Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me, I Attended A Class Today That Said That Autism Has No Relation To gluten-free Eating, Hmm


3bears2

Recommended Posts

3bears2 Explorer

I attended a teacher training today and the trainer said that there is no research that supports autism and the gluten-free diet. So help me out. What do you think and know? Oh how I'd love to send her some information to debunk her teaching. I know of several kids that have benefited from eating gluten-free, my own. But I need information pertaining just to autism. If you have any websites for me to send to this presenter, I'd really appreciate it. She belongs to a CA autism organization and teaches this information all over the state so I'd really like to set her straight. Please help me do so. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
The link to that article seems to have messed up. The point was, there was a study that found no link. Maybe google " autism and celiac"

Open Original Shared Link

LauraTX Rising Star

Karen, If you can take out that link altogether, it took me to a malware site.  Don't want anyone downloading anything crazy.

 

3bears, No research has shown a link, but that doesn't mean a link is disproved or does not exist.  Celiac and Non-Celiac Gluten Intolerance are both not heavily researched, the latter more so.  Many children with various conditions benefit from dietary changes but anecdotal evidence is not enough for science.  I, too, would suggest just doing a google search for articles but do pay attention to the date and if you are going to hand over the article to an expert print out the entire article for her.  I would avoid websites without clear sources because on the internet you get a lot of unsupported claims and downright pseudoscience going on, and that would hurt your case.

 

Now, although anecdotal evidence is not enough to establish a scientific link, that doesn't mean people who are desperate for some type of improvement should not try dietary changes.  It is not like giving them an experimental drug, it is just diet.  So if you feel like it may or does benefit your child, then go for it. 

powerofpositivethinking Community Regular

I agree with Laura, if it works for your child, go with it!

 

The following two links include prominent doctors, Dr. Green and Dr. Fasano, in the world of celiac research, and here's what I'm gathering from reading these abstracts...although autism and celiac disease do not seem to have a link, it does appear that in some with autism the body responds abnormally to the gluten protein.  "A subset of children with autism displays increased immune reactivity to gluten, the mechanism of which appears to be distinct from that in celiac disease."

 

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

kareng Grand Master

Karen, If you can take out that link altogether, it took me to a malware site.  Don't want anyone downloading anything crazy.

 

3

 

 

The link went to an article/thread on our site.  The link to the article seems to no longer be good.  This happens with "news articles" sometimes.  The articles aren't active forever.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.