Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long For Results?


mshanson3121

Recommended Posts

mshanson3121 Rookie

Once you went gluten-free, I'm wondering how long it was until you saw consistent improvements in the areas of:

 

sleep?

bowel habits (specifically chronic constipation, floating stool and mucusy stool)

behaviors

sensory issues

gassiness


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

Everyone is different for us my DD was 7 at the time with completely atrophied Villi .

Sleep -1-2 weeks

Bowels - mildly better in 2 weeks but she had underlying issue's with Lactose( we didn't realize for 2 yrs)  and a undiagnosed  Thyroid problem 

Behaviors - they got worse before better , almost 2 months

sensory issue's - about a year

Gassiness -  years due to lactose intolerance and Thyroid problems

 

If I could go back I would immediately cut out as much lactose as possible to get a better picture in the beginning. We switched to Lactaid and hard cheese or lactose free cheese and eating yogurt at near room temperature and it's made a huge difference almost immediately. 

emsimms Apprentice

Everyone is different for us my DD was 7 at the time with completely atrophied Villi .

Sleep -1-2 weeks

Bowels - mildly better in 2 weeks but she had underlying issue's with Lactose( we didn't realize for 2 yrs)  and a undiagnosed  Thyroid problem 

Behaviors - they got worse before better , almost 2 months

sensory issue's - about a year

Gassiness -  years due to lactose intolerance and Thyroid problems

 

If I could go back I would immediately cut out as much lactose as possible to get a better picture in the beginning. We switched to Lactaid and hard cheese or lactose free cheese and eating yogurt at near room temperature and it's made a huge difference almost immediately. 

What does the yogurt at room temperature accomplish? Is it just easier on the system than cold yogurt?

mshanson3121 Rookie

Is it common for behavior to get worse initially when you switch to gluten-free?

greenbeanie Enthusiast

Once you went gluten-free, I'm wondering how long it was until you saw consistent improvements in the areas of:

 

sleep?

bowel habits (specifically chronic constipation, floating stool and mucusy stool)

behaviors

sensory issues

gassiness

My daughter's sleep improved within days (fell asleep easier, and less twitching and thrashing around in her sleep). She'd had huge, loose stools rather than constipation, but that started to improve within days. I think it was about 3-4 weeks before they stopped floating. Her sensory issues, which had been pretty acute, also improved steadily starting in the first week, but it was a few months before people who didn't live with her noticed a big difference. She's now been gluten free for six months and is still somewhat sensitive to sound and scratchy fabrics, but it's much better and still improving. I have to say, the gassiness hasn't changed much...but it doesn't seem painful or uncomfortable for her.

 

As for behavior, we did have a roller coaster with that. The first few days were great, but then things went downhill for a week or two. I assumed it was gluten withdrawal, and we just rode it out. There was steady improvement after that. Right before diagnosis, she had 5-10 tantrums almost every day. Within a month, she had two tantrums a day at most, and often none.

 

Overall, it pretty much felt like she had colic for the first four years of her life, but within two months she seemed well within the normal range of behaviors and temperament for a child her age.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.