Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Your Retainer Be Preventing Healing? Yes.


powerofpositivethinking

Recommended Posts

weluvgators Explorer

I am not warning people off dental care! We can't avoid it, as we have dental complications due to early childhood gluten exposure. I just wanted to report that our family found the case study instrumental in managing our healthcare. Our orthodontist also found the case study meaningful and was relieved that the next scheduled retainers are made of a different material than that used in the case study.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The symptoms were a chronic cough and continuous postnatal drip that eventuated in severe facial swelling. I took her to the orthodontist concerned we were having infection issues, as it seemed her body was in overdrive fighting....something? He assured me that she was not presenting with infection (we were already on acute allergy management for the symptoms). He advised that she looked to be reacting to her plate. He removed it the next day to make an early transition to her braces, and she immediately improved. Her ability to digest dairy and function of her digestive and respiratory systems seem to have been compromised from the reaction process. She is recovering, just hard to have such a setback when we were doing so well.

 

 

Oh... well that is different!  Your kids have some allergy issues - who knows what part of the retainer she is allergic too.  I have heard of kids having allergic reactions to retainers.  When I was a kid - I think it was the metal used in the metal parts?  That was back in the Stone Ages - hopefully they are made of better stuff these days.  If she needs another, try another manufacturer?  

 

My son kept getting sore in his mouth we thought was because of the metal retainer or he wasn't cleaning well enough.  A friend in college had a"  natural" toothpaste he tried.   He changed toothpaste to Jason's and the sores & swollen lymph nodes went away.

IrishHeart Veteran

 I recognise that our daughter's allergic/celiac reaction could have been to any ingredient in that plastic.

 

Good. I am glad you recognize that fact because 

not everything that happens to us, our children and families is because of gluten.

 

Having OTHER allergies/intolerances  opens a door to so many other things that may have caused a "reaction".

 

I know, I have other food intolerances and mast cell issues. 

 

I am sorry your wee one is not feeling well, but the science speaks volumes. And Dilettantesteph would be the first to agree that the science is important. 

weluvgators Explorer

I think it is fair to note here that our daughters only known allergen is gluten.

kareng Grand Master

I think it is fair to note here that our daughters only known allergen is gluten.

 

Yea... it sounds like it can be hard to figure out what exactly someone is  allergic to.  Sounds like tests aren't reliable.... its just sort of an elimination/observation thing.

weluvgators Explorer

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

kareng Grand Master

And 9 years of elimination/observation testing, amongst other medical monitoring, has produced a single allergen for her, gluten. Yes, one can develop new allergies at any time. But her reaction was consistent with her past responses to gluten exposure. We have never observed these reactions in response to anything else. Her doctor kept asking, are you sure it isn't gluten? And with our diligence, I kept insisting I couldn't think of a gluten source. It was her insistence...it looks like gluten....that kept my mind open to the possibility and produced relief and a road to recovery for my child. The full text article of this case study helped me shape my opinion and reaffirmed the doctors initial response to our troubles.

 

 

And that points out the big difference between Celiac and wheat or other allergies, doesn't it?  Sometimes, contact is enough to give you the allergic reactions like stuffy nose and rashes.  And it isn't like, when you are trying to figure out what a kid is allergic to, you say "Here, Kiddo.  Suck on this piece of metal or plastic & let's see what happens"   :lol:   You just have to figure it out as it comes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,433
    • Most Online (within 30 mins)
      7,748

    Caty
    Newest Member
    Caty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.