Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problems - Nodule

cristiana

By cristiana
in Related Issues & Disorders

Recommended Posts

cristiana Veteran
cristiana
Posted
  • Author
4 minutes ago, cyclinglady said:

My neck felt normal.  I think all your current issues are related to inflammation of the lymph nodes, etc. from your cold.  Wait a few weeks.  If it is not resolved, then consult your doctor.  

Yes - I can't really feel any discreet hard lumps but I guess the more that one digs around (not a good idea) the more weird stuff one finds - no wonder my neck hurts.  I did have a severe mouth infection just over a month ago and then colds so I suppose it is likely things just haven't settle down yet.  Thank you for that suggestion about waiting - it's comforting to think it might just be these infections.  I've never had swelling there before so its all a bit new to me - apart from really bad mumps when I was little!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I had a tooth infection (root canal failure), the flu (the knock you on your A*# kind), a failed root canal re-treatment, a tooth extraction and bone grafting, a cold, a re-occurrence of the bacterial infection (or never resolved) -- all without the aid of OTC pain killers as I am allergic to ALL of them in the last 8 weeks.  My face is still a bit swollen, but I am healing -- slowly.  

It is hard to be patient, but things do improve each day.  I never worry about my thyroid.  I do not worry about getting cancer.  I do worry about getting glutened as I have made great progress in the last four years.  

So, give your self time to heal.  Relax.  Read a good cheerful book (like the No. 1 Ladies Detective), or help someone else.  It will take your mind off feeling yucky!  I am going to practice my flute for a few minutes.  

Hugs!  

ironictruth Proficient
ironictruth
Posted
3 hours ago, cristiana said:

Hi ironic - thank you so much for sharing, what it is not to feel alone! But that said I'm sorry you are in this fix as well.  It is so interesting that you have had pain. I do feel sorry that you've had to wait around like this, wondering what on earth is going on.

I always imagine something else is going on with my thyroid other than multi-nodular goiter,  although so far my TSH readings have been normal.  But as my friend icelandgirl and I have often remarked, it seems there is always something going on... Something to be wondering about. That in itself can be pretty exhausting.

I was told by a dentist a while back I ground my teeth - but my husband has never said anything about it, I imagine that's something that someone else would hear?  Is it a thyroid symptom or just stress?:unsure:

Teeth grinding can cause pain in the neck/muscle. 

I hope you get some answers soon!

icelandgirl Proficient
icelandgirl
Posted
4 hours ago, cristiana said:

Hi Icelandgirl

Thanks so much!  I hope it turns out well, too.

Here in the cash strapped NHS system they do two particular thyroid tests - I haven't got my readings on me just now but I felt shortchanged when I got them back.  That said I was told if something was amiss it would have been detected.  I'm going to probably ask for a proper referral to an endcrinologist if I can get one.

Unfortunately the health care system here seems pretty reactive rather than proactive so I should really see if I can get my symptoms monitored more closely.

Most likely they did TSH and Free T4.  Free T3 and the 2 antibodies TPOAb and TgAb would be very helpful especially with your nodules.

I have found some very helpful information on this site Open Original Shared Link.  It's kind of like celiac.com, but for thyroids. ☺  You may find some helpful information there.

Here is another link to some good information on thyroid issue and testing:

Open Original Shared Link

Please let us know when you get the ultrasound and if you're able to, insist on more complete thyroid testing!

cristiana Veteran
cristiana
Posted
  • Author

Thank you friends, I don't know what I'd do without everyone on this forum. xxx

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, cristiana said:

Thank you friends, I don't know what I'd do without everyone on this forum. xxx

Hugs!!!!

cristiana Veteran
cristiana
Posted
  • Author

Hi thyroid friends.... Just found my September thyroid results. 

 

Serum TSH level  1.0 miu/L  [0.35 - 5.0]

Serum free T4 level   14.3 pmol/L [9.0 -19.0]

These are the standard NHS tests.  I think I'd only be able to get the full panel done if I failed these - which I haven't. Not sure if that is a good or bad thing!

 

Can anyone tell me if I could still have a thyroid problem apart from multinodular goiter syndrome with these results?

If I have any symptoms it is tiredness and feeling colder than I used to.  That said, my ferritin is always around 9 at the moment so maybe that's why I feel tired?  Oh - I also get v. erratic periods - some months terrible, and other normal.

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

Hello...can you clarify the range on Free T4?  Is it .9-19, 9.0-19?  You want to be between 50-75% of the range.  Looking at Free T3 would be so helpful as that is the active hormone...it's your energy and healthy hair hormone.  It's best to have that one at 50-75% of the range as well.  Having antibodies tested is crucial.  If you have high antibodies, you could have normal #'s on all of your other thyroid tests, but feel bad.  That was my mom.  Perfect thyroid tests, super high antibodies.

Your symptoms do sound like they could be thyroid related.  I know that when my thyroid has gone wonky that I feel exhausted, cold all the time and my anxiety increases.  The problem here is that low ferritin can cause your issues as well.

I hope that helps...any ideas when you will be getting a thyroid ultrasound?

Hugs!

cristiana Veteran
cristiana
Posted
  • Author
14 minutes ago, icelandgirl said:

Hello...can you clarify the range on Free T4?  Is it .9-19, 9.0-19?  You want to be between 50-75% of the range.  Looking at Free T3 would be so helpful as that is the active hormone...it's your energy and healthy hair hormone.  It's best to have that one at 50-75% of the range as well.  Having antibodies tested is crucial.  If you have high antibodies, you could have normal #'s on all of your other thyroid tests, but feel bad.  That was my mom.  Perfect thyroid tests, super high antibodies.

Your symptoms do sound like they could be thyroid related.  I know that when my thyroid has gone wonky that I feel exhausted, cold all the time and my anxiety increases.  The problem here is that low ferritin can cause your issues as well.

I hope that helps...any ideas when you will be getting a thyroid ultrasound?

Hugs!

Hi - sorry - the range is 9.0 to 19.0.

I'll try to edit the original!

C x

PS  My ultrasound is tomorrow. 

icelandgirl Proficient
icelandgirl
Posted

Hi again ?

As of September, your Free T4 was at 53% of the range, so decent.  It could, of course, have changed since then.  Have your symptoms increased recently?  I would say that with your symptoms and a palpable nodule that most likely your values would be changed now.  

Are you able to request having your bloodwork redone?  With the nodule, is there any chance your Dr would order an antibody test just to get a better idea of what's going on?

Let us know how it goes tomorrow!

Hugs!

cristiana Veteran
cristiana
Posted
  • Author

Icelandgirl

I think if things look amiss tomorrow I'll have good grounds to ask for the full panel. 

It is a source of frustration for many in the UK at how difficult it is to get beyond the TSH and T4 tests, helpful as they are.

Maybe this will be the beginning of getting my other odd symptoms sorted!

Thanks so much my friend.

Cxx

icelandgirl Proficient
icelandgirl
Posted
15 hours ago, cristiana said:

Icelandgirl

I think if things look amiss tomorrow I'll have good grounds to ask for the full panel. 

It is a source of frustration for many in the UK at how difficult it is to get beyond the TSH and T4 tests, helpful as they are.

Maybe this will be the beginning of getting my other odd symptoms sorted!

Thanks so much my friend.

Cxx

Absolutely!  Keep advocating for yourself!  I'm thinking of you today, hoping that all goes well.

Hugs!!

cristiana Veteran
cristiana
Posted
  • Author
57 minutes ago, icelandgirl said:

Absolutely!  Keep advocating for yourself!  I'm thinking of you today, hoping that all goes well.

Hugs!!

Thank you all - had the scan.  

Wonderful news - the nodule is fine, in fact, they know it isn't cancerous as it  is now smaller than it was three years ago - so I seem to be going the same way as you, Cyclinglady!  My glands are now normal, the lovely doctor thinks it was just residual swelling from the infections.  I could have hugged her, she checked everything so thoroughly. 

So thank you all for your support - I really didn't think it would go this way.  So glad I had the scan though - better than worrying.

 

 

 

icelandgirl Proficient
icelandgirl
Posted

Wonderful news!  I'm so glad for you and am sure you are relieved!  

????

cyclinglady Grand Master
cyclinglady
Posted

That is great news!  It would be nice to know whether  the reduction  of nodule size (yours and mine) has anything to do with a gluten free diet, or just healing from celiac disease.  Many thyroid websites do recommend a gluten free diet.  I wish they would encourage people to test for celiac disease first!  

Gemini Experienced
Gemini
Posted

I swear the gluten-free diet works wonders with thyroid problems.  I do not have nodules but my thyroid was wonky and I had sky high antibodies until I went on the gluten-free diet.  Good thing the Celiac was discovered or I would have never known how it can help the thyroid.  You are right, cyclinglady......they should tell people to get tested first, considering the higher numbers of people with thyroid disease who also have Celiac.  Ditto for Type 1 diabetes.

Very happy to hear things are going well, cristiana!   :D

cristiana Veteran
cristiana
Posted
  • Author
1 hour ago, cyclinglady said:

That is great news!  It would be nice to know whether  the reduction  of nodule size (yours and mine) has anything to do with a gluten free diet, or just healing from celiac disease.  Many thyroid websites do recommend a gluten free diet.  I wish they would encourage people t

58 minutes ago, Gemini said:

I swear the gluten-free diet works wonders with thyroid problems.  I do not have nodules but my thyroid was wonky and I had sky high antibodies until I went on the gluten-free diet.  Good thing the Celiac was discovered or I would have never known how it can help the thyroid.  You are right, cyclinglady......they should tell people to get tested first, considering the higher numbers of people with thyroid disease who also have Celiac.  Ditto for Type 1 diabetes.

Very happy to hear things are going well, cristiana!   :D

We could be onto something here - maybe we should do some research and publish a paper!

Thank you so much Icelandgirl, Cyclinglady and Gemini for your kind words.  

 

icelandgirl Proficient
icelandgirl
Posted

I agree Cristiana!  My nodule was 5 mm when I had been gluten free for 6 months(that was when it was discovered).  A year later it was 3.5 mm.  I do think that for celiacs, at least, that thyroid problems including nodules are helped by the gluten free diet.

  • 1 month later...
Scuff Apprentice
Scuff
Posted

I had an enlarged thyroid, but no nodules. Dr felt it and ultrasound confirmed. I had so many symptoms of hypothyroid- weight gain, fatigue, hoarse voice-couldn't yell or sing or swallow (still can't swallow, but mostly at the bottom end. Used to not be able to get it past my neck, either) brain fog so that I couldn't form a complete sentence or respond with any timeliness, cold all the time, etc. Dr was in his 70's and old school. He didn't do any further blood tests or anything. Just said to take iodine. So, I started taking iodine. By the next year, different dr, all my thyroid tests came back normal, it wasn't enlarged anymore and most of my symptoms were very much improved. Read "Iodine: Why you need it and can't live without it" Kinda boring and repetitive, but good info. Iodine Crisis by Lynne Farrow is also really good. (She talks more about breast cancer than thyroid. But, the iodine information & history is great.) 

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    2. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    3. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    5. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.