Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reliv? (a Nutritional Food)

nettiebeads

Recommended Posts

nettiebeads Apprentice
nettiebeads
Posted

My brother and his wife and distributers of Reliv - a supplement that is to better your life. I'm kind of toying with the idea of trying the Reliv Now and an energy booster. Has any one with celiac had experience with the product? I was at the sales pitch last night - there are different products by this company. The Reliv classic had oat bran - so I said that product was out for me. Another product had pearl barley - again, that's out for me. So my db and sil are telling me that there are celiacs who are involved with Reliv who have been "cured" and that after I've been on the Now product I'll be able to tolerate the other products that I won't touch at this point in time. Once you have celiac, you have celiac. Period. I know that. But to be told by people I thought who cared that I'll be able to ingest things that my body currently reacts to very negatively kinda got to me.

A young man was there who's been healed of allergies and called celiac an allergy. I corrected him and said "autoimmune disease". Got sort of a whatever from him. But he agreed w/my db and sil that the pearl barley wouldn't bother me!!! I don't doubt that the stuff helps people - but I'm not going to ingest anything that I'm not sure of. When in doubt, do without.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You are right and there are very wrong. That kind of stuff is annoying!

skbird Contributor
skbird
Posted

OK, I'm trying to put this tactfully, but remember they are distributors, which means they make money off selling it. Please be careful there. You can't have barley, you know that, and you also know it's autoimmune so it's not going to go away.

I'm sorry, that must be awkward.

Take care

Stephanie

confusedaunt Newbie
confusedaunt
Posted

I don't know all the ins & outs, but my parents also bought into Reliv. There are some amazing testimonials with that company. I know that my father (who was diagnosed with prostate cancer in 02) definitely feels better when he uses it. Not that it will ever cure him, but I think it definitely makes him feel better. I would ask your brother for a list of ingredients & ask your doc.

julie5914 Contributor
julie5914
Posted

I doubt that they would knowingly lie to you just to sell their product - they probably believe what they are saying both because of testimonials about the product and little knowledge about celiac as an autoimmune disease and not an allergy. It may very well make people feel better, but I would check and see what studies may have been done on it by skeptics to get the full spectrum. People could be getting a good mix of vitamins and minerals that works and makes them feel better, but they could be having the placebo affect and simply need to believe that it works because they have already spent their money.

nettiebeads Apprentice
nettiebeads
Posted
  • Author
I doubt that they would knowingly lie to you just to sell their product - they probably believe what they are saying both because of testimonials about the product and little knowledge about celiac as an autoimmune disease and not an allergy. It may very well make people feel better, but I would check and see what studies may have been done on it by skeptics to get the full spectrum. People could be getting a good mix of vitamins and minerals that works and makes them feel better, but they could be having the placebo affect and simply need to believe that it works because they have already spent their money.

<{POST_SNAPBACK}>

You are right, there is a big difference between empirical evidence and anecdotal stories. We had dinner out Fri with the families and I sat next to my brother. As I handed my dining card to the waiter my brother is saying under his breath 'if you were on reliv, you wouldn't need the cards'. I didn't respond to that. And at this restaurant the serve fresh baked bread sticks while you wait for the entrees to come out. So he's waving the basket of bread at me chanting 'wheat....wheat....wheat'. I found that juvenile, but I ignored that also; but it did hurt - my own brother :( . I get that from a coworker but he's a pain all the time so him I can tune out. So I've decided that next time db brings up reliv and celiac I will ask for empirical evidence and also tell him that I don't want to hear reliv and celiac again in the same sentence. End of subject.

And thanks to everyone for your responses and caring. This is the greatest group of people anyone could ever wish for - disease or no disease! :wub:

Guest nini
Guest nini
Posted

OK, I've been WAITING for this one... Two and 1/2 years ago when I was first dx, I had a client that was selling Reliv and she sold me on it... I tried it and boy oh boy did it not only NOT HELP but it was expensive.

and it made my symptoms much worse because it IS NOT gluten free. All that about it curing Celiac is just a bunch of crap made up by the inventor/investor in this product line. Claims that it can cure are just bogus.

Tell your BIL that there is not enough scientific evidence about Reliv, BY REPUTABLE SOURCES that confirms their claims and that you PERSONALLY know a celiac that tried it (me) and it DID NOT help.

Stuff like that makes me really angry when they say "under their breath" that if you were doing such and such you wouldn't need blah blah blah...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
  • Author
OK, I've been WAITING for this one... Two and 1/2 years ago when I was first dx, I had a client that was selling Reliv and she sold me on it... I tried it and boy oh boy did it not only NOT HELP but it was expensive. 

and it made my symptoms much worse because it IS NOT gluten free. All that about it curing Celiac is just a bunch of crap made up by the inventor/investor in this product line. Claims that it can cure are just bogus.

Tell your BIL that there is not enough scientific evidence about Reliv, BY REPUTABLE SOURCES that confirms their claims and that you PERSONALLY know a celiac that tried it (me) and it DID NOT help.

Stuff like that makes me really angry when they say "under their breath" that if you were doing such and such you wouldn't need blah blah blah...

<{POST_SNAPBACK}>

THANKS nini!!!! I really appreciate your response. What I hate is that for nearly a decade my brother and his wife had been very understanding and very careful whenever there was a family get together at their house. Now they've changed and make me feel that since I still have celiac it's MY fault. Autoimmune is forever! Sheesh! Thank goodness my other in-laws aren't so judgmental. (well, all but one and her special diet is very important - post bariatric surgery. She doesn't mind inconveniencing everyone else for her needs, but reverse the role and....) I figured that the next time Reliv is brought up I'll ask for the published article in JAMA (I know there isn't one :P )

Guest nini
Guest nini
Posted

Yeah! You go ask for that published article in JAMA! Sheesh... I'm sorry they are being so pushy about this product...

I'm sure it's helped a lot of people, but it is extremely dangerous for them to make a claim that a GLUTEN CONTAINING product can CURE CELIAC???!!!!! WTF?????!!!!!

Good luck with that.

tarnalberry Community Regular
tarnalberry
Posted

Have you tried telling him "Reliv will not change my genetic code. Hence, it will not sure celiac disease." Saying it's autoimmune may not be enough for him to make the connection on his own. Other than that, I think your approach of ignoring it is exactly the right way to go at this point.

  • 4 years later...
gf4422j Newbie
gf4422j
Posted

I know Reliv's Fibrestore has Oatbran in it. I'm gluten intolerant and cannot take the Fibrestore but have no symptoms on the Classic. The soy they use comes from a source that is NOT genetically engineered. It is a higher grade than you would find in the market place.

THIS WAS ON THE LABEL:

Reliv Classic Other Ingredients: Soy Protein Isolate, Soy Flour, Brewer

psawyer Proficient
psawyer
Posted

Reliv Classic Other Ingredients: Soy Protein Isolate, Soy Flour, Brewer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    yfuvhg
    Newest Member
    yfuvhg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.