Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New But I'm Not New


MsMarginalized

Recommended Posts

MsMarginalized Rookie

I was diagnosed with Celiac in Oct. 2012 & joined here in Feb. of last year but never became active here because I found another Celiac Forum that I was involved with.  It got shut-down last summer and now I find the need to re-connect.

 

My (then) 16 y/old son was diagnosed with Celiac in Nov. 2012.

 

We live in NE Florida & did join a local Celiac support group but it was meeting too far away for us to keep going (although they've moved their meeting place much closer....might have to go back).

 

My son & I are at our wits end!  I know how to read labels & I do.  I know how to cook gluten-free & I do.  But for some unknown reason, DS & I both keep getting Glutened!  Went back to step one & started reading EVERY SINGLE LABEL on anything we were going to eat (roasted mixed nuts, generic french fries & some generic BBQ sauce were found to contain wheat :( )  But STILL having problems.

 

I fear that the mixed kitchen I'm keeping is the culprit.  I do have dedicated cookware for gluten-free cooking (bought new at time of our diagnosis, I bought RED pots & pans & no-one but DS or I use them for gluten-free cooking only) 

 

I even wear "lunch-lady" gloves when I prepare DH's sandwiches for his lunch.  Although at our last visit to DS's GI Dr., he told us that the ONLY way to get Glutened is by ingestion through the mouth.  I don't know that I believe that totally.

 

Anyway, that's my story (& I'm sticking to it) and I guess y'all will be seeing me around from time to time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Welcome Back!

 

I live alone, but my Celiac uncle is very sensitive to cross-contamination and has done well in a shared kitchen.  It's possible, but can be tricky.  Just wanted to mention - although it sounds like you've figured this out on your own - read EVERY label EVERY time.  Even items you buy every week.  You never know when they might change their recipe.  And the first time I buy anything with more than about 3 items in the ingredient list I Google it to make sure it's gluten-free and if I have ANY doubts I don't buy it until I check with the company directly.  And I pretty much always read the label again before I actually use it - just to make sure I grabbed the thing I thought I grabbed when I bought it.

bartfull Rising Star

It might help to read the Newbie 101 thread. It might be something as simple as someone dipping their knife in your butter after it has touched regular bread. Also, some foods may not have gluten ingredients but if they are processed on the same line as gluten foods, there is a chance for cross-contamination. Kraft foods and Con-gra foods (among others) are committed to keeping us safe - if something with gluten is processed on the same line or facility, they will say so on the label. For instance, Planter's nuts are a Kraft product. No CC unless the label says there might be.

 

You really can't absorb gluten through the skin. The gluten molecule is too large. But you can touch gluten and then rub your lip or pop something into your mouth and get glutened that way. So I think the gloves are a good idea. You can get glutened by crumbs that drop into your silverware drawer. And if you BAKE a gluten cake or cookies, that flour dust will hang in the air for hours. If you breath any in it will get to the back of your throat and you will swallow it. Also, it will settle on everything in your kitchen.

 

Pet food can be a problem too. Not only does the dried food stir up dust, but if your cat or dog eats, then licks himself, then you pet him, you now have gluten on your hands. And there are even some cat litters that have wheat in them.

 

Just a few ideas to consider.

MsMarginalized Rookie

Bartfull-Thank you; yep--every label, every time (my new motto).  I knew about the cat litter (actually saw some at Target the other day) but didn't think of the cat food.

I will pop in to that 101 thread &  see what I can see.

 

NGCooties-Thank you for your reply,

GF Lover Rising Star

Bartfull-Thank you; yep--every label, every time (my new motto).  I knew about the cat litter (actually saw some at Target the other day) but didn't think of the cat food.

I will pop in to that 101 thread &  see what I can see.

 

NGCooties-Thank you for your reply,

 

Hi MsMarginalized, and Welcome to the Forum.

 

We have had some good and informative discussion in regards to Shared Kitchens.  Do a quick search on the Forum.  You may spot some things you haven't considered.

 

Good Luck,

 

Colleen

Lirren Rookie

Drat. Thanks, bartfull!  I just checked the ingredients in my cats' food and the third ingredient is "cracked pearled barley."  As much of a hassle as it's going to be, I'm going to have to transition them to a gluten-free cat food, because they are in my face all the time. One of them practically sleeps on my head.

frieze Community Regular

Glutenfreeandbeyond?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748

    KateFC
    Newest Member
    KateFC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.