Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neck Pain In 14 Year-Old


kyates2

Recommended Posts

kyates2 Newbie

I have a 14-year-old girl who is one-month into a gluten-free trial diet after her functional medicine doctor told us her labs are "highly suggestive" of celiac. Her symptoms, which came on last year after a ruptured appendix and subsequent post-surgery infection, include abdominal pain, fatigue, sleep issues, anemia, neck pain, and protein malabsorbtion. So, here's the question. She's been gluten-free for one month and abdominal pain seems less but her sleep issues and most importantly, her NECK PAIN, is terrible and maybe worse than ever. Is this something anyone has experienced?

 

Everything I read in reference to neck pain and celiac seems more focused on older people (who have aches and pains anyway). It's totally not normal for a 14-year-old girl to be in such chronic neck pain. I would have thought the gluten-free diet would be helping her feel better by now.

 

Does anyone have thoughts or ideas about why or how long it may take for her to feel better?

 

Thanks.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

What sort of neck pain is it? I mean, does it feel like muscle or joint pain? Does it hurt all the time or only when she moves her neck or arms? Is it an ache or a sharp pain?

 

If gluten-free is the answer to her problems the sleep thing will probably clear up soon. Mine took a while but after years of chronic insomnia, I now sleep like a baby. It is also possible that the neck pain is what is harming her sleep. If she can't get comfortable, she will have a hard time falling asleep, and if she has a subconscious fear that she will move the wrong way in the night and hurt her neck, she will keep waking up.

kyates2 Newbie

What sort of neck pain is it? I mean, does it feel like muscle or joint pain? Does it hurt all the time or only when she moves her neck or arms? Is it an ache or a sharp pain?

 

If gluten-free is the answer to her problems the sleep thing will probably clear up soon. Mine took a while but after years of chronic insomnia, I now sleep like a baby. It is also possible that the neck pain is what is harming her sleep. If she can't get comfortable, she will have a hard time falling asleep, and if she has a subconscious fear that she will move the wrong way in the night and hurt her neck, she will keep waking up.

I think it's more of a sharp pain that is worse when she sits or maintains the same position for awhile. It's not totally constant - some days it's okay and other days (or parts of days) it is excrutiating, and she's a tough cookie.

 

Good point about the pain harming her sleep - you are probably right. But the insomnia seems pretty consistent and present with or without the neck pain. 

 

Thanks for your thoughts.

cristiana Veteran

Interesting.... I had forgotten this but reading your post I remember I suffered terribly from bouts of neck pain when I was a child, and it stopped in my teens. I was only diagnosed a celiac a few months ago - I'm now in my forties - so I don't know if there was any connection, but I do know it really interrupted my sleep at times and can make you feel quite sick.  My friend follows a physio's tip and she punches her pillow into a sort of butterfly shape and putting that thinner part under the neck to sleep at night.   Maybe worth a try?  Is your daughter under stress and also, do you live in a cold part of the world?  I used to find that migraines that I suffered (I don't get them anymore) sometimes started in the neck and shoulders if I was cold or stressed. in either case I found applying warmth to the neck helped. Just some tips to help really, sorry I can't give any real advice regarding its relation to celiac disease.

bartfull Rising Star

I have this: http://en.wikipedia.org/wiki/Cervical_rib

 

 

Which causes this: Open Original Shared Link

 

 

It says here that it is rare, but MY doctor told me about one out of 100 people have it, and I have met four other people who have it. If I sit at a keyboard too long, try to use a slicer, or do anything where I have my arms out in front of me, I get sharp stabbing pains in my neck/upper back. I also sometimes get twitching in my left hand, particularly if I squeeze something with it. I also can't stretch my arms the way one does after getting up in the morning.

 

This is not related to celiac. It's something I was born with. When I lived in Connecticut where it is humid and life is stressful, it was BAD. Since I moved to South Dakota where it is dry and there is no stress, I haven't had too much trouble with it.

 

A doctor can diagnose this with xrays. I'm not saying this is what your daughter has, but it would be worth looking into.

frieze Community Regular

if you have a good chiro, you might start there.  I would wonder about positioning in the OR.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,962
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.