Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Too Much Gluten In The Diet Cause Celiac Disease To Be Triggered In The First Place?


glutenmaestro

Recommended Posts

glutenmaestro Rookie

Is excessive consumption of gluten-containing food a risk factor for celiac?

 

I was wondering whether it worked on a similar principal to too much alcohol and alcoholism or sun exposure and skin cancer.

 

I never had any of the symptoms or signs of celiac that have been documented when I was in grade school.

 

A few years prior to being diagnosed I loved my bread and did a lot of home baking with organic unbleached flour and even added vital wheat gluten to breads and cakes. Neighbours always said that our baked items were the best they'd ever come across.

 

This video by Joseph Murray MD at Mayo Clinic seems to sum it up well.

 

Do you think there's a connection???  :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Doesn't make sense for me. I never was a big bread/ baked goods eater. I would say I ate a lot less gluten than most people I know.

GottaSki Mentor

No, eating gluten does not cause Celiac Disease.

 

Celiac disease can trigger at any point in a person's life....any amount of gluten once Celiac Disease is triggered is harmful.

 

If you had no symptoms until a point you were eating more gluten....you might consider this...perhaps the increase alerted you to the issue...thus preventing further complications :)

Juliebove Rising Star

If it did cause it, I'd have it.  And I don't.  I eat toast for breakfast every morning.  Whole wheat.  But compared to most Americans I probably eat less gluten than they do.  Being diabetic, I do have to watch my carbs.

nvsmom Community Regular

I am almost sure I developed celiac disease in babyhood so excess gluten shouldn't be a trigger for me.

mopsiecat Rookie

No, I don't think eating gluten has anything to do with it.  It sure does run in families though - I have numerous family members that are celiac.

glutenmaestro Rookie

But they say to gradually introduce gluten between 4 and 6 months while breastfeeding. This prevents celiac disease. Introducing gluten too early increases the risk.

 

Another question:

 

Is there a memory component to this problem that forms over time, meaning that if the individual with celiac disease continues to consume gluten and is undiagnosed their reaction will be worse when they go off it and then are re-exposed by accident?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

A person that is neither celiac or gluten sensitive can stop and start eating gluten without issue.

 

If a person removes gluten for a period of time and then has adverse reaction when they resume eating gluten they either have an allergy, intolerance or Celiac Disease.

 

Forgive me, it seems you are struggling with accepting your diagnosis.  How long have you been diagnosed?   

 

1% of population has Celiac Disease.....the majority of which are never diagnosed.

 

6% of population have some level of gluten intolerance....which explains why many people feel better gluten-free.

 

We have all gone thru transition when diagnosed &/or found that our bodies can't tolerate gluten...let us know if we can help :)

CaliSparrow Collaborator

But they say to gradually introduce gluten between 4 and 6 months while breastfeeding. This prevents celiac disease. Introducing gluten too early increases the risk.

 

Another question:

 

Is there a memory component to this problem that forms over time, meaning that if the individual with celiac disease continues to consume gluten and is undiagnosed their reaction will be worse when they go off it and then are re-exposed by accident?

I've not heard/read that but it's an interesting question. I had some symptoms when I was a salad-eating healthnut and even in childhood. When I became a gluten-raving maniac, my health really started circling the drain. I've been sick and not working for 10 years. I stopped eating gluten 11/2012. I'm extremely sensitive to it. The bad symptoms last about 10 days to two weeks and then there is more health fallout (catch whatever is going around and then get a UTI). The whole process lasts over a month. My doctor tells me the length of time my symptoms last will shorten as I heal. The first year gluten-free was a horrendously difficult roller-coaster ride. My CNS has been impacted which made it worse and there were times I thought I was going to die. There are odd things I can do now that I could never do - like pull an outfit together. My mom bought me clothes until she became sick and my husband did my shopping after that. Now I can SEE what my wardrobe needs. These types of changes have been the strangest part of this whole thing. Who knew? I guess everyone thought my elevator didn't make it to the top. It makes me sad to think of little me and any other little ones who fall just under the radar.

Anyway, I don't know the answer to your question but I was sick for a long time and I'm uber sensitive with long-running symptoms. It's still early and I'm not sure what will improve with time. So far, little-by-little, I'm being given a new life and some very unexpected changes with it.

Good luck on your journey.

Cali

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,300
    • Most Online (within 30 mins)
      7,748

    Philbin
    Newest Member
    Philbin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.