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Lactose Intolerance Is Gone!


greenbeanie

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greenbeanie Enthusiast

After being very lactose intolerant for 25 years, my lactose intolerance has disappeared! Like completely disappeared - I can now eat an entire bowl of ice cream with no ill effects whatsoever! Previously, even a tiny bit of butter or milk would cause room-clearing gas and hours of gurgling. The problem went away quite suddenly after 8 months gluten free. I knew this could happen as the villi heal, but I did not expect to be fortunate in this regard myself because my biopsy showed normal villi (though all sorts of inflammation elsewhere).

Anyhow, I don't have a question here - I just wanted to share the good news. For others who had a normal biopsy but many other celiac symptoms that resolved on a gluten-free diet, there is hope that lactose intolerance too might go away!


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powerofpositivethinking Community Regular

that is awesome news!!  congrats  :D

dilettantesteph Collaborator

Same thing happened to me.  :D

Celiacandme Apprentice

Yay! :D

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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