Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Have Celiac Without Anemia Or B12 Defiency?

captainjacksparrow

Recommended Posts

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

OK, here ait se my results (they seem very good to me):

 

U/E+CREAT

urea - 6.5

sodium - 144

potassium - 4.4

creatinine - 88

 

 

LFT (Liver function test from serum)

bilirubin - 12

ALT (GPT) - 22

alkaline phosphatase - 81

gamma GT - 17 

 

GLUCOSE

4.3

 

VITAMIN B12 SERUM

523

 

ESR 

2

 

FULL BLOOD COUNT

WBC - 7.4

RBC - 5.27

haemoglobin - 15.8

PCV - 0.461

MCV - 87.5

MCH - 29.9

MCHC - 34.2

Red Cell Distribution Width - 13.1

plateletes - 177

PCV - 8.1

lymphocites - 3.20

monocytes - 0.70

neuthrophils - 3.2

eosinophils - 0.20

basophils - 0.00

 

THYROID FUNCTION 

FREE T4 - 14.3

TSH - 2.72

anti-TPO Ab: 2.72 - negative 28

tTG ANTIBODY 0.4 negative

 

It is probably anxiety and stress related. However I been like this since my early early childhood... Anti anxiety meds and antidepressants does not help..

 

What do You think about the results?

 

I just knew it!!! That she did not ordered the correct tests! I assume EMA is missing right?!

I dontk know, I am so tires and dont know I

 

 

I just knew it, that she ordered wrong tests.EMA is missing right?There is no range on the actusl sheet for celiac..Is it worth it to go back on gluten?I fed up with all this crap.... :( I think I will go with gluten free diet and will see how it goes.What do You think?

 

And the liver are all fine. ALT range - 21-72 but I heard that it should be low.No?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I just knew it, that she ordered wrong tests.EMA is missing right?There is no range on the actusl sheet for celiac..Is it worth it to go back on gluten?I fed up with all this crap.... :( I think I will go with gluten free diet and will see how it goes.What do You think?

 

And the liver are all fine. ALT range - 21-72 but I heard that it should be low.No?

 

yep...liver is fine -- I forgot general ranges and just wanted to check.

 

The challenge is up to you.  I'll tell you that if you continue to improve it may become even more difficult to complete a gluten challenge.

 

FWIW - if you think you'll want to be tested, do it now.

 

Is there a celiac support group where you live?  It may help you find a good choice in GI docs that have training/experience with Celiac Disease and NCGS.

 

Hang in there :)

 

edited to add -- many labs do not run the EMA-IgA unless the tTG is positive.  Let us know if you need the complete list of celiac antibody tests -- I think we may have already given it to you -- if not, let us know.

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

yep...liver is fine -- I forgot general ranges and just wanted to check.

 

The challenge is up to you.  I'll tell you that if you continue to improve it may become even more difficult to complete a gluten challenge.

 

FWIW - if you think you'll want to be tested, do it now.

 

Is there a celiac support group where you live?  It may help you find a good choice in GI docs that have training/experience with Celiac Disease and NCGS.

 

Hang in there :)

 

edited to add -- many labs do not run the EMA-IgA unless the tTG is positive.  Let us know if you need the complete list of celiac antibody tests -- I think we may have already given it to you -- if not, let us know.

 

I am in Ireland and can not afford tests.This was covered by my medical card (medical insurance)... I looked online that  TTG ranges from 00 to to 2.9 as far as I remeber. However, could it be possible that because I am not the bigest bread lover so myantibodies were low? I ate tons of gluten fro about 3 weeks prior testing.. I also found that I am lactose intolerant or casein not sure, but its the same anyway.. 

GottaSki Mentor
GottaSki
Posted

I am in Ireland and can not afford tests.This was covered by my medical card (medical insurance)... I looked online that  TTG ranges from 00 to to 2.9 as far as I remeber. However, could it be possible that because I am not the bigest bread lover so myantibodies were low? I ate tons of gluten fro about 3 weeks prior testing.. I also found that I am lactose intolerant or casein not sure, but its the same anyway.. 

 

Gotcha! 

 

By the way...that lactose intolerance can be a result of celiac as well.  If you aren't going to be tested soon -- I strongly suggest you remove all gluten for six months and then trial lactose/casein to see if you can tolerate it.  Regardless of the dairy deal -- since you have symptoms consistent with celiac or ncgs and you had some improvement since you removed gluten -- six months gluten-free should give you the answers you are looking for. -- at least "unofficially" ;)

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

Thank You all for your help! I will stick with gluten-free or maybe evdn Paleo diet and will keep You informed! Will come back in few weeks just to let You know how I am doing. Cheers!!!:)

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

Gotcha! 

 

By the way...that lactose intolerance can be a result of celiac as well.  If you aren't going to be tested soon -- I strongly suggest you remove all gluten for six months and then trial lactose/casein to see if you can tolerate it.  Regardless of the dairy deal -- since you have symptoms consistent with celiac or ncgs and you had some improvement since you removed gluten -- six months gluten-free should give you the answers you are looking for. -- at least "unofficially" ;)

 

P.S. I started taking calcium and msgnesium, also Vitamin D as Ireland is so damn cloudy.Also zinc 30 mg before bed.I dont eat fish etc so I might be defiecient in it. 

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

Gotcha! 

 

By the way...that lactose intolerance can be a result of celiac as well.  If you aren't going to be tested soon -- I strongly suggest you remove all gluten for six months and then trial lactose/casein to see if you can tolerate it.  Regardless of the dairy deal -- since you have symptoms consistent with celiac or ncgs and you had some improvement since you removed gluten -- six months gluten-free should give you the answers you are looking for. -- at least "unofficially" ;)

 

 

Actualy! My ferritin levels, do they look a little low, what do you think? Mine is 47, while the range is 28-365 ng/ml what do you think? Also b12 523 is a little low, no? Even though they are within normal limits.. Range: 239-931ng/L

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Actualy! My ferritin levels, do they look a little low, what do you think? Mine is 47, while the range is 28-365 ng/ml what do you think? Also b12 523 is a little low, no? Even though they are within normal limits.. Range: 239-931ng/L

 

Ferritin is a bit low -- that is what I meant by looking for high/low within referenced ranges.

 

B12 - not bad (some suggest it should be much higher for optimum -- mine was 150s at dx and has risen to the 700s gluten-free (just an example..everyone is different)

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

Folic acid works in conjunction with B12 for DNA synthesis. Folic acid deficiency causes macrocytic anemia but never neurologic deficits. Common causes of folic acid deficiency incluOpen Original Shared Link poor diet and alcoholism. Since January 1998, the US Food and Drug Administration has required all enriched cereal/grain products to be fortified with folic acid, with the goal of reducing neural tube congenital defects.[10] Nutritionists have expressed concerns that folic acid fortification masks B12deficiency, and a 2007 study demonstrated cognitive impairment in patients with high folate status in the presence of low B12. These patients were anemic without macrocytosis.[10]The authors suggest that excess folic acid precipitates both hematologic and neuropsychiatric manifestations of B12deficiency. Interestingly, folic acid conferred cognitive protection in the presence of normal B12 levels. The point here is that folic acid supplementation in the presence of B12deficiency may actually aggravate neurological symptoms.

 

My folate levels are very high!!! A year ago I was doing a resesrch about thing called MTHFR gene mutation, not sure if you have heard about it before? It is diagnosed through genes. Have a look at this, it might be very helpful for all of you too: 

 

Open Original Shared Link

 

What I also read, that people who usualy have  MTHFR might have hig numbers of folate in their blood, as simple folate is not used by the body do to MTHFR mutation..

 

My levels are > 24 very above the norm. 3-17 ..

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

Ferritin is a bit low -- that is what I meant by looking for high/low within referenced ranges.

 

B12 - not bad (some suggest it should be much higher for optimum -- mine was 150s at dx and has risen to the 700s gluten-free (just an example..everyone is different)

 

What about your folate levels prior dx?? I bet it wasnt that big!?

GottaSki Mentor
GottaSki
Posted

What about your folate levels prior dx?? I bet it wasnt that big!?

 

you got me on that one...will have to look it up...only so many numbers stick in this old brain ;)

 

lol...i'll check back with an answer later :)

 

edited to add:

 

ok...you made me look and it seems my results pre-dx in 2009 are not available online -- which means I'll have to pull an old fashion paper file -- um, no -- not happening any time soon.

captainjacksparrow Newbie
captainjacksparrow
Posted
  • Author

you got me on that one...will have to look it up...only so many numbers stick in this old brain ;)

 

lol...i'll check back with an answer later :)

 

edited to add:

 

ok...you made me look and it seems my results pre-dx in 2009 are not available online -- which means I'll have to pull an old fashion paper file -- um, no -- not happening any time soon.

 

Its ok:) Dont worry. But then how do I know Iif my b12 isn't masked?...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.