Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gave Up Gluten And Feeling Sick


WestCoastGirl

Recommended Posts

WestCoastGirl Apprentice

Hey, all. I'm not a diagnosed celiac. I've known for a long time just on  how I react that I am sensitive to gluten so even if I'm not a celiac, I know I should not have gluten. But I've been putting off giving it up.

 

I have Hashimoto's thyroiditis and have been doing a lot of research lately because I've just been going farther and farther downhill. That's a long story all by itself but last week, the day before Thanksgiving, I decided, Why on earth am I torturing myself? There's a known tie-in between Hashi's and gluten intolerance, I am killing myself, I'm stopping the gluten.

 

Well, I have been feeling progressively more nauseated. :( Is this normal? No one else in my family is sick and I haven't eaten anything "weird". I've had a gluten-substitute food maybe once, it was an Udi's gluten-free bagel, I can't recall having any other actual gluten-free subs. All the rest of my food has been "real food," meat, veggies, and I have been having carbs as always (potatoes, rice) if that makes a difference.

 

I have had zero cheats. I know my labels (I've been researching this literally for years). Even on Thanksgiving I had no gluten at all. I didn't miss it. I had turkey with no gravy, a cauliflower and cheese dish that I brought (YUM, we love this dish in my family), salad and a heap of mashed potatoes.

 

I started feeling nauseated yesterday. All day long. I even had some "icky burps" - sorry - but did not throw up. I did have diarrhea. Now today I am totally thrown for a loop. VERY nauseated and I have pretty severe diarrhea.

 

I'm exhausted as ever so far...

 

Anyone have any ideas? I just feel so terrible right now...in every way. Exhausted from the Hashi's, and now stomach sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

A few things come to mind...  How long have you been completely gluten-free?  Often symptoms improve in a short amount of time, but sometimes it takes awhile.  Some have reported symptoms getting worse at first - part of the healing process.

You may also have other food allergies/sensitivities - which is common with Celiac folks.  For example, being sensitive to food in the nightshade family is pretty common - which includes potatoes.

bartfull Rising Star

Sounds like you might have just caught a case of the "stomach bug". It's going around.

kellysensei Apprentice

Yeah, my whole family has been sick with a stomach bug in the past 10 days.

 

It's true that you might get worse before you get better. I'm not a diagnosed Celiac, either, but the first few weeks I was off gluten, I suddenly had a lot of heartburn. I discovered that coconut products don't agree with me. Now, six weeks after going gluten-free, I'm fine.

 

Good luck to you!

WestCoastGirl Apprentice

Thanks, everybody.

 

I think I'll stop nightshades too and see what happens.

 

It could be the stomach bug. My kids had that about a week and a half ago. I just thought i'd have gotten it by now but who knows...touching a shopping cart, being out in public, etc., I suppose I could have sniffled in something!

 

I will hang in there. I appreciate the answers. Oh, it has only been a few days that I've been gluten-free.

GF Lover Rising Star

If you continue to feel poorly after a few weeks, then you might want to look at the thyroid again,  It can be difficult to get it stabilized. 

 

Good Luck with the diet

 

Colleen

MGR Apprentice

Also you mentioned you had been eating some cheesy dish- I get horrendous diarrhoea and bloating when I have any Dariry products which are not dairy free-!! And I have also found that after going gluten free for a while, my lactose intolerance got worse... Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WestCoastGirl Apprentice

Thanks, everyone! Yes, the dish had cheese. I'll try cutting out dairy.

frieze Community Regular

?withdrawl?

WestCoastGirl Apprentice

Oh, can withdrawal be physical like that? With stomach issues?

 

It seems better today so far. :) Crossing my fingers that it was just a bug. But if not, I'll just have to power through this change.

Pegleg84 Collaborator

I was also thinking possible dairy problems, but it could be a bug. Last week I was under the weather and concluded it must have been CC aftereffects, but one of my coworkers had the exact same thing, sooo...

 

Could also be the unfortunate effects of healing, Our guts tend to be fussy for a while. Too much something could have upset it.

 

In any case, good luck and hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    2. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    4. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    5. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,254
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.