Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sound Like Gluten Sensitivity?


kshell

Recommended Posts

kshell Newbie

My curiosity continues to grow. I am a nurse, and we all know nurses have a tendency to over-research and self diagnose. However, from my early twenties until recently, I've noticed so many symptoms that point to gluten sensitivity. I always thought I was super sensitive to sodium, seeing as how I swell so easily after eating processed foods and how I swelled up so much during both of my pregnancies. I've also had a sensitive stomach for the majority of my life. I've noticed within the last few years that I am having more and more symptoms of gluten sensitivity (i.e. bloating, swelling of the body (thighs, face, hands, etc), increased anxiety after ingesting gluten, lethargy, irritability, depression, a very difficult time losing weight regardless of diet and moderate to intense exercise.) I had an EGD in January of this year, and my stomach biopsies were normal. Blood pressure is always 100/60ish, pulse in the 70s. Electrolytes within normal limits. I've attempted to eliminate gluten from my diet completely over the past month or so. Yesterday, I snuck a bite of my child's cheese quesadilla (on a flour tortilla), then quickly spit it out. I woke up this morning feeling extremely swollen, tired, lethargic, with general malaise. Do these symptoms sound like gluten sensitivity to you all? I would love to know for sure from folks who suffer from this and have the diagnosis. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe you should continue to eat gluten and get tested for Celiac? I would think you would want to know if you have an autoimmune disease or not. Because Celiac is genetic, This would help your kids, too.

kshell Newbie

It is honestly to the point to where I am very cautious of ingesting any gluten at all. I am at work today and still feel terrible at 2:30pm, regardless of how much water I've been drinking to flush my body :(

Questore Rookie

Who will be hurt if you do not get tested?  Since auto immune is genetically linked, your family might need to know.  If my niece had not been formally diagnosed, I would not even be here, and already doing well...but there is no one I can hurt by not getting diagnosed, and no medical/insurance to be compromised by not having a diagnosis.  I value doctors, but they are not the God we should seek, regardless of how they might feel about themselves.  Doctors are not infalliable, and many here have suffered from their doctors not being willing to look at the whole picture.

 

You have to do the work anyways...it's all on you what you eat. It always has been.  The information wasn't public enough for many of us for too long. As a nurse, you know just how the system works.

 

If eating gluten makes you too ill to work, and you need to work to survive, you have already reached your decision, and do not need to blame yourself for not getting tested.  If you can get tested first, do!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...