Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Encouragement


FruitEnthusiast

Recommended Posts

bartfull Rising Star

ashleigh2, you have made four posts here since you joined, and all four of them are either insulting or contain false information.

 

(I don't know if anyone else noticed, but this poster also said this, in the thread about the work cafeteria:

 

 "2. You can educate your place of employment about what it means to be gluten free (which really means no grain-NO GRAINS AT ALL)"

 

I kindly explained to her that she was wrong and that many celiacs do fine with things like rice and corn.)

 

Here at this forum we stick to things that have a basis in scientific truth. If you are as much of an expert as you claim to be, you would have read  REPUTABLE scientific papers and studies and you would KNOW that the things you claim are false. The last thing we need here is to have someone try to mislead newbies and discourage them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FruitEnthusiast Enthusiast

Thanks guys :)  This site has always been helpful and people are so supportive. Getting that one harsh post was a jolt, and I temporarily wondered about whether I wanted to post again. I wasn't going to let it stop me, this site means too much to me, but it has done my heart so much good to read your responses. You guys are the best!

kareng Grand Master

FruitE- I am the first person to tell people to suck it up and fix the issue. Even I didn't think you sounded like you were playing a victim in that post. Sounded like you were trying to handle your problems. Not sure if that poster even read your post.

IrishHeart Veteran

 

 

 "2. You can educate your place of employment about what it means to be gluten free (which really means no grain-NO GRAINS AT ALL)"

 

 

 

 

She said that because she is likely a member of the Gluten Free Society and a " trained professional in gluten awareness". . Let us recall that dr. osborne claims that corn and rice have the kind of gluten protein that makes celiacs sick.   He says this, despite what leading celiac researchers say to the contrary. 

BlessedMommy Rising Star

I'm already a gluten free low sugar ovo vegetarian (which is a difficult lifestyle to maintain as is) and I can't even imagine how complicated and limited my diet would be if I had to remove all gluten free grains on top of that!

 

Sounds like the "Gluten Free Society" is propagating some false information!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.