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Question For The Ladies!


Celiacandme

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Celiacandme Apprentice

Currently just over 5 months gluten free with some symptoms getting worse during healing process. Also new symptoms which might be related to rheumatology.

 

 

Out of curiosity, did anyone else notice symptoms being much worse just before your monthly cycle arrived or also perhaps around the time your body was trying to ovulate? If so, did that get better with time? Did this happen to you after going gluten free? Which kind of symptoms were worse for you during that time?


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VASpider Newbie

I actually always had really bad GI symptoms around the time my period would start. I just chalked this up to 'hormone changes' but now I know the gas & constipation (ugh) were due to celiac and somehow just got worse around that time. 

LauraTX Rising Star

I have celiac and lupus and mentioned to my rheumatologist that when I an PMSing everything just gets a little worse.  He said inflammation increases at that time and especially with lupus patients (lupus is an inflammatory disease) that is not uncommon.

nvsmom Community Regular

Every month I get back pain (often sciatic), migraines, fatigue, and some D. It's a bit better than it used to be, but not by a huge amount. I get the same symptoms, minus D but with cramping around ovulation... on the bright side it made timing trying to conceive pretty easy.  LOL ;)

 

I did not notice any monthly effect on my arthralgias.

kirstenB Newbie

Let me say that the first year is the roughest. The first year after going GlutenFree I glutened myself a lot & reactions were tenfold compared to before diagnosis. I also started to get cold sores on a regular basis near my period that I always had to stave off, which didn't happen previous. Have you been tested for vitamin & mineral deficiencies? That's a huge problem during the healing process cause body may not be absorbing from food or of you are taking supplements. I started getting vitamin B shots and taking rest of what I needed with dropper vitamins underneath my tongue. Also make sure you're getting enough zinc n vitamin D as well. Plus there are a wealth of fruits, veggies and herbs that help w/inflammation & the arthritis. Walnuts, lemon, asparagus, garlic & cauliflower are just a few. Have you tried an elimination diet? Sugar, dairy, soy, corn, etc...

Celiacandme Apprentice

Kirsten - I'm pretty much down to plain meat, fruits and vegetables. I was told tonight that recent blood work confirms that I also have lupus. So this could be why. I've been beyond diligent with my diet. I have been tested for deficiencies and was tested for more earlier this week. We'll see how they look. My Vit D was real low in the fall as well as my iron. Both have improved.

NoGlutenCooties Contributor

My entire digestive system has always cleaned itself out during the first two days of my period.  I always figured it had to do with all the muscle contractions going on in the area and being that everything is sort of connected... the bowels just kinda got in on the action too.  (Almost like a monthly spring cleaning.)  My sister is the same way and she doesn't have Celiac (that she knows of anyhow).  My OBGYN (a few different ones actually) have always said that this is normal and very common.  But then again... doctors say that about a lot of things that may be common but aren't in fact "normal".


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    • knitty kitty
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    • Jane02
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    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
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