Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jennifer Exposito On Tv


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Open Original Shared Link

 

I appreciated that Jennifer brought it out that celiac disease causes many symptoms, not just the classic ones.  She seems to describe many symptoms that were neurological as I did.

 

The GI doctor in this program brought out that it is a genetic disease and is present from birth.  That is what I wanted to talk about.  When I got my genetic test I believed I was getting the new gold standard check for celiac disease.  This is what the GI doctor mentioned briefly in the video. This is the first time I heard a GI doctor indicate that it is a new gold standard test.  Here is what I would like to talk about:

 

Problems with the anitbody test:  false negatives, low IgA, symptoms,

Why genetic celiac needs a trigger-How do we know this?

Family members testing negative when one knows they have at least one gene and possible symptoms.

The multitude of celiac symptoms.  What are doctors looking for.

What symptoms are specifically linked with celiac or gluten.  eczema? psorises? AI diseases

 

Personally, I wonder if genes without negative tests may mean a case of celiac that doesn't trigger a positive test yet.  Maybe one has to be really off to make a positive test.  Then maybe when the immune system has so much damage, one will test negative again.

 

My thoughts here are very speculative mostly questioning and not argumentative, so please just consider any answers or experience you can share. 

 

The doctor Roshini Raj form NYU Lango Medical Center said that the genetic test is "the new gold standard test for celiac."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,581
    • Most Online (within 30 mins)
      7,748

    Youthbureauguy
    Newest Member
    Youthbureauguy
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.