Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Liquid Diet Option?


Branchler

Recommended Posts

Branchler Newbie

Hi I'm new to the boards but I have been browsing them unregistered for about 4 years now. Let me give some background before I get to my point.

I diagnosed myself with celiac about 4 years ago after googling the strange symptoms I was having at the time. And further confirmed it by accidentally having large meals filled with gluten, and the resulting horrible, tear-inducing D. Jump forward a couple years and I start to have chronic pain and tension in my shoulder muscles and neck. Sometimes resulting in crippling pain, migraine, light and sound sensitivity, and nausea.

Skip forward a year or so and I randomly decided to stop eating rice. Within 1 to 2 days my muscle pain was greatly reduced. (I had been living with it non-stop for a couple years by then.) After a month or so I grew used to the new level of pain and wanted it to go away even more. So I stopped eating potatoes to see how that would go. The pain became a bit less. But it's still here. -I should also note that I went on and off of dairy (because I love cheese) and everytime i was eating it, i would slowly get more and more painful.-

 

Skip forward to about 3 weeks previous to current time, I found this autoimmune protocol diet cook book online and have started to try to live off of it. It bans many many foods including dairy, soy, potatoes, sugar, large amounts of fruit, all grains (rice, corn, etc) and more. My current problem, for the last week or so I have been incredibly weak. Shoulder and neck pain is at a steady medium, and some days I feel like I do today- My body goes through a great deal of stress and then i feel like i need to poo, i try to go and there's nothing. not even the urge to poo. I may feel a bit better, less weak for 30 min or so its random, and then more stress and phantom urges to poo. Eating is very difficult and walking nearly makes me collapse or faint. Cooking these special meals from scratch is out of the question when im like this. 

 

I also suffer from very very bad memory. This shoulder tension and pain led me to believe i probably have fibromayalgia, potentially caused by or a result of celiac disease. maybe a result of my body mistaking rice and other food for gluten. 

 

My life has become incredibly hard and I am constantly battling to stay positive and look to the future. I can't see a doctor unless I believe it's absolutely urgent (colon cancer or something) because I have no money.

 

My question for you (unless you've spotted something you can advise me about from my above background) is if you know of a high calorie liquid product i can drink that is celiac safe, dairy free, and low on sugar. those are the main issues. I've looked at ensures and they all seem to have dairy, claims to be lactose free but i react to it anyway.

 

Thank you for your time and (hopefully) your help. :) I wish you all the best.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethM55 Enthusiast

Hi.  Have you looked into Juice Plus?  I haven't looked at their blender mix label in a very long time, but it might work for you.  I'm also responding to bump up your post.  I hope someone responds who knows more than I do!  There was discussion in another post about people reacting to some brands of rice but not others.  There was a general concensus that Lundberg organic brand is well tolerated.

 

That said, I do have fibromyalgia, and have found improvement with being gluten free. 

NoGlutenCooties Contributor

Have you looked into the Nutribullet?  My mother has been going through some extensive dental issues and has been on pretty much a liquid diet for about a year and has great results with it.  You can put pretty much anything in there.  Also, take a look at Designer Whey.  It is whey protein, which is a dairy derivative but from what I've read it seems many people with dairy issues can tolerate the whey protein.  I *think* because it does not have lactose in it - but you'll want to double check that.  I use their French Vanilla flavor as it is lower in sugar and higher in protein than their other varieties.  I've also found that it doesn't have the nasty chemical-like aftertaste that many protein powders have.

 

As for Juice Plus, I used to take the capsules (fruit and veggie ones) but they have oat bran in them.  I can't tolerate oats and I know many Celiacs have this problem, so you may want to be careful with those.  Not sure about the cross-contamination possibilities with it either.

GottaSki Mentor

At times I've had to live off liquid diets as my digestive system flares and will not tolerate even my safe foods in whole form.

 

Over the years we have tried many meal replacement drinks including very expensive medical grade drinks and never found one I could tolerate due to the chemicals they use to produce them.

 

If you are having some luck with the AI diet you found...I highly suggest you make your own soups based on the whole food items you are tolerating.  My freezer always has homemade broth and at least one batch of pureed soup, like carrot, chicken, garlic or brocolli, beef.  These soups aren't much to look at but taste fine and get real nutrients into me without added stress to my inflammed system.

 

Cook when you can and use the frozen soups and broths when you cannot.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.