Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alternatives To Dapsone

Deano12

By Deano12
in Dermatitis Herpetiformis

Recommended Posts

Deano12 Rookie
Deano12
Posted

Ive just been diagnosed with celiac disease a few weeks ago and I have the dh rash on my face, elbows, buttocks and knees. I have been gluten free for these few weeks, and have been given dapsone to reduce the imflamation of the rash. I am taking 50mg per day and the dermatologists says this medication is for long term. However I have read dapsone is a pretty strong drug which can deplete nutrients in the body. I wanted to know if there was any other alternative to dapsone such as a cream which will reduce the rash especially on my face?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Looking at the U of C Celiac Center  site - it doesn't look like you will be taking the Dapsone for "long term".  Also, it isn't usually on the face - so that could be something different,

 

Open Original Shared Link

 

Dermatitis herpetiformis (DH) is an itchy, blistering skin condition that is a form of celiac disease. The rash usually occurs on the elbows, knees and/or buttocks, and is characterized by its bilateral nature; both knees (and/or both arms) are affected, seldom just one.

 

 

 

 

Open Original Shared Link

Is there a treatment for dermatitis herpetiformis (DH)?

Open Original Shared Link (DH) is treated with a gluten-free diet and medication to control the rash, such as Dapsone or Sulfapyridine. Drug treatment is short term, usually until the gluten-free diet begins to relieve symptoms.

  • 4 weeks later...
JMac Newbie
JMac
Posted

Ive just been diagnosed with celiac disease a few weeks ago and I have the dh rash on my face, elbows, buttocks and knees. I have been gluten free for these few weeks, and have been given dapsone to reduce the imflamation of the rash. I am taking 50mg per day and the dermatologists says this medication is for long term. However I have read dapsone is a pretty strong drug which can deplete nutrients in the body. I wanted to know if there was any other alternative to dapsone such as a cream which will reduce the rash especially on my face?

I had a bad case of DH, including on my face along my jawline.  I tried dapsone, which initially helped, but I ended up having a very bad reaction so I stopped taking it.  My gastro doctor in NY had me try Colcrys which is primarily a gout drug.  I would say that it was not quite as effective as dapsone, but definitely helped.  The key for me has been a strict gluten-free diet.  I also subscribe to the belief that iodine causes DH to flare up. I have been feeling well enough that I stopped taking Colcrys regularly but do occasionally take one if my skin is bothering me.  Good luck.

ravenwoodglass Mentor
ravenwoodglass
Posted

My DH, which was severe, began to heal after I dropped gluten and started to limit iodized salt. Within a couple of weeks I stopped getting new lesions and new blisters would only appear if I got glutened.  It did take a bit of time for lesions to heal but not a real long time. If you are fearful of the toxicity of this drug you could try just being very strict with the diet and eliminate gluten ingredients from your topicals and use non-iodized salt for a while. You do need iodine so after the lesions are healed it can be added back in. 

  • 1 month later...
CTMK3121 Newbie
CTMK3121
Posted

Ive just been diagnosed with celiac disease a few weeks ago and I have the dh rash on my face, elbows, buttocks and knees. I have been gluten free for these few weeks, and have been given dapsone to reduce the imflamation of the rash. I am taking 50mg per day and the dermatologists says this medication is for long term. However I have read dapsone is a pretty strong drug which can deplete nutrients in the body. I wanted to know if there was any other alternative to dapsone such as a cream which will reduce the rash especially on my face?

Ask your dermatologist for a steroid cream (use sparingly because it can thin the skin with excessive use) and lidocaine cream (2.5%).  Using aloe vera directly from the plant is something I have also found effective.   :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Thanks to those who have replied. To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia. Generally feeling unwell. To Trents, We didn’t do any of the construction but did v...
    2. Kirita
      - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant b...
    3. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
    5. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,287
    • Most Online (within 30 mins)
      7,748
    Desert Ratt
    Newest Member
    Desert Ratt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      Brain fog

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Feel like I’m starting over

      By trents · Posted

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.