Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help: I Need Vegetable Substitutes And Seed/nut Subs.


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Any ideas of books that talk about coping with many food intolerances? I ate practically everything in the coops produce section while experiencing leaky gut.  Therefore, I now am discovering problems with eating many of them.  Please if you know of unusual fruits, vegetables or seeds, list them here.  Also, do you know of anyone in this situation, (Oh, maybe Barty?) that has come through this safely.  I remember quite a few that disappeared.  I am trying to keep my diet as varied as I can, while avoiding the foods that make me lose my appetite for days, give tummy cramps, or make me sick to my stomach.

 

Gotta ski, you may have something to say about this.  I tried to PM you and realized that your mailbox probably needs cleaning out too!

 

Dee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Am off to school...but here are a few:

Taro -- starchy

Bok choy -- like cabbage

Chia seed

I can not have garlic or anything from the onion family. That might be a first group to eliminate. Got to go.....carpool time!

shadowicewolf Proficient

Daikon raddish

azuki beans

 

These can be found in Japanese cooking. I really don't know what you can and cannot have, but it would be a start.

Wi11ow Apprentice

Don't know if you these are unusual, but they are all new to me!

 

Daikon - very large very mild radish type.

pine nut

ocra

Chinese broccoli

leek - cousin to onion, must wash and cook first

jicama

zucchini blossom - says you can stuff or fry (haven't tried)

rhubarb - leaves are poisonous

tomatillo

Arugula or any greens like mustard, kale or dandelion greens (i haven't branched out much)

watercress

kohlrabi - cabbage turnip (I googled this one - found in asian markets)

Nopale - looks like a cactus. Can't remember which store I saw this in.

 

 

No book ideas, sorry

1desperateladysaved Proficient

Great job, I see several possibilities from that list.  Basically, the veges I don't tolerate are:  broccoli, cauliflower, cabbage, carrots, parsley, onion family, squash, pumpkin, green beans, peas.  Got to go, do you get the idea that it is all the common vegetables in the Midwest?

HavaneseMom Explorer

I see you have squash on your can't eat list. Is it all squash? I can't tolerate the bigger orange type squashes (can't think of their names), but zucchini and yellow squash are my friends. I find them pretty soothing and they help keep things moving too :-). If you are in the Midwest like me, I'm sure you have already tested them. Lots of it around in the summer here.

FruitEnthusiast Enthusiast

How do you do with lettuces? These aren't unusual but weren't mentioned - baby spinach and kale. Both are high in protein. Jicama was mentioned, I like it, but I don't know if you can get that in the midwest, I'm on the west coast. Can you have avocados? Fresh coconut (it's very high in insoluble fiber if you can tolerate that)? I know you're aware of histamine and have a list of those foods I think. I wish I had more ideas for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Thanks,

 

Most lettuce I can't do.  Zucchini is out too.  Anything that I was eating, I seem to have a problem with.  Spinach I can do and kale.  There may be other greens I would tolerate.  I just tried Water Cress and that worked.

 

I think I saw jicama at the store.  I had never seen that before, so I am planning to buy some.  I do coconut water milk, and oil.  Olives work for me.

1desperateladysaved Proficient

I never liked onions anyway!  So, it is one of the things that I am glad to say good-bye to.

FruitEnthusiast Enthusiast

I'm sorry you're having trouble now, it sounded like you had been doing a lot better.

 

I'm continuing to have problems too. Every time I think I'm over the hump, I'm not, I'm sick again. It's frustrating. So, I can relate.

GottaSki Mentor

Any ideas of books that talk about coping with many food intolerances? I ate practically everything in the coops produce section while experiencing leaky gut.  Therefore, I now am discovering problems with eating many of them.  Please if you know of unusual fruits, vegetables or seeds, list them here.  Also, do you know of anyone in this situation, (Oh, maybe Barty?) that has come through this safely.  I remember quite a few that disappeared.  I am trying to keep my diet as varied as I can, while avoiding the foods that make me lose my appetite for days, give tummy cramps, or make me sick to my stomach.

 

Gotta ski, you may have something to say about this.  I tried to PM you and realized that your mailbox probably needs cleaning out too!

 

Dee

 

Finally saw this.

 

I don't know if I can add anything to this discussion.  I can eat all veggies with the exception of those from the nightshade family.

 

How long have you been at the try to figure out what is bothering me besides gluten game -- not making light, took me two years before finally doing a full elimination experiment.

1desperateladysaved Proficient

Hey Lisa,

 

I am just about 2 years into non-gluten living.  In the years before that I had figured out several foods not to eat.  I ate pretty much every vegetable available at the grocery store when I was really sick.  I don't think much of avoiding cake, but avoiding squash is just weird.  I feel great, but it really is a good thing that I like dresses so well.  My tummy is bloating up and down.  It use to be always up, so it is actually progress  I finally saw a GI doctor too and she thought I possibly had a gall-bladder issue. She thought that I had done the right labs to gage the situation.  Thanks to my Functional medicine nurse, Dr. Osborne and this forum. 

 

The GI doctor  didn't think GI issues were such a big deal!  I wonder -I was so small yesterday-and shrinking if she knows what I mean exactly.  I sure don't want my intolerances made little of.  Two days on the couch and four days without appetite is not thinkable for me 3 times a month.. 

Thanks Lisa

FruitEnthusiast Enthusiast

To a GI, serious things can be solved by medication or surgery. There are a whole bunch of things they don't understand or acknowledge, as we all know too well.

 

Are you eating organic? There has to be some common denominator with vegetables that bothers you. Or if not pesticides then maybe something else in the environment.

 

Could the bloating be from a bacterial imbalance, have you been checked for that sort of thing? Are you taking probiotics?

 

There has to be an answer for this and you will find it. There's got to be a connection and a solution.There always is. I hope you find it soon.

1desperateladysaved Proficient

My functional Medicine nurse feels my swelling is because my gut is not healed yet.

 

Oh, I did an elimination diet before and that is when my mind cleared and my ferritin levels improved.  I added many things back in and though it seemed okay, it didn't work out.

 

I agree to some extent about the GI doctor, I am using her for assessing problems, but will likely use other drugs if she offers them to me.  So far she said take probiotics, but I do already.. My natural medicine people thought I should be checked out because I did suffer with this so long.  There might be other problems which can be catered to, so that we can make the biggest difference in getting better.

 

If you walk 30+ years in the wrong direction, you can't expect to recover the ground in two years.

FruitEnthusiast Enthusiast

If you walk 30+ years in the wrong direction, you can't expect to recover the ground in two years.

 

That's a very good reminder for me, as you and I started on this "project" at about the same time... good words.

1desperateladysaved Proficient

Umm, I am more into organic (thanks to celiac, no doubt) than anyone I know.  I own an organic farm.  We mostly grow our own food.  Today finds me with a huge planting project and feeling fine!

 

Dee

Wi11ow Apprentice

What are you planting today? How much? My "big" project was 4 kinds of lettuces, kale, and 6 zucchini seeds in 5 big pots... Nothing very exciting. They haven't grown yet :).... (only been a few days) But I keep watching!! LOL

1desperateladysaved Proficient

We planted watermelon.  Radishes and lettuce are nearly ready to start eating.  Carrots are coming up.  I found several seeds today, kohlrabi, bok choy, argula for me to eat.  It feels kind of overwhelming a whole big garden, but most of it I can't eat!

 

Beans peas tomatoes peppers broccoli cauliflower I can't eat

Beets, spinach brussel srouts, asparagus and others above I can eat. 

Wi11ow Apprentice

Sounds very rewarding! and a little frustrating if you can't eat it all....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748

    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.