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Soo Confused!

SPinch03

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SPinch03 Apprentice
SPinch03
Posted

ahhh as soon as I think I'm a step closer to knowing what is wrong I get thrown another curve ball!

So here is a little bit of info about me.. 27 year old female with Hashimoto's thyroiditis.  I've suddenly developed iron deficiency anemia.  After doing some research and seeing my doctor I learned that a lot of people with Hashimoto's can also have celiac disease so we ordered some celiac blood tests  TTG (IgG/IgA) both came back normal (however total IgA wasn't tested..)  DGP IgA negative, and DGP IgG positive (3.59 IV anything above .90 IV considered positive).  After getting my blood test results back I made an appointment with my GI doctor and had the endoscopy done yesterday..  I also work in the hospital laboratory so I know the pathologists and all so I called today and he said he didn't see any signs of celiac but wants to pass it around to the other pathologists to make sure, he did say I have gastritis tho with no signs of H. pylori...told me to come talk to him tomorrow but now I'm stressed out and confused!! :/  any advice?

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nvsmom Community Regular
nvsmom
Posted

I would assume that you have celiac disease with a positive test over four times the normal, and a history of other autoimmune disease. The DGP IgG is 99-100% specific to celiac disease so a positive test is almost surely caused by celiac disease.  See this report, on page 12, for more info about the reliability of the tests. Open Original Shared Link There's info on the biopsies beginning on page 8.

 

It's not unusual for a celiac to be positive in one test yet negative in another, or positive in the blood tests with negative biopsies, or positive biopsies with negative blood tests.... That's why they run so many tests, they're more likely to catch the celiacs who would otherwise slip through the cracks.

 

Good luck with your appointment!

  • 3 weeks later...
queenieheather Newbie
queenieheather
Posted

ahhh as soon as I think I'm a step closer to knowing what is wrong I get thrown another curve ball!

So here is a little bit of info about me.. 27 year old female with Hashimoto's thyroiditis.  I've suddenly developed iron deficiency anemia.  After doing some research and seeing my doctor I learned that a lot of people with Hashimoto's can also have celiac disease so we ordered some celiac blood tests  TTG (IgG/IgA) both came back normal (however total IgA wasn't tested..)  DGP IgA negative, and DGP IgG positive (3.59 IV anything above .90 IV considered positive).  After getting my blood test results back I made an appointment with my GI doctor and had the endoscopy done yesterday..  I also work in the hospital laboratory so I know the pathologists and all so I called today and he said he didn't see any signs of celiac but wants to pass it around to the other pathologists to make sure, he did say I have gastritis tho with no signs of H. pylori...told me to come talk to him tomorrow but now I'm stressed out and confused!! :/  any advice?

Hi, I am 28 years old with hashimoto's disease. I was diagnosed 10 years ago with Hashi's. About 4 years ago I went gluten-free the day my mom was diagnosed with Celiac. My hashi's antibodies have gone away completely with a STRICT gluten-free diet. I never bothered with the run around of testing for it. I am now 100% sure I have it too. After I encounter an accidental gluten contaminant I now have horrible GI symptoms, fatigue, headaches...  It becomes so clear even without a doctor "officially" diagnosing me. Mine was so severe and went on so long that I no longer have any thyroid function. Try a gluten-free diet!! Do it ASAP and you may be able to save the thyroid function you have left!

  • 2 weeks later...
postepay Newbie
postepay
Posted

What is the best resorce where to look for a good medical center where to perform a test to seacrh for a gluten intollerancy ?

kareng Grand Master
kareng
Posted

What is the best resorce where to look for a good medical center where to perform a test to seacrh for a gluten intollerancy ?

 

 

This is a bit off topic here but - any doctor can do the blood test for Celiac.  If it is positive, they will send you to a GI doctor.

nora-n Rookie
nora-n
Posted

spinch, you work in a lab, you can ask the pathologist to perform the immunohistochemistry tests. The biopsy can look completely normal (but yours are not normal there are signs of inflammation . You had increased number of IEL or those inflammation cells I mentioned ) Bit if the imunohistochemistry is positive for immune cells, then it is a definite celiac diagnosis. They are starting to do them on more and more biopsies over in Europe.

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