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Trying To Understand What My Reaction Means ...

Beccels

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Beccels Rookie
Beccels
Posted

Hello!

So, I have DQ2 although have not tested positive to celiac testing. Original investigations were due to atypical neurological symptoms that had no logical cause.

My doctor has advised me to be gluten free. I have been gluten free in the past and oddly, my symptoms improved greatly!

And then I began to cheat :)

I have not ever had typical gastro type issues with gluten.

Due to infertility issues I have decided to go gluten free again. I have been gluten free for two weeks.

Last night I decided to cheat, a lot ... I had some 'party food' mini sausage roll and piece of fairy bread.

Four hours later I threw it up. The people who also are the same food stayed at my house and they were not sick.

I never throw up. I don't even know when I last threw up!

My question is; does this or does it not confirm a sensativity? I have been told it may not, as anyone who cuts out gluten could expect a reaction either way.

I'm just confused, that is an extreme reaction for me personally.

Thanks!

Bec

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cyclinglady Grand Master
cyclinglady
Posted

Who knows? You said that you tested negative to the celiac blood panel. Do you have the test results? Many folks do not get a complete panel. I ask because it is much easier maintaining a gluten-free diet with a formal diagnosis. Then there is never a doubt or cheating -- 95% adherence to the diet is meaningless for those with actual celiac disease. You may have Non-celiac gluten intolerance and the same dietary adherence applies.

By the way, not everyone has GI symptoms. I just had anemia.

Beccels Rookie
Beccels
Posted
  • Author

Who knows? You said that you tested negative to the celiac blood panel. Do you have the test results? Many folks do not get a complete panel. I ask because it is much easier maintaining a gluten-free diet with a formal diagnosis. Then there is never a doubt or cheating -- 95% adherence to the diet is meaningless for those with actual celiac disease. You may have Non-celiac gluten intolerance and the same dietary adherence applies.

By the way, not everyone has GI symptoms. I just had anemia.

 

Thanks for your reply!

 

My blood test was:

 

Gliadin Iga Abs: Results 2 (range 0 - 20)

tTG IgA/IgG: Results 2 (range 0 - 20)

 

Then I am heterozygous for the DRB1*07-DQA1*02-DQB1*02 haplotype.

 

My signature (which said 95% gluten & dairy free) is very old. I just deleted it :)

 

Either way, I think I have learnt the lesson that my body prefers not to be glutened! It's just hard to figure out. If I went on a diet and eliminated .... oranges, would I throw it up if I ate one two weeks later? I know that's a over generalization and that gluten is a much different ... beast ... to an orange .. it's just confusing!

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

cyclinglady is right with regards to the panel.  The only test I was positive on is the DGP IgG even though I am not IgA deficient.  Unfortunately, I know everywhere does not run that particular test, but for me without it, I would still be wondering what was going on...

 

A full panel is:

 

TTG IGA/IGG

DGP IGA/IGG

EMA

Total IGA serum level

 

Do you know which lab ran the gliadin IgA test?  The new DGP is the better test for celiac disease whereas the old AGA test isn't as reliable.  You need to find out if it was the DGP or AGA version.  Plus without a total IgA serum test run, there is no way to know if your two tests are even valid.  With the TTG IgA/IgG test, I've never seen the results combined like that.  Usually it would list TTG IgA and TTG IgG on a separate line.  Good luck!

 

 

Who knows? You said that you tested negative to the celiac blood panel. Do you have the test results? Many folks do not get a complete panel. I ask because it is much easier maintaining a gluten-free diet with a formal diagnosis. Then there is never a doubt or cheating -- 95% adherence to the diet is meaningless for those with actual celiac disease. You may have Non-celiac gluten intolerance and the same dietary adherence applies.

 

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