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Those With Soy Intolerance: What Do You Think?


Waitingindreams

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Waitingindreams Enthusiast

I've been doing a few elimination diets to try to pinpoint food issues. I took a test and I will get the results back on 5/30, but I wanted to be proactive and test foods on my own before hand. (Note: I am aware that the results are apparently inaccurate, that is partially why I decided to start elimination diets on my own)

 

I seem to have an issue with yeast and, I believe, soy as well. I've always tried to avoid soy...even before I was diagnosed...for multiple reasons, one being that after drinking soy milk I noticed a faint scratchy/itchy feeling in my throat...but a few staples in my diet have soybean oil: Sabra hummus, Progresso Lentil Soup, and Minute brown/wild rice mix. I have noticed minor stomach issues and now some skin issues after eating all three, but I never really noticed there was soy in them. I had been eating the soup and rice for so long that I didn't even think of soy once I realized they were gluten free...and the hummus is a newer edition to my diet. (Luckily though, Tribe hummus is soy free)

 

My question is about SunButter. I have an issue with yeast and I came up as allergic to peanuts on an allergy test (blood test) so I avoid them (although I don't believe i am truly "allergic", I avoid them anyway) so I have been looking into almond butter and sunbutter. I like the sunbutter better, but I started noticing some cramping after eating it. It's gluten free, and it claims to be soy free...but here are there statements on soy:

 

Does SunButter contain soy?

Although soy is not an ingredient in SunButter, the sunflower kernel is roasted on equipment that also roasts soy. There is a cleanout process between the two. 

What are natural mixed tocopherols?

This is a natural preservative from a soy based vitamin E where there is NO soy protein.  The protein has been removed.

 

 

This is the only reason I can think of for having a reaction to the sunbutter...the phantom soy. It seems there would be no soy in the product - but I have no idea about sensitivities, or if food can easily be cross contaminated by soy as it is with gluten. Basically, I'm asking if people with a known soy intolerance or allergy would feel safe eating this product. It seems like there should be no issue with soy. I really like the product, but something seems to be bothering me with it. There aren't many ingredients, either...it's just sunflower seeds, dehydrated cane juice, salt, and the mixed tocopherols. 

 

 


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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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