Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post Here To Join Celiac.com's Online Support Group With Live Chat Meetings! (Free)

Scott Adams

Recommended Posts

Scott Adams Grand Master
Scott Adams
Posted

This is the topic for the new "Celiac.com Online Support Group". We hold regular monthly online meetings in the forum's "Live Chat" area (see link in top menu):

 

To join: Create a forum account, then make just post in this topic--be sure to click "Follow This Topic" at top right.

 

Our goals:

  • To help our members adjust and deal with being gluten-free;
  • To help our members adjust and deal with the effects of celiac disease and gluten sensitivity;
  • To provide a friendly and convenient way for our members to meet and exchange information online, including regular live chat support group meetings.

Next Meeting Notice:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 81
  • Created
  • Last Reply
mendylou Rookie
mendylou
Posted

 

I've been thinking about starting a "Celiac.com Online Support Group" which would hold regular online meetings here in our "Live Chat" area? I am hoping there are others out there who might be interested. Please let me know if you are:

  1. Interested in joining such a group;
  2. Interested in helping to lead or otherwise help out with such a group;

 

Iwould be interested in joining an online support chat group

Celtic Queen Explorer
Celtic Queen
Posted

Would be interested in joining.  Unfortunately don't have the time to lead.

moosemalibu Collaborator
moosemalibu
Posted

I would be interested in joining the group. I don't know about being a lead, though. I'm new to the celiac disease game. ;)

  • 2 weeks later...
Scott Adams Grand Master
Scott Adams
Posted
  • Author

I nominate Jamie (moosemalibu) to help lead our group. Also, I am starting to promote this more, so hopefully we'll have more folks join by posting here.

GF Lover Rising Star
GF Lover
Posted

Hi Scott, Did you have a particular day and time in mind?  Weekly, Monthly?

 

Colleen

moosemalibu Collaborator
moosemalibu
Posted

I nominate Jamie (moosemalibu) to help lead our group. Also, I am starting to promote this more, so hopefully we'll have more folks join by posting here.

 

Haha - I can certainly try. Do we have organized agenda's/topics to discuss? How do we want to organize it? A date/time and then just have at it. What about a journal seminar? Like - read this article and then discuss kind of thing...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted
  • Author

All good questions...at the moment I am thinking of using this thread as the ongoing discussion thread, and having one meeting per month, at least to being. If members later decide they want to meet more often that will also be possible, as the chat area is always open.

 

It may be too early yet to formulate the first meeting's agenda, as we really don't have enough members. Hopefully this will change soon as I am ramping up promoting this new group. I think we need at least 20 members before we can have a meeting.

GF Lover Rising Star
GF Lover
Posted

Scott,  would you like interested members to propose topics that interest them?  May help you plan agendas. 

 

Colleen 

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Yes, this would be best I think. The first step is to see if there is enough interest in the idea of a "Celiac.com Online Support Group."  Does this sound like a good idea for a name?

Scott

 

Scott,  would you like interested members to propose topics that interest them?  May help you plan agendas. 

 

Colleen 

moosemalibu Collaborator
moosemalibu
Posted

Forgive me.. maybe I misunderstood the concept. Is this a LiveChat functional group or a topic posting group? Either sounds great - but the livechat would be neat. 

 

The name sounds great!

Scott Adams Grand Master
Scott Adams
Posted
  • Author

The group will have both--this thread for posting, and live chat meetings (see the "Live Chat" link at the top of the board). So all meetings will be live, and participants can communicate in real time. I believe the live chat meeting content can also be archived. 

GFinDC Veteran
GFinDC
Posted

Once a month sounds possible.  I'm in.

RevKate Newbie
RevKate
Posted

I'm newly diagnosed, and still adjusting (healing and fighting leaky gut)...unfortunately there are no Celiac support groups locally so my hubby and I are muddling through this process on our own. We live in a small community with very limited grocery shopping options, etc. so any support online or otherwise would be greatly appreciated...

 

  • 2 weeks later...
jackiejasbedt65 Newbie
jackiejasbedt65
Posted

I would greatly appreciate a online support group, as the small town I live in has no group here.  So I'm in.

Scott Adams Grand Master
Scott Adams
Posted
  • Author

We've got the start of a group...but we do need more members to begin. I'll keep promoting it the group.

SkyBlue4 Apprentice
SkyBlue4
Posted

I love the idea of an online support group!

tonalynn Explorer
tonalynn
Posted

This sounds like a great idea! Count me in!

julissa Explorer
julissa
Posted

I've been away from here for a while, but I am interested as well. thanks..

StephenB Newbie
StephenB
Posted

Count me in.

lcdconsumer Newbie
lcdconsumer
Posted

We've got the start of a group...but we do need more members to begin. I'll keep promoting it the group.

Please count me in also.  ABSOLUTELY HEALTHY 59 year old, certified fitness trainer, suffered a heart attack September 30, 2012 resulting in 8-stents!  Sickness followed for 7-months by 35+ pounds of uncontrolled weight loss.  Blood test resulted in severe celiac sprue (redundant).  I feel like the only one in the world suffering from this.  I have numerous challenges, not the lease of which is the fact that we cannot determine how much heart medicine my body is actually absorbing.  Anyway, THANK YOU, THANK YOU, THANK YOU for providing an up-to-date communication vehicle for those of us with this crazy disorder.  Prayers go out to everyone!

Googles Community Regular
Googles
Posted

I am interested. I would be able to make the on line chat as long as it isn't when I'm working (which is way too many hours.)

Sue B Newbie
Sue B
Posted

I would be interested.  I am always interested in up to date information.

 

BZBee Apprentice
BZBee
Posted

I'll join, there aren't any local support groups in my area.

Scott Adams Grand Master
Scott Adams
Posted
  • Author

Excellent...it is good to see more people joining. For anyone who can't attend a live meeting this thread will act as the non-live discussion area, so everyone can basically interact here between live chat meetings. If we can get 10-20 more members we can plan our first live chat meeting.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.