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I Got Glutened...ugh


luvrdeo

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luvrdeo Apprentice

I let a friend cook an extravagant dinner for a group, she knows I have celiac...but something slipped in there obviously.  This was LAST Sunday...as in, the 13th.  It took a few days before I knew what was going on...but then it hit me, and hit me hard.  And still is.  I've been gluten-free for over a year now...this has to be my biggest unknown slip-up, and I'm miserable!  My stomach is making noises it never should.  Food is literally running out of me.  It's been almost 2 weeks...anything I can do to ease the "pain"??  I thought it would be out of my system by now!  Dang food anyway...


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flowerqueen Community Regular

I've had a similar experience recently and the only thing that helped me was gluten and wheat free slippery elm (in capsule form). Hope this helps. Good luck. Hope you feel better soon.

notme Experienced

i am right there with you - not last saturday, but the saturday before we went out of town and one of the places we ate at (yeah, i broke my own rules - sick of hearing 'we're hungry, where should we eat" so i did the 'find me gluten-free' app (which is actually pretty good on the phone - i thought it was better than the website) and let them pick some places - MISTAAAKKE!)  evidently glutened me.  i am just starting to feel a little better today  :(  this thing is soooo miserable.  my digestive issues weren't as bad as the neuro ones this time.  i am going to take that as i am doing pretty good with healing after 3 years lolz - but - i thought it might go away sooner(it's 14 days for me)  but i am still dragging and staying pretty close to the bathroom :( and bed :( 

 

hard to believe i used to feel like this (or worse!) all the time...  wait it out, be gentle on your insides as far as foods, drink water, for me,. hot showers maybe, i guess mostly time.  feel better soon!  :)

IrishHeart Veteran

When I have been hit, I double the probiotics for a week  (dose in morning, dose at bedtime) and it knocks down the inflammation

and I drink a lot of water. Take it slow, rest. It's all we can do.

 

Time heals.

 

I eat mostly carby stuff (I know, fattening) but toast with jam  just makes me feel better and then, just ride it out.

 

Sorry, hunny ((HUGS))

luvrdeo Apprentice

Thanks for all the good advice, and support!  I know we all try hard to be super careful...but sometimes it happens!  I really need to get back on a good probiotic...I used to take it religously, but have slacked lately.  Hadn't heard of the slippery elm...I'll look into that too!  I am just sick of having to run to the bathroom 100 times a day...gets old!! :angry:

nvsmom Community Regular

I've heard papaya extract (papayne sp?) can be helpful but I think after two weeks, it wouldn't do much.  :(

 

L-glutamine is helpful in healing muscular linings (ie. the intestines). That might be one to try. It's usually in health food stores.

 

I hope you turn a corner this weekend.  (hugs)

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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