Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Trust?

afitgirl

Recommended Posts

afitgirl Rookie
afitgirl
Posted

This is a huge issue for me.   I don't know what is okay and what isn't?     I'm not worried about whole foods but how do I know what products are okay?  

I was excited to discover loads of stuff labeled gluten free and although I cried at the store, I at least brought home stuff to try.  But now I read that nothing is safe?   How do I really know?   Calling seems insane for every single product and then I'm just trusting the person on the other end who doesn't care about  me at all???

 

How does this work?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I just read the ingredients. I feel great and my antibodies are low. You can make yourself crazy playing the " what if " games. Most Celiacs do what I do. They aren't on this forum posting. Most People on the forum are either new to Celiac or having some issues, celiac or not.

afitgirl Rookie
afitgirl
Posted
  • Author

Do low antibodies mean you aren't eating gluten? Or "too much gluten" to do harm? Does it mean your intestines are healed or "healed enough."

GF Lover Rising Star
GF Lover
Posted

Ok girl.   You have to stop this.  If it says gluten free, you have to assume it is safe.  If you have a problem with that particular food, don't eat it again.  Try to avoid processed foods as they are not healthy, celiac or not.  Avoid eating out until you have a good grip on the diet and can maneuver the restaurant scene successfully if at all.   You do not need to worry about your antibodies unless at a checkup they are high.  You will heal without eating gluten.  You will keep yourself nuts and stressed out if you don't calm down and eat correctly.  

 

You will be fine!  start your diet and go live your life.  If, by chance, another health issue pops up, deal with that and then go live life again.  This is not hard to do if you just accept your diet change and realize you will continue to heal and feel better.  A diagnosis of Celiac is a GOOD thing!  You have found an issue and are now dealing with it to avoid possible problems in the future.  Some of us went 15 - 20 years undiagnosed and were on our way to the grave at the time of diagnosis.  

 

Cheer up, eat well and be happy.

 

Colleen

mbrookes Community Regular
mbrookes
Posted

GFlover is  soooo right. I am not a case of celiac, I am a person who has celiac. You can drive yourself nuts with the "what if's" in life. Trust gluten free labels. If you have a problem with that, you may have another sensitivity. Most celiacs are fine with anything under 20ppm, which is the legal limit for marking something gluten free. Relax.

BlessedMommy Rising Star
BlessedMommy
Posted

Yep, I agree with the above.

 

I take all the precautions that I can with the areas that I can, because there are areas that I can't control. I'm not standing there in the factory watching them make the stuff. I'm not going to make all my guests change their clothes or wash their hands as soon as they come in my house. I'm not going to stay away from the county fair because of the cow and horse feed with wheat in it. I'm not going to worry about the 1 PPM that my certified gluten-free food might have in it. (munching Udi's granola as I speak) 

 

Now if people need to take precautions in these areas that I mentioned due to extreme sensitivities, that's fine. I'm not belittling that. I have known celiacs/NCGI who can't walk around at the county fair with the grain in the air. But personally that doesn't affect me. You will probably soon figure out your sensitivity level, if something bothers you, don't eat it again. Keeping a food journal can help. 

 

Short of eating a diet of only whole foods and foods from dedicated facilities, there is only so much control that you can have and some degree of uncertainty is part of life as a celiac. 

 

Most celiacs can tolerate up to 20 PPM, which gives you some margin of error for those things that you can't control. But since deliberate contamination will raise you above that level fast, you have to do whatever you can. In other words, if they bring you a hamburger and you take it off the bun, you're probably way above 20 PPM.

IrishHeart Veteran
IrishHeart
Posted

. But since deliberate contamination will raise you above that level fast, you have to do whatever you can. In other words, if they bring you a hamburger and you take it off the bun, you're probably way above 20 PPM.

 

??

 

But no celiac should ever eat a hamburger removed from a bun.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

 Most People on the forum are either new to Celiac or having some issues, celiac or not.

 

Or they are   fine and want to stick around and help  :D

BlessedMommy Rising Star
BlessedMommy
Posted

??

 

But no celiac should ever eat a hamburger removed from a bun.

Yes, that's the point I was trying to make, is that you shouldn't do that. Sorry for the confusion.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748
    Rockette47
    Newest Member
    Rockette47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.