Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone Meet With A Dietician?

GFAnnie

Recommended Posts

GFAnnie Explorer
GFAnnie
Posted

My doctor recommeded that I make an appointment with the dietician in their office when she gave me the diagnosis.  I went ahead and did so, but I'm wondering how helpful it will actually be. It seems like all the research and answers are online.  I'm not sure how helpful this person can actually be.  It's a ninety minute appointment so she certainly has a lot of time to talk! But I was just wondering who did this and if they felt like they got much out of it.
Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I've seen a few folks on this board that have had good meetings with dieticians and many that have not.  That said, when I was diagnosed I did go to the dietician three weeks post diagnosis at the recommendation of my celiac doc.  This woman was the dietician for the UCSD's Celiac Center....so although it was not covered by insurance I went....and it was a big waste of time and money....I knew everything she offered me after three weeks living gluten-free and hanging around celiac.com and that was before we had the "Newbie 101" thread:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

I'd say if your insurance covers it go ahead and see if there is helpful info.   If not, decide for yourself if you are becoming confident living gluten-free or if you'd like more help/answers to questions you may have.

greenbeanie Enthusiast
greenbeanie
Posted

We went a few weeks after my daughter was diagnosed, and by that time I already knew all the important stuff. However, it was very helpful to get the inside story on local restaurants, and also to get specific vitamin brand recommendations. It was worth going for that alone. But having said that, I probably wouldn't have found it worth the money if our insurance hadn't covered it.

cahill Collaborator
cahill
Posted

I have seen a dietitian twice once for celiacs and once for  diabetes.

When I saw her for my diabetes she was helpful,, not so  for celiacs

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

I did not see a dietician, but I would suggest visiting eatright.org to make sure the person you are seeing has a specialization in gluten intolerance/celiac disease and is a registered dietician.  90 minutes is a long time to spend with someone who is clueless :)   At this link click "search by expertise" and then select gluten intolerance:  Open Original Shared Link  if you can't find the dietician you are supposed to see on this website, I would suggest canceling the appointment and making an appointment with a RD that specializes in celiac disease.  good luck!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748
    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten exposure when trying to conceive

      By trents · Posted

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Gluten exposure when trying to conceive

      By Skydawg · Posted

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      Gluten Free Cannabis Edibles

      By ShadowLoom · Posted

      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...