Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am A Miserable Mess After Eating Out Last Night


Wakingup

Recommended Posts

Wakingup Apprentice

We rarely eat out anymore because I always get sick when we do. But last night we made an exception because it was church pot luck and I brought my own gluten free dish. Also served was gluten free white crab chowder so i had some of that Today I am a weepy, anxious depressed, miserable mess. Also terrible brain fog so don't know if this is making sense. I had gas all through the night, and rumbling stomach. In addition to gluten I can not eat anything cooked with alcohol...since there was no gluten in the soup, Im thinking maybe alcohol was added. Any ideas what could have caused this?

I am thinking I am sensitive to a lot more than gluten and alcohol since even when I avoid both, I still get sick when I eat out. We have a limited social life due to this issue. How do you deal with this in your life? My depression today is making this seem unmanageable and horrible. Im hoping to feel better tomorrow.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Unless the chowder was made in a gluten-free home, it was probably cross-contaminated. OR maybe it, or even your dish, got CC'd at the event. Someone may have used the wrong spoon, or maybe someone dropped some crumbs from their plate into one of them.

 

Sorry you're feeling so sick. Drink lots of water, take lots of naps, and here's hoping it passes soon.

cristiana Veteran

I hope you feel better soon... but I can't help thinking that gluten just must have got in there somewhere.  How about stock they might used for the chowder? Was it prepared in a dedicated gluten free area?  I am British, so I don't know the recipe too well, but can beer be in chowder?  Beer contains gluten I think.

 

I was out with my sister and mother a couple of weeks ago and explained that I would just be having a coffee as unless food is prepared in a dedicated gluten-free kitchen I don't eat out.  The waitress replied, "You're right not to take any chances, I have worked in two pizza restaurants in this town that both claim they prepare gluten free food but they just use the same old cloths to wipe down the surfaces, etc, etc."  I thought as much!  

 

In the UK some places buy in great gluten free prepackaged cakes, prepared in gluten free kitchens, such as the Honeybun range, so I choose the outlets that sell these cakes and try to suggest to family and friends that we go out for tea or coffee and cake there rather meet somewhere for a main meal.   Or I take my own food if it has to be a main meal.  That's how we tend to socialise these days...  at least I am saving some money.

CaliSparrow Collaborator

I'm sorry you feel poorly after what was probably an evening of "normalcy". I do not eat what others prepare. Most people do not have a grasp on what contains gluten unless they've gone through this themselves. Those who have become proficient in handling social situations recommend taking the first serving from the dish you bring so as to avoid cross-contamination issues (like someone sticking their gluten fork in it while serving themselves.).

Because of the long course of illness before going gluten-free, I developed 55+ intolerances to other foods. None of them equal my body's response to gluten but a few have some pretty big reactions (like dairy). It's not uncommon to have an intolerance to dairy products. Some people can reintroduce it after sufficient time has been given for healing the gut.

When I fall ill, I remind myself that it's only temporary and I rest a lot. Give yourself the kind of nurturing, loving care you would want for a loved one and go very easy on yourself. The following article has helped me:

Open Original Shared Link

I hope you feel better soon.

Cali

Wakingup Apprentice

Thanks very much everyone.....and Cali, for the link. Reading your responses has helped. It's 1am here and I'm up again with terrible gas and stomach discomfort, body aches, anxiety, depression and feelings of hopelessness. I could cry at the drop of a hat.

Can't sleep but at the same time feeling extremely weak and exhausted. Brain fog and confusion through the roof.

Makes me never want to eat again.

No one in my life except for my husband understands what I am going through so it helps a lot to be able to write it here.

Wakingup Apprentice

Because of the long course of illness before going gluten-free, I developed 55+ intolerances to other foods.

Cali

Cali

How did you know? Were you tested? I think this may be true for me too......I ask bc I just need to know if there is anything else that I need to be avoiding.

CaliSparrow Collaborator

Cali

How did you know? Were you tested? I think this may be true for me too......I ask bc I just need to know if there is anything else that I need to be avoiding.

I did the ALCAT test. It helped (obviously, there was no way I could have sorted it out myself). My inflammation went away immediately after I stopped eating those foods.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaliSparrow Collaborator

I did the (Company Name Removed - They Spammed This Forum and are Banned) test.

That's a shame. Ask your doctor about testing for food intolerances. I go to a doctor in Functional Medicine.

NoGlutenCooties Contributor

I have only eaten out a couple of times since my diagnosis and it scares me to death.  I don't eat anything fixed by someone who thinks they can fix gluten-free in a non-gluten-free kitchen.  Even my aunt, whose brother (my uncle) was diagnosed with Celiac 15 years ago swears she can cook gluten-free meals for us.  Then she happened to make the comment, "why would an oreo have gluten in it?" - OMG!  It's just too easy for people to make a mistake.  Heck... even us Celiacs make an occasional mistake.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748

    Majesticrb
    Newest Member
    Majesticrb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.