpaste he tried.   He changed toothpaste to Jason's and the sores & swollen lymph nodes went away.

IrishHeart Veteran

 I recognise that our daughter's allergic/celiac reaction could have been to any ingredient in that plastic.

 

Good. I am glad you recognize that fact because 

not everything that happens to us, our children and families is because of gluten.

 

Having OTHER allergies/intolerances  opens a door to so many other things that may have caused a "reaction".

 

I know, I have other food intolerances and mast cell issues. 

 

I am sorry your wee one is not feeling well, but the science speaks volumes. And Dilettantesteph would be the first to agree that the science is important. 

weluvgators Explorer

I think it is fair to note here that our daughters only known allergen is gluten.

kareng Grand Master

I think it is fair to note here that our daughters only known allergen is gluten.

 

Yea... it sounds like it can be hard to figure out what exactly someone is  allergic to.  Sounds like tests aren't reliable.... its just sort of an elimination/observation thing.

weluvgators Explorer

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

kareng Grand Master

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

 

 

And that points out the big difference between Celiac and wheat or other allergies, doesn't it?  Sometimes, contact is enough to give you the allergic reactions like stuffy nose and rashes.  And it isn't like, when you are trying to figure out what a kid is allergic to, you say "Here, Kiddo.  Suck on this piece of metal or plastic & let's see what happens"   :lol:   You just have to figure it out as it comes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,223
    • Most Online (within 30 mins)
      7,748

    Samantha 23
    Newest Member
    Samantha 23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.