Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sister Doesn't Understand


ryann14

Recommended Posts

ryann14 Rookie

Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand.

Thank you, this website is awesome


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I think your mom should lay down the rules to your sister. It is your mom's house. Does your mom " believe" your diagnosis and cc, etc?

For your boyfriends mom, does your boyfriend " get it"? Maybe he could speak to her first? Or the two of you together? For myself, I wouldn't expect her to fix food for me. But I would want her to understand why I brought my own food for get- togethers.

ryann14 Rookie

I think your mom should lay down the rules to your sister. It is your mom's house. Does your mom " believe" your diagnosis and cc, etc?

For your boyfriends mom, does your boyfriend " get it"? Maybe he could speak to her first? Or the two of you together? For myself, I wouldn't expect her to fix food for me. But I would want her to understand why I brought my own food for get- togethers.

Yea,its my mom's house and my mom has told her thst se needs to stop it but my sister says thatit isn't that bad and if it was then i would move out but i just had surgery (unrelated to celiac) but i can't move just yet. It seems like she doesn't care.

kareng Grand Master

Yea,its my mom's house and my mom has told her thst se needs to stop it but my sister says thatit isn't that bad and if it was then i would move out but i just had surgery (unrelated to celiac) but i can't move just yet. It seems like she doesn't care.

What I'm saying is...if she isn't following your mom's rules, she should move out. But that is for your mom to decide. If your mom thinks the behavior is OK , you will have to work around it. Maybe lock up your safe food? Look at the links on this thread and show them to her and your mom?

https://www.celiac.com/forums/topic/105148-amount-of-gluten-in-single-small-bread-crumb/

KCG91 Enthusiast

Hard as it might be, it's probably worth giving it your best shot to get your sister and boyfriend's mum to understand now. Although my flatmates have been fine with some of the changes I made, I didn't really spell it out to them when I was diagnosed a few months ago because I didn't want to cause too much fuss. Now I can see that there are things they need to change but it's harder to tell them that they're doing it wrong because I let it slide at the start... Just a thought! Hope you can get her to listen. 

Neon rainbow Newbie

Argh, understand your frustration completely.

My partner and I were both living with my dad, step mum (my sb and his mrs too) when I first went gluten-free. So hard to get then too understand, my Stepmum after 6months finally realised I wasn't faking it, and I do get very ill.

Some people just don't want to look past thier own nose.

My dad brushed it off, but I did all the cooking so he just had to deal haha. He still doesn't quite understand what gluten is, and needs his glasses to read labels but he tried.

frieze Community Regular

Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand.

Thank you, this website is awesome

it seems to be purposeful, some jealousy or other psych things going on?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,734
    • Most Online (within 30 mins)
      7,748

    Marypoole
    Newest Member
    Marypoole
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.