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Gluten Guy From Tallahassee Fl

CeliacMe

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CeliacMe Rookie
CeliacMe
Posted

There is a brave man, known as "gluten guy" to the students at FSU's School of Hospitality Management. I would like to thank you for all that you have done to educate the resturants about gluten-free through your bravery. I bet you are a big part of the reason why chain resturants are offering gluten-free menus. If you are out there, Thank You.

  • 3 months later...
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floridanative Community Regular
floridanative
Posted

I too am in need of 'the gluten guy of Tallahassee's' help. I've never heard of him before reading this post but my Mother is getting tested for Celiac next week and if she has it, I need to point her in the direction of help down in FL. If no one knows 'the gluten guy' from Tall., do any of you know if there is a support group for Celiacs there? Or even in Panama City, FL?

  • 1 year later...
Guest KG in FL
Guest KG in FL
Posted
I too am in need of 'the gluten guy of Tallahassee's' help. I've never heard of him before reading this post but my Mother is getting tested for Celiac next week and if she has it, I need to point her in the direction of help down in FL. If no one knows 'the gluten guy' from Tall., do any of you know if there is a support group for Celiacs there? Or even in Panama City, FL?

Hey floridanative, I am in Destin, FL. I've been hoping there would be anyone close to me posting but there hasn't yet. I know there are celiacs right around me by the new availability and sale of gluten-free products at the supermarkets and a the healthfood stores here. I don't know of glutenguy, but my son (not celiac) will be starting school at FSU soon so I'll be there a lot. Is there a group there? Hey, and I am a FL native too!!

floridanative Community Regular
floridanative
Posted

Hi KG - as far as I know there still is not a group in Tall. The woman who ran one previously apparently moved. Very few people in town are dx'd with Celiac as far as we can tell. We rarely eat out when in Tall. but if we do, we go to Bonefish or Carrabas which at least offer decent gluten-free menus. Sorry not t be of more help but since you're in Destin, do you know of any places to eat in Orange Beach, FL? We're going down for a few days before heading to New Orleans, and we're hoping not to cook every dinner in the condo while at the beach.

ReneCox Contributor
ReneCox
Posted

im 19 and have lived in Tallahassee, FL my whole life. Ive never heard of gluten guy but I would def. like to meet him! The only places I eat out are at outback, bonefish, and Teds Montana Grill.

  • 6 months later...
GFinNC Newbie
GFinNC
Posted
im 19 and have lived in Tallahassee, FL my whole life. Ive never heard of gluten guy but I would def. like to meet him! The only places I eat out are at outback, bonefish, and Teds Montana Grill.

Where do you shop for gluten-free food? Do regular grocery stores (Albertson's and Publix) have gluten-free food? I've been spoiled with Whole Foods....

  • 3 months later...
Jeff Swartz Newbie
Jeff Swartz
Posted

I am also a celaic in Tallahassee.I am 56 years old. I have found no group meeting in Tallahassee, but might be interested in helping one get started.

After fighting for almost 25 years and in failing health [before the dx if celiac], I was finally fired from state work about a year ago.I was a Professional Geologist. I would love to hear from other Celiacs in this area.

Jeff Swartz

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  • 1 month later...
RockHammer Rookie
RockHammer
Posted

Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

  • 2 weeks later...
jparsick84 Rookie
jparsick84
Posted

Eating out in Tally:

* La Fiesta (on Appalachee Parkway) is safe for those with only Celiac. Stick to the corn stuff (chips, tortillas, etc). Ask if anything is breaded before you order it, they're up front with you. Tell them you're allergic to wheat, and that nothing you are served must have touched anything wheat. I've never had any problems there, and they do Happy Hour almost every night of the week, so even if you just want to go for drinks and chips/salsa, it's a great place to go.

That's the only non-chain restaurant I've been willing to try, but if you're looking for some GREAT Mexican food, it's the place to go. :)

RockHammer Rookie
RockHammer
Posted
Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

The next meeting of the still un-named Celiac Support Group serving Tallytown and Enviirons will meet Tuesday May 20 2008 again at the office of Dr John Ness. I hope to see you there.

To join or for info please contact Rockhammer, or email at jswartz.pg@gmail.com.

RH

  • 3 weeks later...
katifer Apprentice
katifer
Posted

i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.

  • 4 weeks later...
Celiac#8 Newbie
Celiac#8
Posted
i was in John Ness' office today (the 20th of May) and he told me that "Rock Hammer" died recently of a heart attack--absolutely horrible. and there isnt anyone in Tallahassee who is taking over the support group right now.

WOW! Did not see that coming when I started to post on here. I was going to ask if you all were still meeting in Tallahassee. That is awful. I just happened across Rock Hammer's posts on the web and was thrilled to see someone trying to get a group together. I'm sorry for your loss to all who knew him.

If there is still going to be a group, I am interested in meeting with you all.

My regards,

Celiac#8

mrsgarner_ela@yahoo.com

jparsick84 Rookie
jparsick84
Posted

Yes, I think there's still interest. It may be hard to rustle up people during the summer, but I know of at least 5 Celiac students at FSU, so maybe we should plan a date once the students come back to town?

And if anyone just wants to get together for dinner one night this summer, PLEASE contact me! (I'm dying for some Outback...)

~ Jennifer :)

taylor- Rookie
taylor-
Posted
Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH :D

Hey guys! so we are officially having a meeting tomorrow! 6:30, at Dr. John Ness' office (directions above) PLEASE come if you can, because we are going to try and make some definite plans for a monthly meeting. thanks so much! if you have any questions send me a message and ill try and check before tomorrow to respond!

  • 3 weeks later...
deb18 Newbie
deb18
Posted

I would be interested in something here. Let me know. deb

  • 2 weeks later...
katifer Apprentice
katifer
Posted

hey just want to update real quick there is a support being led Fall 2008 by a woman named Beverly

Beverly Vichich

bevnurse1@earthlink.net

next meeting 6:30pm Dr. John Ness' office waiting room

  • 1 month later...
rebkin Newbie
rebkin
Posted

If we can help you all with any information regarding living gluten free, or setting up a group - please contact us at: birminghamceliac@hotmail.com, or at our blog site: birminghamceliac.spaces.live.com

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    • AlwaysLearning
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      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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