Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Supplements


jasonD2

Recommended Posts

jasonD2 Experienced

Hi- I just had followup tests and all my food sensitivities have diminished dramatically since going gluten-free and also taking digestive enzymes and intestinal health supplements. My thyroid panel looked ok and negative for Hasimoto's, but my T3 thyroid is low and my adrenals are under performing so my doc put me on some supplements to treat that.  Thing is the supplements make me very bloated and gassy.  One supplement that has been a life saver is activated charcoal. i take it with foods i know will cause gas (even dairy if its in a dish) and it really helps.  If i take activated charcoal with these new supplements or maybe 20 min before i take the supplements it should help with the gas but could it possibly affect the efficacy of ingredients in the supplements?  would appreciate any input.  

 

Also my Vit D has been low for a while so I am now taking 10,000 IU daily - doc feels that could also be contributing to my dysbiosis and GI problems.

 

thanks

 

Jason


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Wow!  That seems like a lot of Vitamin D!  I'm deficient too, but only take 2,000 i.u./day.  I would cut back on the Vit. D.  It will build back slowly.  Remember, Rome wasn't build in a day! 

 

I'm always leary about exceeding "normal" standards on supplements without a doctor's approval or supervision.  

 

The charcoal from what I have read and what my doctor said, that it can interfere with absorbing good nutrients.  It's to be used only sparingly.   If you are getting lots of gas, then you shouldn't be eating foods or taking supplements that cause it.  Gas can be a symptom that something is wrong.  Listen to your body.

 

You were diagnosed with many food intolerances and unfortunately, they don't always go away (I feel for you there since I'm allergic to milk, and intolerant to garlic/onions, eggs, mushrooms, nuts and now Xanthan Gum.)  My food allergies and intolerances have been with me years and years before my celiac disease diagnosis with the exception of the Xanthan Gum and they haven't dimished since going gluten free.  

 

Finally, when my doc (MD) prescribed supplements, we always took baby steps when I was introduced to them.  For example, take one pill every other day, and then daily and then increase to two a day.  Stopping or cutting back down when symptoms develop.  He also recommended stopping all supplements for a period of a month to give my body a rest.  Also, I'd always split a multi- for better absorption.  

 

Hope this helps!

pricklypear1971 Community Regular

From what I've read about activated charcoal it binds everything...which is why some people use it after a glutening to relieve symptoms. I doubt it's a good idea to take it on a regular basis if you already have nutrient absorption issues.

I understand you're trying to relieve distress, but from what I've read, charcoal probably isn't a long term solution.

jasonD2 Experienced

Well my food sensitivities have greatly diminished - probably do to healing my gut and taking digestive enzymes and HCL with all my meals.  I use the charcoal when im in situations where i dont want to be bloated (i.e. date, social, etc).  Problem now is i have supplements i need to take but they are very bloating and im not sure what else to do.  As for Vit D- it is non toxic and you can take 50,000 IU's a day - im just ramping up since im insufficient and my doc said 10,000 a day is fine.  i will drop to 5000 in the summer when im out in the sun more 

cyclinglady Grand Master

Isn't it 50,000 i.u. per week for about 8 weeks?  I'm not a doctor, but your current dosage seems excessive.

frieze Community Regular

Vit D, suggested 1000 IU for every unit of 10 you want to raise it....10000 is probably a little heavy, but shouldn't be problematic.  Take that routinely, myself.  you make that much with healthy skin exposure to the sun.

cyclinglady Grand Master

Vit D, suggested 1000 IU for every unit of 10 you want to raise it....10000 is probably a little heavy, but shouldn't be problematic.  Take that routinely, myself.  you make that much with healthy skin exposure to the sun.

My bad!  I mis-read and thought Jason was taking 50,000 per day which I really did think was excessive.  Thanks for the clarification.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jasonD2 Experienced

The RDA is 2000 IU a day but you can in theory go up to 100, 000 IU a day without any ill effects.  My doc and i discussed this at length. it just depends what the intent is. Vit D can be megadosed for therapeutic reasons or just to get back to a level of sufficiency 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.