Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Have Syptoms.. Why?

klemmen

By klemmen
in Coping with Celiac Disease

Recommended Posts

klemmen Rookie
klemmen
Posted

Hey

I was wondering if anyone could give me a bit of advice..i've been diagnosed with celiacs disease about a year ago..and it was fine for a while and my symptoms cleared up and now when i eat it hurts sometimes when i eat and i have to take immodium every two to three days...cos i get diarrhea...and i am 100% not eating gluten, i got new saucepans...and cutlery and i dont share the kitchen, and i even change dmy cereak to gluten free..so i really dont no why i still get diarrhea! its like i know that every two to three days i will get diarrhea and i am a student and it is really stopping me doing things...any suggestions?!? please! its so disspointing...and it smaking me quite sad cos the syptoms shud have stopped by now!!

but thankyou any suggestiosn wud be good!

xxxx

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Have you changed products like makeups, shampoos, soaps, lotions, perfumes, hairpsprays, etc?

happygirl Collaborator
happygirl
Posted

Are you eating out a lot? I get sick a lot from "gluten free" items at restaurants bc of cross-contamination.

klemmen Rookie
klemmen
Posted
  • Author

Hey :) thanks for your reply

No to both, i make sure i don't eat out at all, and products are exactly the same, i even checked the ingredients to check. Its weird how the symptoms came back, the doctor did blood tests but couldn't find anything, hum maybe it will get better

: /

debbiewil Rookie
debbiewil
Posted

could you have a food allergy? Maybe dairy or corn or eggs or one of the other major problem foods. Then you'd only get diarrhea on days when you ate that food.

Debbie

  • 2 weeks later...
klemmen Rookie
klemmen
Posted
  • Author
could you have a food allergy? Maybe dairy or corn or eggs or one of the other major problem foods. Then you'd only get diarrhea on days when you ate that food.

Debbie

<{POST_SNAPBACK}>

HUm i don't no...i eat gluten free conrflakes and they seem fine, and i don't really eat eggs..well not by themselves cos they dont seem to be good for me :lol:

i think mayeb it is chocolate..maybe you could tell me if these ingradiants are gluten free becuase i am so sure htye are but nmayeb i am totally wrong..but i think when i eat chcolate it makes it worse... :blink:

Milk chocolate with whole hazlenuts..milk, sugar, hazlenuts, cocoa butter, cocoa mass, emulsifier (soya lecithin), salt, flavorings (vanilla, vanillin)

are they gluten-free?? hum...mayeb it is some type of food..but i tried eating just rice and peppers for a few days and the syptoms continued.. ;)

thankyou for replying to my message :)

elisabet Contributor
elisabet
Posted
HUm i don't no...i eat gluten free conrflakes and they seem fine, and i don't really eat eggs..well not by themselves cos they dont seem to be good for me  :lol:

i think mayeb it is chocolate..maybe you could tell me if these ingradiants are gluten free becuase i am so sure htye are but nmayeb i am totally wrong..but i think when i eat chcolate it makes it worse... :blink:

Milk chocolate with whole hazlenuts..milk, sugar, hazlenuts, cocoa butter, cocoa mass, emulsifier (soya lecithin), salt, flavorings (vanilla, vanillin)

are they gluten-free?? hum...mayeb it is some type of food..but i tried eating just rice and peppers for a few days and the syptoms continued.. ;)

thankyou for replying to my message  :)

<{POST_SNAPBACK}>

casein has a molecular structure very similar to gluten,I think you must eleminate all diary product as well,it normally helps a lot.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

if you think it might be chocolate...some can not tolerate it well. i am one of those... my other thoughts were also have you switched food, meds, products or eaten at a friends house recently? any new stress in your life? other food intolerances are also a possiblity. you could keep a food journal and try and track symptoms and see if they correlate to a specific food or ingredient too. i have done that--it has helped me find out foods i can not tolerate.

ravenwoodglass Mentor
ravenwoodglass
Posted
Milk chocolate with whole hazlenuts..milk, sugar, hazlenuts, cocoa butter, cocoa mass, emulsifier (soya lecithin), salt, flavorings (vanilla, vanillin)

are they gluten-free?? hum...mayeb it is some type of food..but i tried eating just rice and peppers for a few days and the syptoms continued.. ;)

thankyou for replying to my message  :)

<{POST_SNAPBACK}>

You need to call the company that makes the chocolate to check out if the vanilla is gluten-free or if the lines may be contaminated.

You mentioned eating rice and peppers and the symptoms continued. Here is what I discovered recently, don't know if it will apply to you but... Before being gluten-free I ate very little rice, after diagnosis it became a staple at every meal. I continued to have some problems, mostly DH and bloat, after reading Dangerous Grains a light went off and I radically cut my rice intake. After a real short time my DH started to heal and I became bloat free. You may want to try being rice free for a while to see if it helps. For myself I can have a sandwich with tapioca/rice bread with no problems but if I eat the actual grain I get problems. Don't know if this will help but....

KaitiUSA Enthusiast
KaitiUSA
Posted
i eat gluten free conrflakes and they seem fine

What brand of cornflakes do you eat because I know Kelloggs are not gluten free so if it's that brand you would be getting gluten.

What brand of chocolate do you eat?

elisabet Contributor
elisabet
Posted
You need to call the company that makes the chocolate to check out if the vanilla is gluten-free or if the lines may be contaminated.

You mentioned eating rice and peppers and the symptoms continued.  Here is what I discovered recently, don't know if it will apply to you but... Before being gluten-free I ate very little rice, after diagnosis it became a staple at every meal. I continued to have some problems, mostly DH and bloat,  after reading Dangerous Grains a light went off and I radically cut my rice intake. After a real short time my DH started to heal and I became bloat free.  You may want to try being rice free for a while to see if it helps. For myself I can have a sandwich with tapioca/rice bread with no problems but if I eat the actual grain I get problems. Don't know if this will help but....

<{POST_SNAPBACK}>

It is a good idea to cut rice, I like to do this,but what do you eat instead for rice and bread?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,176
    • Most Online (within 30 mins)
      7,748
    Ceekay
    Newest Member
    Ceekay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      Is Toblerone Gluten-Free?

      By Sheila mellors · Posted

      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...