Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Have Casein. 'pure' Whey Ok?


cornbread

Recommended Posts

cornbread Explorer

I read somewhere that milk has two proteins - casein and whey. I have a reaction to casein. Does this mean I also have to avoid whey? I have just ordered some protein bars made by BioGenesis which claim to be both gluten and casein free (as well as corn and soy free). However the ingredients list includes:

- whey protein concentrate

- whey protein hydosylate

- whey crisps

So now I'm confused! I have googled 'casein-free whey' and it seems that such a thing does exist. I guess they split the two proteins somehow. See here: Open Original Shared Link and click on 'what is whey' - it says, "Whey is the liquid part of milk remaining during the cheese making process. The protein casein is curdled out during the process and the milk serum remains." So it sounds like whey doesn't always = casein too. Can anyone shed any light? :huh:

Also, I made a curry last week and used casein-free ghee. I didn't know such a thing existed, but it does and I didn't get caseinated! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

I guess nobody knows then! My protein bars have arrived - about to try one. Will report back as to whether or not 'pure' whey contains caseine (or at least, enough to bother me).

cornbread Explorer

Well I'll tell you one thing, they're delicious... :D

tarnalberry Community Regular

Much like the use of wheat starch, it's a question of "did you really separate the protein?". I won't use whey, myself, as the contamination question concerns me too much, but if you're not reacting to it, that may be the answer for you.

Claire Collaborator

Whey is the serum or watery part of milk that is separated from the curd in making cheese

There ae two main proteins in milk - casein and whey. Whey protein is derived from he process where milk is turned into cheese. The milk protein whey is separated from the casein protein.

Seems like contamination would be an issue.

Claire

cornbread Explorer

I don't *think* I reacted... I wanted to give it a few days before I posted as such. It was weird - when I opened the wrapper, before I'd even taken a bite my heart started racing! It was totally psychological, knowing that one bite might make me ill.

I don't think it did, although it's been a little confusing as I managed to gluten myself last night. I think it was contaminated buckwheat. Serves me right for trying to venture back into the land of grains!

I am going to give the protein bar another go anyway. My reactions to stuff is usually fairly immediate so I'm 99% convinced the bar was fine. Also at this stage I still don't know for sure if it's casein or lactose that I'm reacting to - just ordered an enterolab casein test to find out. However, I agree with you in that it's still dairy, and after all the research I've been doing, I really don't want that stuff in my body, allergies or not! Once my low carb needs have been met I will switch back to the Organic Food Bars.

Claire Collaborator
I don't *think* I reacted... I wanted to give it a few days before I posted as such.  It was weird - when I opened the wrapper, before I'd even taken a bite my heart started racing!  It was totally psychological, knowing that one bite might make me ill.

I don't think it did, although it's been a little confusing as I managed to gluten myself last night.  I think it was contaminated buckwheat.  Serves me right for trying to venture back into the land of grains!

<{POST_SNAPBACK}>

Just a reminder. Buckwheat is not grain - in spite of the unfortunate name.

"a member of the genus Fagopyrum; annual Asian plant with clusters of small pinkish white flowers and small edible triangular seeds which are used whole or ground into flour

"

Commercial buckwheat can get contaminated in processing, of course. There are safe sources. Claire


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Ahh of course - you're right. I read that here before. Sorry! :ph34r:

cornbread Explorer

My casein test kit from Enterolab arrived, so I figured now was as good a time as any to risk a caseining and try another 'casein free' whey bar! Ate the bar 45 mins ago. Have a low level headache and shoulder/back ache that came on within 15 mins of eating it. 15 mins after that I got heartburn. Nothing reeeally bad - not enough to take a painkiller or gaviscon - but it's there none the less. It may not be the whey though, the bars are 'gluten-free' but have that 'produced in a facility that also processes.... blah blah blah' disclaimer on them. That could be the reason, or it could simply be that I'm eating the first thing in days that contains non-natural ingredients. I've been eating just fish, meat and veggies and suddenly I throw something in my body with gums and acids and whatnot. Either way, I think the rest of the box will be donated to my husband low-carb snack cupboard!

Oh great, now the headache is really bad. Experiement over! :lol::rolleyes:

Bette Explorer

Claire Collaborator
I think it was contaminated buckwheat.

Cornbread I also react to buckwheat.  I have tried the brand Arrowhead Mills twice now and got real sick both times (my daughter also, but her reaction is over in a day or 2, mine took more than 2 weeks both times). I loved the stuff too, on the package it states gluten free. What brand did you use? I suspect there might be some contamination issues going on.

<{POST_SNAPBACK}>

I would bet on contamination. Find another source, it is too good to pass up. That is especially true when you have diet limitations. I have eaten Buckwheat for ages without any problems and I can't tolerate a piece of bread. Claire

cornbread Explorer

My buckwheat was actually part of an organic 'live' granola made by 'Go Raw'. Ingredients: Sprouted Organic Buckwheat Groats, Sprouted Organic Flax Seeds, Organic Raisins, Organic Date. The packet said 'No Wheat/Flour' but didn't say gluten-free. They make their products by hand, so the cross-contamination could've happened during mixing/packing even if the buckwheat itself was safe. Silly of me to risk it but I really wanted to try something new. :(

Feeling much better now though, fortunately it was only a day long one. Probably because I only tried about 3 pieces. :rolleyes:

  • 6 years later...
kitchen-chemist Newbie

I've used Arrowhead Mills Buckwheat to make pancakes and felt kind of ill afterward. I'm insanely sensitive to CC, so it could have been that. I've started to avoid ANYTHING that says "made in the same plant as" unless it's verified kosher or says they use good practices, which means they clean the lines in between or have dedicated lines.

kitchen-chemist Newbie

I ran across this Open Original Shared Link:

I really, really, miss cheese. I've been gluten-free for about 18 months and dairy free for about a year. I can't eat potatoes or avocados, as they both have chemicals that exacerbate inflammation. I can eat pork, but not in large amounts. The high intrinsic levels of arachadonic acid in pork can worsen the inflammation in the gut, as arachadonic acid is part of the inflammation cascade. I haven't had money to do the Enterolab testing yet, but trial and error elimination diet has pretty much confirmed in my mind that casein hates me. Has anyone heard of this or tried it?

kareng Grand Master

You know you are commenting on a 7 year old thread? We have more current discussions on casien intolerance & brands of buckwheat with people who are still on the board.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748

    sbr
    Newest Member
    sbr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.